Prolia Side Effects (Page 29)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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561

Prolia-Terrible pain in hips,legs and shoulders after injection. Multiple infections. Doctors dismissive when you suggest due to Prolia.It has ruined my life as it makes working so difficult.

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562

My wife began taking by injection Prolia Dec. 5, 2014. Doctor gave us a sales pitch promoting Prolia and it's wonderful benefits. We asked him what the side effects might be. He said that the only thing my wife might experience would be discomfort-swelling-rash at the site of inj. He completely down-played any other side effects (did not tell us of any other side effects).

My wife is experiencing a great deal of pain in the sides of her legs, hips and across her mid-lower back. She is also, experiencing terrible explosive diarrhea. She now has headaches at least twice a week. She is now experiencing a bone grating sound in her jaw.
We just recently went online to see what the side effects were---we were shocked beyond words. Among all the possible side effects this drug has, it also, is listed as a cancer therapy drug. One source stated that person should not be vaccinated while on this drug---the drug effects the immune system.

I am actually afraid for my wife's health right now. I simply do not know how all this is going to turn out.

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563

Hi all: Try National Osteoporosis Foundation Connect Inspire Online Community. Wish I had read the postings last year. Wishing you all the best.

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564

As far as I'm concerned, the doctors must get paid from the drug reps in some way, to prescribe the drugs and then the doctors out right lie that this drug is NOT the cause of all the side effects that a person has when they're confronted. The doctors around here in the hospital don't know a thing about Prolia and they don't call the family doctor that prescribed the drug to discuss it. Sure wish someone would file a lawsuit. Prolia almost killed my dad. The doctors, the drug reps and the distributor of Prolia, who is Amgen< all need to be sued. And the FDA doesn't fall far behind them.

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565

I have been diagnosed officially with ONJ - Drug Induced. And my doctors are reporting it to the FDA. I think this is the first step.

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566

Sir , I had lower back pain and explosive diarrhea before injection . It turned out to be Cauda Equina , a rare disease . Because I waited so long to see doc for it I made things worse for myself . Please be sure her family doc is aware of this , may not be prolia related . Its been 15 months now since my last injection and finally feel like myself again. Prayers for your wife !!!

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567

I had prolia injection on Nov 21 2014. I have had 3 uti' s. I have pain in my arm, nausea and extreme tiredness. I have stomach pain, headaches and upper respiratory issues. I have not felt well since this INJECTION.

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568

I had my first shot of Prolia 6 months ago and am due for my 2nd next week. I will not be going for that shot. I have had Pain and burning in my legs and have been to every doctor to find out what is going on. I now know it is from the Prolia. Also pain in both arms, tingling in my legs arms and face. and last frequent urination which has turned into bladder leakage. I will take my chances and not have another shot and hopefully return to normal.

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569

Well, I have had 2 prolia shots now, no s iou see effects. In fact, I don't think It's doing anything for me. I got tangled up with a little dog and his chain, fell hitting the sidewalk. I hit my elbow and crushed it, needing a new artificial implant 6 screws and a plate and broke my tibia in three places. I have been in a rehab since the Monday before Thanksgiving. I will be here until the end of February. My point is, I don't think it did a thing for me and it could have actually made things worse delaying healing time. I was all for this shot, now I won't be getting it again, my whole right side is broke and my doctor says my bones are as thin as a 6 year old. It's worthless.

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570

Barb: Would a DEXA scan be your answer? Then the doctors can tell if you had bone density improvement. I am sorry for your pain. Have you contacted the FDA?

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571

as I previously stated I am not having my 2nd shot but I am going to try a natural supplement. It is called Osaplex. A friend of mine is on it and she said her bone density test has improved since she started using it.

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572

Thank you Victoria for sharing the name of Osaplex. It is certainly a hopeful avenue to pursue. Definitely, Prolia nor Fosamax or any other med is a choice. For all of you out there, beware, now I have developed ONJ, necrosis of the jaw. Good luck to all.

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573

Oh Lala, I am so sorry to hear that and all of your problems from Prolia. Mine seem so minor. I hope they find an answer for you.

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574

I get one once a year and so far I have had minimal improvement. I don't think It's worth taking as I am still in the rehab 8 weeks now and about 6 more to go.

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575

I had my first injection on June 19, 2012. Nine days later I was at the ER. Some people who get the injection, for some odd reason, the meds seem to irritate areas of bone that is giving you problems. My ribs were so sore, I couldn't get a breath of air. the pain was horrible. Over the next six months I saw no improvement. So I never went back for the other injections. I always say, research and research and rhen make a decision. I don't know if you will see improvement after 1 injection. i didn't. So just use good judgement and make your decision.

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576

I would like to ask all of you to go to the FDA website (fda.gov) and please please please fill out the MedWatch Form. You don't have to fill out all the info on the form in order to submit it. I called the FDA yesterday and the person told me to do this. She also said they truly take all reports into concern for warnings etc with drugs. Please tell them your side effects from this awful drug Prolia. My dad can no longer walk and had the shot in August. See previous comments on here. I want them to put on the warning label that this drug is not always gone from the body in 6 months. I see other comments on here that people say they feel awful for longer than 6 months. The person at FDA even admitted to me that it stays in bodies longer than 6 months for some people depending on their health, age, etc. Then they need to list that on the label and those drug reps that don't educate doctors properly, or the ignorant doctors need to tell patients before they prescribe this killer drug. PLEASE FILL OUT THE FORM. You don't have to complete all the info.

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577

The Dr.'s need to read and reply to this as they are ones pushing it. Also ER Dr.'s, they had no clue when I had to go (thought I was having a stroke). When I reported my experience to my Dr. (who would never call me back at time of ER visit), he shrugged it off! Fore-warned is Fore-armed!

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578

I went to the FDA site but I don't see where you are saying there is a form to fill out. Can you tell me how to get to it? Thanks

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579

You need to call tge FDA andbdpeak to a rep. They will send you the form vua mail.

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580

Victoria: FDA Reporting Serious Problems to FDA

You are looking for: Consumer Reporting Form FDA #3500B expiration 6/30/15
Form can be printed and mailed to FDA or emailed.

FDA phone # 1-800 FDA-1088

Wishing you all the best.

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