Prolia Side Effects (Page 111)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Jan (# 2194)

Kayleen, I'm not by any means a dental specialist but I had to have a front tooth pulled 4 months ago due to a severe infection in my tooth caused by Prolia. It had eaten away so much of the tooth that it wouldn't hold a crown. I am now waiting till January to see the oral surgeon regarding an implant and nothing was said regarding not doing it due to Prolia. In my case,though, I have been off it for over a year but not 5 that you were told. I see my regular dentist this Tuesday so I'll also ask him. I'm curious as to why your dentist mentioned 5 years. Did he give you any reason?

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Re: Judy (# 2201)

He worked with cancer patients in his residency who were treated with the denusaub (spelling) (same as Prolia but for cancer) They had gum and tooth issues . When teeth were pulled, the difficulty in healing caused them narcrosis of the jaw bone. My body is slow to heal since my Prolia shot. He said to wait the maximum if possible... he is the first doctor and/or dentist who fully believes in the multitude of side effects from the Prolia that effect us all -differently... I have had bleeding gums, mouth sores and loose teeth. I had not had this prior to Prolia. Also two posts loosened and fell out which made the implant discussion happen. One implant surgeon said wait for 2 years, another said not necessary to wait any time at all, What is Prolia....? It all depends on the doctors experience i think...

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Re: Jan (# 2202)

Thanks, Jan. I will not be seeing the oral surgeon until I'm almost 2 years off Prolia. I certainly will give her the info you gave me. I, too, had mouth sores which have slowly gone away. I have been seeing an oral specialist who also said she had been treating patients for the same problem and had also been on Prolia. I think, on top of all these side effects is the horrendous costs to have all of them attended to. Fortunately in Canada we do have our provincial health insurance to deal with most medical problems but not dental. My private insurance covers some of my dental problems but not implants or anything pertaining to them!

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Re: Jan (# 2202)

I continue to be amazed at the multiple side effects of Prolia affecting so many. The misery and the fact in some cases where the symptoms are irreversible seem criminal to me due to pharmaceutical greed. Definitely all about the money, without conscience, once the pharmaceutical firms have been made aware of documented issues.

My doctor's office called today with a reminder that it was time to schedule my injection. I declined, saying never again. I had 2 in 2015, only one 1 in 2016 (because I was hospitalized) then resumed, 1 in May 2017, by July my symptoms began to reappear with no other explanation than my recent injection. All other testing suggested by doctors looking for other causes were negative. I experienced several of the listed side effects in 2016, the most serious were the weight loss (a 5th of my total body weight), extreme weakness where I literally could not function on a daily basis (I was on FMLA for 2 mos, November & December 2016). Also the concern of loosening teeth.

I would offer caution to those considering dental implants. My daughter had 4 molar implants at 28 yrs due to loss of teeth from other health issues (anorexia/bulimia as a teen). The incision never healed properly resulting in constant infection, which affected her overall health for years. The original dentist would not remove them and it was 4 yrs before she found a dentist that would. A real nightmare. I urge those considering implants to do extensive research prior as not everyone is a candidate for dental implants.

This forum is certainly a service and very beneficial to those willing to share their experience. My heart goes out to all those suffering.

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Re: Jan (# 2202)

Jan, saw my regular dentist yesterday and he was very impressed with how my gums have healed where I had my front tooth pulled. I don't see the oral surgeon until the end of January and will see, then, whether it's a go for the implant and possibly a bone graft. I eat a high calcium diet( no calcium supplements) and am taking 4000 ius of vitamin D daily along with C and a B complex. Naturally I'm concerned about jaw bone problems as I have had 2 surgeries on my jaw due to TMJ so my oral surgeon is being very conservative dealing with any problems with an implant.

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Re: Verwon (# 13)

Renee/Alberta
I had 2 prolia shots everything was okay until a month ago.I am having jaw problem,pain and difficulty opening wide to brush my teeth. Did anyone else have this .Does it go away.

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Re: Renee Nadu (# 2206)

That was my first side effect. Turns out, I had hypoCalcemia. It might be worth having your calcium level checked.

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Does everyone have severe osteoporosis?.. because I don’t. I broke my wrist. Im 58. I was given this injection btw thinking that it was going to be in pill form. But a new “dr of nursing practice “ specially of rheumatology and orthopedics “ sets my appointment the same time as my Botox injection. This was strange because she did both saying there wasn’t going to be any side effects other than a possible headache! I said that’s what I’m getting the Botox for! I have have horrible migraines. I was very apprehensive at the time and felt pressured. But trusting her anyway went against my gut feeling that something wasn’t right. Prior to that on the forms a number of things come into my mind that really doesn’t make sense then.. but they do now. I remember that she was the one who filled it out.. I didn’t.. it was verbal. Due to my hand injury. And when I would say something she would say,” oh “,”you have that right?” I didn’t say yes. My injection was August 22,2017 My life took a horrible turn down a slow painful process that’s inside my bones and not doing anything good. Despite me calling and reporting my so called “side effects” to both the F.D.A and her office , I’m just calling it what it is ...it’s down right poisen! Ok so here’s the list . migraines.fatigue, weakness,hair loss ,deep bone pain , tightness in throat and jaw. Gum soreness, bleeding, Acid reflux, popping sounds of joints. Both patella ( knees ) extremely low blood pressure.. and if all all that’s not enough... I literally developed a bone cyst overnight on my clavicle that is the size of a walnut. If this is what happened to you, or somebody you know.. this drug has got to be stopped. Who did they do use in the clinical trials research on? Dead people.? Because that’s how it makes me feel.

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Re: Betsey B (# 2208)

Beaty I want to give you a big hug... your story sounds as bad as mine side effect wise... also I was 58 and some osteopenia with broken toes and a write few years before falling on ice... my symptoms have gone from worse to worser to a tiny bit better each day/week/month/year. I am almost 2 years post Prolia now. In addition, my autoimmune system was turned upside down. Anything muscular or bone or mouth or dietary or fatigue or pain related that could go wrong did. I also seem to cycle through side effects which flare up... it has been a lost 2 years but now I am finding hope again...

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Re: Sedona (# 33)

Hello, just came upon your post. It sounds like my story. I also have copd and it definitely is worse since my first shot in June iPod this year. My pulmunologist doesn't comment, even though I told him I'm quite sure the shot made me worse. It's been almost 6 months since my first (and only) prolia shot. Could you please tell me if you've seen any improvement since your off of prolia. Would greatly appreciate any feedback. Thank you
Barbara

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Re: Jan (# 2209)

Thank you Jan! The hug was heartwarming...back at you girl! You are so right about the “cycles”. They tend to follow a pattern, none of which I found in any brochure about possible side effects. I’m happy that you feel better. I’m hopeful I’ll get there too. It’s just a lousy way for the medical industry to make a buck. They apparently forgot about the medical code of ethics.

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Re: Betsey B (# 2208)

What our Drs. do not seem to be realizing is that Prolia is a last ditch effort to save our bones when ALL of the previous have failed. It is not unusual to get a large bone growth some place on the body. They have been reported in sinus and eye sockets. At least yours can be removed but it's going to cause discomfort. I do not know for sure if the lumps it deposits has bone marrow in them or not. If not, no problem to have it removed. Bones only get really super upset when the marrow is turned loose on the human body causing lots of immflamuation. Your side effects from the injection read as normal. You should start getting much better now that your immune system has returned to normal. Hang in there and you will get thru this journey. Be well~

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Re: Kell (# 2204)

Not all dentists do implants. Some are specialists that only do implants. The dentist only puts on the crown when all has healed -- about 6 months. The dentist should have had her on antibiotics before doing invasive dental work. Let this be a reminder to all! Be well~

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I must say that I could write a book about this nasty drug. I posted early on that I got 1 shot in August, 2011 and am still suffering from the side effects and I don't believe your body ever gets rid of the effects. I don't mean to disappoint anyone but I am now 76 and I continue to have issues. Have seen countless new doctors and they can't answer the questions. It just needs to be taken off the market. 'Nuff said.

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I was concerned when I had my first injection the last of May of this year. I just had my second injection l0 days ago...so far I've had no side effects from either injection.

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Betsey B (# 2212) --

Also Jan

Cycles! That is the way my side effects appear. Also, they appear in a particular order. Right now, I don't know if I am actually over this, or just between cycles. It has béen 11 months since my last shot. No provider has believed me about this. No, I take that back, my new pain management Dr. believes me about the whole thing. He has in fact, observed that he is seeing patients who have pain syndromes become extremely exacerbated on Prolia.

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Betsey B (# 2209) --

I also hate to tell you that Amgen is doing a 10 year study of Prolia and somehow I believe we are the guinea pigs in it. That should answer your questions as to why Amgen and the FDA really are not paying much attention at the moment. The most we can do is to keep calling and keep pressure on them with every single little or huge side effect we get. I read it some time back in the NY Times. Be well~

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Betsey B (# 2209) --

Thanks. I needed that info. I was supposed to have inj. this week but am leery. I already have migraines and enough back/joint pain. The list of side effects were plain and clear. I will not be getting the shot EVERY six months! Thank you so much.

My first bone density test was 3.50 but my Orthopaedic Dr. said nothing. Now, my family Dr. ordered one and it's 4.75. How bad is that? What is the very worst number? I'm so confused after the Orthopaedic Dr. not advising me three years ago!

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Re: Poodle (# 2213)

Dear Poodle, My orthopedic surgeon has told me that in order to remove the bone lump from my clavicle it would require invasive surgery. Also the location of the bone it takes an orthopedic surgeon and a cardiovascular surgeon to perform this type of surgery . So when you say that “it will cause discomfort and no problem to get it removed “ I don’t know what your medical background or for that matter pedigree is, you do not know what you are talking about. Put a muzzle on your mouth unless you know the facts!

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The one thing that I noticed after 4 to 5 months after first shot was that my hair stopped falling out. Now I will have to worry about vertebrae fractures because I'm discontinuing this horrible drug, and going to try and do natural things to help my bones.
Barbara

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