Prolia & Hair Loss (Page 3)
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Lavettah Brewer (# 425)

I think there has been enough said about this killer it needs to disappear. I think who every said put it on the market selling should have to fix all the people it has destroyed it may have helped a few, it would be. My hair is so thin I have been looking at wigs.been back on antibiotics for teeth again. I’m going to wind up on baby food.

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Re: Dietitian (# 428)

Have hope as mine continued to fall for a long time, then suddenly I found tons of short fresh hair growing all over , in fact I still have some growing which is just a few inches long and growing ! A good diet of green vegetables and fish was a decision I made , maybe it helped . I wish you luck , sadly doctors and consultants have little interest in these dreadful side effects .

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Re: pamma (# 426)

ItIt’s been a year and a half since my last prolia injection and my hair continues to fall out I have very little hair left on the top of my head and I don’t know what type of style will be appropriate I’m going to retire prematurely because I work for the public and I feel very insecure I informed my gynaecologist about the situation and he never responded

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Re: Lavettah Brewer (# 425)

how many shots did you take? I took one shot a year and a half ago... had the hair loss.. coming back slow but sure; had a parathyroid tumor... don't know if it is linked but Prolia can create hypocalcemia which evidently masked the fact that my calcium was, in actuality, high.. which is a sign of parathyroid problems. It is like an endless cycle. I am so sorry you are feeling the extreme reactions you are enduring.

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Hi
I had my first and ONLY prolia injection in August 2018 . Within one week my hair started falling out , I had restless leg syndrome , acid reflux problems , rashes and bumps all over my body . I soon realised what had caused this , but doctors and particularly Amgen who I corresponded with in the UK , all denied it was Prolia . I lost all my hair except for a few strands , paid over £1300 for treatment and decent wigs , and still suffer from restless leg syndrome and acid reflux, also rashes and bumps but the good news is that my hair grew back after 16 months . Its a poison , no question about it , and a bone scan revealed I was no better off for the drug . I have made it my job to tell everyone I know never to risk this poison being put into your body , it is not worth it . It made me so so ill , I did not want to go on . Whatever doctors and consultants tell you, ignore . Some people have terrible reactions and I was one of them .

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Hair ,Teeth,feet,knees,now thyroid. This shot Prolia almost killed me now my thyroid is all messed up and research shows the Prolia Shot can cause Thyroid Cancer Can destroy the thyroid. I would not give it to my dog. What I can’t understand is why all the talk why don’t someone do something about the stuff before it kills someone else.my hair is so thin a rubber Band want stay in it. I have wrote wrote and wrote. I have lost another tooth and half of one broke off and the dentist can’t fix it.just a matter of time until I will lose all the bottom teeth according to Dr Selecman my Dentists. The shot is to blame.

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Oh yes. I originally asked that about 2 years ago. Mine fell out in handfuls. Also lost my eye brows. I used Rodan and Fields eyelash boost on my eyelashes and luckily I kept them. My hair has not grown back in and I’ve tried several products. This stuff is poison. I lost weight and strength. Developed Shogrens syndrome. Dry mouth - dry everything! $6000 in dental bills. Lost one top back molar. I took one injection. Told my dr NO More. I’m trying AlgaeCal and Strontium. One of my measures was up last Dr visit.

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I am still having hair lose. Also still losing teeth. Now Thyroid panel (Blood Work) shows my thyroid is not functioning like it should,and Prolia shot can cause thyroid cancer,can destroy thyroid. So now my doctor is trying to figure out what to due.

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I am 75 and love my thick hair. Been using Shann Christen biomethod shampoo. He is hair dresser in Los Angeles. Not expensive, been using it for years when my hair was falling out. My part had no hair, now u cannot see any scalp. He was on tv. It works, I only use that shampoo.

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Re: dietitian (# 419)

Hope you get some answers. I honestly think the dermatologist saved my hair. So, if your Doc has no answers maybe try that. I am going to read more about immune systems which is what (I think) Prolia messed with. Wish you well-- I hope you hang in there with your job. Our culture puts a lot of power into hair (thank you Farah Fawcett), but that does not get the job done!

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Re: dietitian (# 419)

Physicians will totally deny side effects from Prolia and tell you that you are the only one who has ever complained, so don't be surprised if that is what you hear. I am in a couple of support groups with thousands of members, and have learned that is the universal response. My third and final Prolia injection was in June of 2018, and the hair on my arms and legs grew back in this summer, so I know the loss was due to Prolia. I still have spots on my scalp that are very sparse, and I am still losing more than I should and can't tell that it is growing back at all. I also have acid reflux that I never had before Prolia, and my gastroenterologist told me that he sees a lot of patients on Prolia with gastric problems. I also had severe joint pain, that started early on in my treatment, to the point that I could hardly walk. That has resolved by stopping as well as the extreme fatigue. I also had an issue with a tooth, which may or may not be related. Bottomline. my overall health took a nosedive when I started this drug. Now I have to worry about rebound fractures which is upsetting to a person who has never fractured before. I feel I am worse off than when I started.

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Re: Lizzie (# 418)

I've been writing about my hair shedding for a while and convinced myself that avoiding the next prolia injection scheduled in April 30, 2019 would be the end of this. However, nearly a year has gone by, and the shedding is such that the crown of my head is getting incredibly thin. I didn't pay enough attention that when I had my hair dyed that my scalp was extremely itchy, so I stopped going for traditional colouring. Since I still work full time at 66, I want to look presentable with the many people I meet each day. I could retire, but that seems a bit extreme. I'm searching for a colour product that won't irritate my scalp. As far as my teeth/gums: they're in big trouble, as some teeth are loosening from the jaw. Is this all because of prolia? Or perhaps my hormones are completely out of whack. I'm seeing the doctor Monday am and will ask these questions and hopefully she has a few extra minutes for me. I really appreciate sharing my struggles and learning about yours. ending my best thoughts to all who read and contribute to this site.

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Re: Lavettah Brewer (# 417)

I hate it for you! I have wrestled with the hair and had some mouth pain along the jawline but so far have not lost any teeth. Dermatologist found a rash in my scalp that he thinks led to the hair loss... all kinds of bumps and itching. Prolia does cause rashes so maybe that is the link... am using scalp cleansing shampoo.. still shedding but not as much.

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You bey. I took that shot PROLEI 1-2 yrs ago I’m still losing Hair and my teeth. Just lost another tooth!then had infected gum.,now one is half broke off.i am hoping a root Chanel can be done to save it. My hair is so thin I have to use that powder stuff and paint my head, to fill in where my scape is showing. That shot almost killed me.my primary Doctor told me if I took another shot it would kill me. I would not recommend it be given to anyone.

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Re: susan (# 415)

Thanks for your response!--- I am trying to find out where it is actually made; Amgen has offices in America and China and some other global locations... I really want to know where the stuff is assembled ( mixed?) and created before it arrives at the Doctors' office in injection form. Then maybe the inspection records can be checked..

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Re: Lizzie (# 414)

Denosumab (Prolia) was manufacture by a company called Amgen which is one the world's largest biotechnology company and was established in Newbury California in 1980. I'm not sure if this truly the right answer to your question Lizzie but hope it helps.

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Re: dietitian (# 413)

Unfortunately we can't see our immune systems which is where ( I think ) all of the side effects stem from. I have started taking collagen which seems to have helped with the skin dry out and rashes as well as maybe the hair. Have only been taking it a month so it is too soon to tell about the hair- the skin improvement is obvious and less hair seems to be falling out. I can't find out exactly where Prolia is actually manufactured... what country, what facility. Does anybody know?

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Re: Gloria (# 411)

Thank you Gloria for your message. My last injection was October 30th 2018 after having lost at least 50% of my hair. I thought that this ongoing daily fallout would eventually stop, but as you have indicated this can go on for years. This is very upsetting considering that hair loss is what we can see; what about what we cannot see?

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Re: Gloria (# 411)

That is exactly right and I searched it as well that it is a low dose of chemo used for bone cancer. Hair loss happened to me after my second shot and I was even stunned at the hair on my arms were gone. I never did the third shot in April and to my surprise the hair on my arms have grown back and the hair on my head seems to be filling in somewhat and there are not so many sparse thin patches. I have been taking biotin which I have been told will help existing hair so maybe that's why my hair has been feeling a little bit thicker and plumper. I'm glad you have no more problems with your teeth and jaw and hopefully by not taking this horrible drug anymore your hair will come back as well. Best of luck Gloria

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Yes, hair loss is one of the many side effects of Prolia. It has been a nightmare for me, having had many of the horrible side effects of this drug. My last shot was in 2015, and I still have lasting side effects that I am not sure will ever go away. Teeth problems, just saw an oral surgeon yesterday, and he said that I was lucky to have had no more tooth and jaw problems for this drug. It is now being used for Cancer patients who have bone cancer. As I stated, a total nightmare for me. I hope this helps you and others.

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