Prolia & Hair Loss (Page 17)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Marilyn (# 320)

Hi. I also had massive hair loss but after the first shot. Now 15 months later I still have terrible acid reflux, vertigo, sleeplessness, skin problems, bone pain. After several letters to Amgen they denied that it was the drug that caused all these problems, but we all know better, as it has affected our lives in a manner that is not acceptable. These side effects should be given in full and explained in detail by doctors or nurses, and then a choice can be made. After the shot my bone scan showed barely any difference so all that suffering was for nothing.

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Re: Marilyn (# 320)

I did not take my last shot- so I have been off Prolia for about a month. Hair still falling out a lot ..Now a sonogram indicates parathyroid issues; am also having eye problems. On the positive side the constant overwhelming fatigue has been somewhat alleviated. The acid reflux also has improved a bit. Rashes still pop up everywhere. It is discouraging.

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Yes! Ive lot tons of hair. The loss occurs throughout the 6 months but it lessens as time goes on. Mine does not grow back. I am not taking the drug as nymore due to so much hair loss.

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Re: Lavettah (# 319)

Yes! Ive lot tons of hair. The loss occurs throughout the 6 months but it lessens as time goes on. Mine does not grow back. I am not taking the drug as nymore due to so much hair loss.

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Re: Garedbug (# 323)

How many Prolia shots did you get in total? At what point did you start losing your hair?

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Yes, I have the same problem, never thought about prolia. Glad you mention this because I have been losing hair ever since I started the injections. I changed shampoo and conditioner several times, now I know. I have finished the injections and my doctor wants me to start a different treatment but I decided I am finished.

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Re: Lavettah (# 319)

The teeth thing scares me. I had awful mouth infections after the shot-- now I have teeth pain and some infection( have been off Prolia for a month). I am really careful and persistent with maintenance of teeth but just dread the dental visit.

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Re: Gracie (# 2)

Yes, I lost a lot of hair and all of my top teeth. Never will take this horrible drug again. Also had my stomach go up into
My esophagus two weeks after my one and only Prolia injection. I could have died and had to have surgery.

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Re: Marilyn (# 325)

I had one shot and started losing hair two weeks later. Am a month overdue for the second shot ( which I did not get) and am still losing hair along with other issues.

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Re: Anne (# 20)

After my third injection on October 30th 2018, my hair loss was so significant that I became more anxious than I already am. I began to investigate what I am doing differently. I take no other medications other than Prolia--and came across this thread and it makes sense. Initially, I was suggested calcium supplements but the specialist highly recommended Prolia, probably because at the time, a year ago, my hair was still thick. I am hoping that I can go back to just supplements, exercise, good diet, and restful sleep, because now I have more heat flashes at night than when I first became menopausal, 10 years ago. Thank you for this opportunity.

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Re: dietitian (# 330)

I am now 3 months without the Prolia shot. My hair loss has slowed considerably... Have been taking Body 1 Hair Skin and Nails since the first shedding occurred after the shot... now I just take a biotin supplement. Also had gone to the dermatologist when hair first started falling out.. he said sebhoric (can't spell that) dermatitis on the scalp.. which made sense because skin problems are a side effect of Prolia. Am taking the Algaecal/Strontium but do not know if it will work or not. I am still getting some pretty severe bone pain in various places, but it goes away after a few days. I don't what lies ahead with osteo problems, but I know for now I do not have the overwhelming fatigue I had after the shot and still have some hair. That is enough for the moment!

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Re: dietitian (# 330)

Not only have my hair and eyebrows been thinning, particularly noticeable after the 3rd shot, but my eyelashes are almost gone. Two specialists have vehemently denied that any other patient of theirs has experienced this or any of the other many side effects I have experienced. My 4th shot was scheduled yesterday, 12/26, but I postponed because I have out-of-town visitors arriving today, but mostly because I have been on the fence about continuing. I feel trapped because of the dangers of rebound fractures, and have been advised that I will need to take something because of that. I know those taking this drug without any problems are the least likely to comment on any online site, but I would have a lot more confidence if I could hear of some positive experiences and outcomes. My doctor did admit to me that there simply are not any really good pharmaceutical options at this time for the treatment of osteoporosis.

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Re: Marilyn (# 332)
I have nothing positive to say. My immune system suffered and my hair still hardly grows. My jaw is popping loudly now. I had 2 shots, the last in November 2014. I'll just do nothing and let nature take it's course.

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Re: Marilyn (# 332)

Now that you mentioned it, my eyebrows are also thinning. I hardly have any lashes even though I applied this product called "EyEnvy" onto the lids of my eyes close to the lashes. It was working well before the 3rd injection. There is a bright side: fewer hairs underneath my chin, and I hardly have to shave my legs and armpits!

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Re: dietitian (# 334)

I shaved my legs in May and didn't have to do it again all summer! There is no question in my mind and experience that this is all related to Prolia, and it's so upsetting to have my doctor tell me that I am the only one.This is a very large practice with multiple physicians and years of specializing in osteoporosis care and treatment, so I know there has to be others experiencing some of the same things.Worried that I might have something else going on, I have seen other doctors to check out things I was experiencing like chronic cough, acid reflux, vertigo episodes, and fatigue to rule out other causes, and they found no other cause.

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You are not alone. Everything you mentioned I have experienced and still experience. Prolia may be good for strengthening the bones but the side effects have made me regret going through the procedure. I haven't had an injection in almost a year, before Prolia I did Forteo every day for a year and Prolia every six months for two years. I can't say I have had a good day since I started. My bones may be stronger but I haven't felt physically good since I started on this journey called Osteoporosis. So again ”you are not alone ”.

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Re: Marilyn (# 335)

Yes! Chronic cough--as soon as I'm over one bout of coughing, a month goes by and then another throat irritation and now I have a cough again. I thought it was due to exposure to my grandchildren, but I'm immune to their germs by now. I am now searching for scientific evidence as to whether diet, exercise, meditation, oral calcium and vitamin D supplements will substitute for Prolia. I will post a link when I find something truly credible.

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Re: dietitian (# 337)

My ENT couldn't find another cause for the cough or any of the other symptoms that are in his bailiwick. A cough is a side effect I have seen listed for Prolia. He was thorough with allergy testing, a chest x-ray (I've had breast cancer), nasal endoscopy and a head scan. I would have felt better about going forward with Prolia, if I could find there was another reason for any of the many miseries. I cough all the time - it never goes away.

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It has now been over a year and I/2 of not taking Prolia. I had no idea when I stopped on my own that it was not allowed. My doctor was not happy that I had done this. My doctor had not told me that once I had this shot I had to continue for ever. I had the shots for two years and my bone scans showed no improvements in my bone thickness at all. The only thing that changed was my hair and skin. I have gangiloids growing on one arm and bone spurs on 6 fingers. My hair looks like it needs a good conditioner, which it has, and my hair is still falling out in hands full every day. Help? Not one outfit, doctor or any person reading this.

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Re: Karen (# 339)

I am so sorry for all of your troubles. I only had one shot but had the hair loss... I have not had a shot for 4 months but still deal with the hair issue. I went to a dermatologist who told me it was dermatitis of my scalp which made sense as Prolia can cause rashes. I use TSal shampoo and take biotin daily. It is an ongoing battle and my hair is really thin. I am not losing hair as rapidly as before, but still shed quite a bit. Hope things get better for you as you distance yourself from the drug.

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