Prolia Side Effects (Page 147)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Norma (# 5)

My 7 shots (can you believe that I didn't twig earlier) though the last few shots from different medicos were given with the words, 'do you want a hip fracture?' The last shot was about 2 years ago. I have had an aching jaw since about the first one or two and my GP assured me that it was neuralgia. It was not. Also have aching thigh bones which are extremely painful particularly at rest.
GPs take no interest in my complaints.

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Re: Marion (# 2921)

I too have permanent joint pain and disfigurement. The pain, suffering and dangerous side effects I experienced were unmanageable.

My experience with medicos was the same, they turn a deaf ear, but employ scare tactics.

An alkaline diet and exercises can do wonders. Check out Save Our Bones.

This is a highly toxic drug, I advise against it.

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Re: Sal (# 2922)

Well it is now 9 months post injection and still having issues. I used to be able and predict when the adverse effects would happen but now not so much. It happens at any time, things like modules on my finger knuckles, angioedema of my right side of face and right ear, severe joint pain, stomach problems, sore right side of skull and I only had one injection. This is poison for sure and I am not going to let this go. I will keep you all informed as to how I will proceed.

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Re: Dawn (# 2923)

Best wishes to you. I hope you get some relief.

It is poison for sure.

Medicos are not going to advise against it, Big Pharma is not going to take it off the market, and neither is the FDA. It is up to us to spread the word and educate others.

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Re: Dawn (# 2923)

I refused to take it about 8 years ago after reading about side effects, l am now 58. I also stopped various drugs for Osteoporosis 28 years ago and started exercises instead, l am yet to start more specific exercises with The Bone Clinic under supervision.

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Re: Sal (# 2924)

There are almost 3,000 comments in this thread -- does the FDA access this site? How many negative reports about this drug does it take to make a difference? It is frustrating because every side effect we report to our doctors is dismissed as not linked to this drug..... only here, with each other, is credence given to the problem.

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Re: Lizzie (# 2926)

It is my mission to make our voices heard besides just hear. Will keep everyone in the loop with my progress. I will not rest until someone takes notice of the hell we have been through.

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Re: Lizzie (# 2926)

It seems like they don’t care, the only ones who care are the ones being adversely affected. I don’t know the cost now, but when I was taking it, it was $1,300 per shot. One would think at least Medicare would care. On the other hand in most cases the cost of the side effects, such as dental, are now covered by Medicare, so there is no financial loss there. We are the only ones to spread the word. Every time I hear of someone taking Prolia, I urge them to check this site. The usual response is: My Dr. says I must take it “.

I have noticed that Prolia added a few more “possible“ side effects in their ad.

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Is prolia also given to dialysis patients in stage V renal failure.

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I want to get in touch with dialysis patients who have prescribed Prolia. What are the side effects and consequences and why is it also given to dialysis patients.
Who can answer my question, thanks in advance.

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Re: Giralda (# 2929)

Well it is noted that this drug can cause severe issues for someone with severe kidney impairment. So really to me the risk is high and I have no idea why they would use this drug in this case. Anyone taking this even if they have osteoporosis should do their research first and have the doctor who is prescribing sign something indicating that it is safe for the to use and then see how fast they will take them off of the drug. Again only going from what has been published. Could not find a reason to prescribe this drug.

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I still have eczema and asthma-related COPD (chronic bronchitis). There may be others but at the moment I can't think of anything else.

I would be wonderful if in 2020 the side effect go away and never come back.

Hope everyone else is getting better and stronger.

Hugs to all,
Nikki

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Sal (# 2820) --
hi,
Suffered with this as well.

Try "Xylimelts" for DRY mouth. I use them [ 1] at night. It neutralizes acids to a PH of 8. When I took a break, "burning tongue" came back.
Go easy on SALT and tomatoe products. Folic acid tablets are often helpfull.

Oh yeah, I'm here because I said NO to "prolia." Actonel was bad enough, but at least you can quit those.
Always remember, Can NOT quit a "Shot" if you have side effects.

Also , if you have reactions to any vaccines or shots, stay clear from shots like this.
Doctors don't know everything, no matter how much you trust them.
DO YOUR HOMEWORK FIRST< AND TRUST YOURSELF.

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Re: Sal (# 2928)

What"dental" does medicare cover??

Not restoritive work for sure.

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Re: joss (# 2933)

Thanks for the info about Folic acid. From what I have read, B12 can also help.

Be well

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Re: Nikki (# 2932)

Well I am from Canada and have been in contact with a lawyer. Unfortunately they cannot do anything with my case as the adverse events I have experienced were noted in the adverse events by the pharma company. They did give me advice on what I could do so I am going to proceed down that path with another lawyer. If you are from Canada and have adverse events since you started taking Prolia that are not on the pharma company listing ( monologue) then you may have something to work for. Mackenzie Lake law firm win a class action for Fosomax. That is all for now. Yes my adverse effects are getting not as potent but still occurring. More doe my wrists pain, feet, joints, face, ears, excessive heat to head and excessive flushing.

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Re: Dawn (# 2936)

Best to you. I hope to are successful. Here in the U. S. we have little recourse.

Ps I still suffer from the same flushing, joint issues, etc. These are evidence of inflammation in the body.

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Re: Dawn (# 2936)

Hi Dawn,

I'm in Texas. The one thing I found was only for broken tibia's I think.

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I have been on prednisone 10mg daily for polymyalgia rheumatica for three years with benefit, but a bone density scan showed low bone mass. Therefore I agreed to try Prolia, having read the possible side effects. The first shot 13 months ago didn’t seem to bother me, and I can’t remember too many problems after the second shot.
I had my third shot three weeks ago and I believe this is causing the very severe generalized back pain and pain in my arms. It is so bad that I have to take Percocet 5mg three times a day.
I will tough it out, but that was my last shot of Prolia.

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Re: Old Guy (# 2939)

Prolix is a horror. The pain you described is common. One thing to consider is the possibility of Hypocalcemia, which causes muscle pain and stiffness. I myself experienced this and had a hard time getting Dr,’s to listen to me. I saw three Dr.’s who blew me off, statin, calling my symptoms “ Just Fibromyalgia “. Finally, the fourth one listened and ordered the bold tests; as it turned out, my Calcium was dangerously low.

Be well

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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