Pain Medication Shame (Page 6)

First of all, I hate taking pain meds but I was almost completely bedridden for 2 yrs. They gave me my life back and I'll be grateful for the rest of my life. My insurance company dropped me right before I was gonna have surgery to get some relief. So I had no choice but to go with the pain meds. I've been on oxycodone 30/150 per month (5 a day) and MS Contin 200mg 2 times daily since 2009. Had breaks when I could. My point is, nobody knows what my daily life is like. I feel ashamed every month getting refills. Maybe it's in my head but the staff at the pharmacy gives me that "pill seeker" look. I guess all that matters is my doctor trusts me and he knows my complete history. I know I'm not taking them for fun. I'd much rather be normal. Can anyone relate to what I'm saying?

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Re: focked (# 98)

It doesn't sound like you're able to drive, but if you were, I know of a good PM clinic in Sarasota, if you can get a ride there they would be able to help you.

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Re: Jack175 (# 101)

Frocked

Have you tried these places in Boca? It's Called PEACE MEDICAL
FORT LAUDERDALE: 5333 N. Dixie Hwy. Ste 204 Fort Lauderdale, FL 33334
BOCA RATON: 500 NE Spanish River Blvd. Suite 35 Boca Raton, FL 33431

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Re: focked (# 98)

Hey, I'll do everything I can to get you to a better place, just have faith and trust me, ok?

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Re: Jack175 (# 102)

They all work with Pain Management, and they offices nearby!!

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Re: Jack175 (# 100)

To thine own self be true!! I've dealt with addiction a lot of my life. And at some point opiates turn on you! You can't live with them or without them. They quit helping pain and made me sick . So I researched and my Dr wrote me 2 mg buprenorphine and half way thru I tapered off. Now I'm living without!! Do I hurt? YES!!! But its worth it!! Learning to live with pain!!! I've had 15 surgeries in my life and I'm not 65.

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Re: Beth (# 105)

I'm sorry to hear that is your reality! I do know what you say is true and it takes a whole lot to admit it! Prayers that you find something that can help you deal with the pain! Changing your diet, exercise, you name it; I have heard of all sorts of things that have helped people! May you find yours!

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Re: cliff j (# 99)

I had been on pain management for many years. I have never had to ask for medication early and I believe you misunderstood my post! I didn't actually have my medication stolen. Unfortunately about a year ago my pain management doctor got a visit at his office! My doctor didn't tell me what was actually said but he told me that he was afraid and he not only had to start tapering me but many others as well!

And I spent many years of hell trying to keep pain management in the state of Florida because of shyster doctors who wrote prescriptions for anyone some people that really needed it couldn't get it and still can't! I have actually given up trying to find what I know I need because even though the majority of the shyster doctors are gone the good doctors are now afraid to prescribe especially for a new patient!

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Re: Jack175 (# 101)
What is the name of the pain management center in Sarasota? Are you at liberty to give out that information? Many times people are reluctant to give out names because if the pain management center starts getting a lot of phone calls they feel that they have been targeted and will tighten up their actions or just tell everyone that they are not accepting anymore patients at this time.

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Re: Jack175 (# 102)

I really have not done much of anything to try and find another doctor! I have been cut off enough times that I'm not sure how many! It is always been for something stupid! I had a doctor drop me because I could not fill his prescriptions? He was 41 miles from my home but he was in a different County so the pharmacies in my County would not fill them and the pharmacies in his County would not fill them. This came after I was a patient of his for years. You cannot imagine what I went through when I went looking for my medication when I needed it that month and could not get it! After more than a week of being without my medication I went to my primary care doctor and had him take my pain management doctors prescription and he wrote me the same exact medication which I was then able to fill. It is very hard to believe but my primary care doctor dropped me as well! He told me I was too much trouble since this was not the first time I had come to him for help when I was not able to fill my prescription! I had been wearing a 100 mics of fentanyl for many years and to be honest the pain got me far before withdrawals ever did!

I have finally gotten it through my head but there is going to be no fix! You have a real problem if you cannot live with your pain!

Many blessings to you!

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Re: Jack175 (# 102)

I should have thanked you Jack ... My apologies! I am glad to hear you are doing well!

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Re: cliff j (# 99)

If you can not get an early fill in your own state and you cannot get any fill out of state; what do we do? How do we make it to our children's wedding, emergency funerals or the arrival of our grandchildren! For years I have had to be home every 30 days to see my pain management doctor and get a prescription refill except on a few occasions when I was going out of town and I would be able to get an early refill! Now we can no longer get an early refill and the majority of us are not even able to get our medication any longer! Please know that we are losing more than addicts!

We are losing people who are in pain and cannot do anything about it except to leave it behind and go towards the light!

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Re: Focked (# 111)
Keep in mind that when a Schedule 2 pain medication can be refilled is now covered by three various laws:State, Federal, and the Pharmacy can declare how early they will refill a prescription. They cannot be flexible except when a Governor declares a State of emergency and says that everyone should refill their meds as soon as possible. This is the world we live in now.

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Re: Focked (# 107)
When it comes to pain medication no excuses are accepted. I do not believe that I ever posted that you had your medication stolen but that, however, is one of the excuses that some have given to their Doctor to get more meds. Some use the excuse that they lost their meds. The problem is, even if you are known to the Doctor and/or Pharmacist they cannot tell if you are telling the truth or not. Every Doctor that I have ever seen has told me in advance to make sure nothing happens to my medication because it cannot and will not be replaced. Period.

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Re: Focked (# 111)

Oh my, so those of us who live in Florida have been riding this daily roller-coaster for a week now, I think. Anyways, as of today the Hurricane Dorian, unless your west coast or you haven't seen the news, then you understand the craziness and why.

Well, this has to do with Governor DeSantis, FL-R. He declared a state of emergency DAYS ago, and we haven't seen Dorian yet, but anticipate(d) for direct hit from its (Dorian) nearly category 5 winds. We're talking total destruction for the areas (typically) hit by the northeast part of the eye wall, approximately.

Well, my county was in that prediction yesterday, and I called my Dr for an state approved, insurable override, on 2 medications that I only have a week and few fays worth. Side note- according to the description factors attached to each hurricane cayagory, written by the author who's models of destruction in catagorical form, a catagorical profile for both 4 and 5 on destructive probability... Essentially say, power outages will be enormous & lasting weeks to MONTHS! Not to mention the structural damage. They use the term "CATASTROPHIC". So too the reporters, scaring the LIFE out of your waking consciousness.

In lieu of the governor saying publicly, to make sure we have our medical needs and prescribed medical drugs on hand and in enough supply to 'weather' the storms fallout.

Sooo... THE nurse said after i called again to check on my request, "mo... Oh its tricky on these controlled drugs" etc - "but you have, lets see, enough meds for 12 days, right? Well yes... Hmm... Ok ty for letting me know, be safe.," you too and I'm sooo sorry". Click.

I'm at this point raging to myself, cleaning up and talking to myself like a nut job. "what the f***...this is an bad storm. My house, your house (thinking the Dr) could be demolished. Then what a**hole, are you going to come rescue me in 12 days.

Errrr! Sorry, I could explain the rest of that day, but I should stop.

At least the Pharmacists have been given Privilege to override all prescription medications (EXCEPT C-II)... it's a process, and you can Google it. I just do not want to take advantage of hrr my pharm, if it is unnecessary. But both meds are c-IV and one is Klonopin. No *****, I'm not running out of that, going cold turkey and having possible benzodiazapine withdrawal syndrome. ESPECIALLY WHEN MY HOUSE IS NOW ON THE NEIGHBORS PROPERTY AND MY BEDROOM IS SOMEWHERE IN THE ATLANTIC OCEAN!

NO *****, NO! OK, sorry, this s*** is stressing every one. I dare not go to a gas station without an axe or machete. It's crazy.

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I was pretty sure before they took me off my pain medications that I could not live in this world without them. After coming off of the Klonopin and fentanyl I am more sure than ever that I cannot live in this world without something for my pain! To be very honest, I would at this point purchase from the street if I only knew where to go as it seems like a better choice than others that come to mind! I'm in so much pain I can't stand it and I have nowhere to turn! I would go to the ER except that the last three trips I was sent home with nothing and got nothing at the hospital that helped! $100 deductible for every trip!

People call us selfish if we take our lives but I don't see selfishness; maybe it's because all I feel is the horrible pain from my 60 plus year old body and no one willing to try and help me!

Although the hurricane has turned to the north a bit and I'm in South Florida I am still in the midst of the worst storm of my life and believe me when I say I have a weathered some horrible storms! I will leave you all on that note! I tried to write a kinder more gentle message but I could not get there I'm so sorry!

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Re: Fpharmacists (# 114)

I lived in Florida for many years. I NEVER had any problems. First, I bought the things that I needed to buy in advance way before they were needed. If I made it through hurricane season I used up the things I didn’t use and just rebought it in the spring before hurricane season. As far as my medications went thankfully I never ran out or had a problem. I kept my gas tank topped off during hurricane season so I never had a problem there either. I also kept 20 gallons of gas in my shed in 5 gallon cans just in case. I live on a fixed income bu I spent my money wisely. If there was a choice between a convenience item and an item I needed for my hurricane supplies I made sure that I never put myself in a position to have to fight the crowds at a gas station or grocery store. Again, as far as my meds went I never ran out so I can’t comment on the meds situation.

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Re: Focked (# 111)

You can move out of Florida. NO GOVERNOR can ORDER a Doctor to refill a prescription early. They can lift any State sanctions but they cannot ORDER a Doctor to refill a prescription early. Many Doctors are recalcitrant and just will not do anything to help out Chronic pain patients regardless of who says what. At least you have a 12 day supply on hand. If most Doctors did anything they would write a 10 day script and not a full refill. There used to be “pill mills” in Florida and along with this fake opioid epidemic they went too far in the other direction to try and correct the issue. It is not and never has been a problem until the Doctors said it was. The forecast has improved somewhat and the direction of the hurricane may miss most of Florida. Be safe.

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Re: Beth (# 105)

You’re going to have withdrawals coming off that medication that are worse than pain medication withdrawals. Good luck.

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Re: Focked (# 115)
I understand that you are concerned about your situation. What does a person do when they have no meds to get them by? The only thing that comes to mind is what did the people in the 1920’s and 1930’s do when they had basically nothing ever? I have begun trying to take a little less than on days that I can get by to try and save up some of my meds for a rougher day. The day is fast approaching that only financially well off people will be able to afford a pain Doctor. I wish I had better answers but I don’t have any. People that are on medicines that you depend on like pain meds had better make a plan for when the time comes where you do not have the pain meds you need. There will always be things like blood pressure pills, cholesterol medication and the like available but pain medications are drying up fast. Doctors that used to write pain meds have been inundated with paperwork and oversight and they are just saying “to hell with it” and refuse or be put through the wringer with oversight and regulations. Btw, most people cannot afford “street meds” because they are expensive and of bad quality for the most part.

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Re: w John (# 119)

People don’t realize-there are medication shortages all the time. Stuff people need to actually live. And yeah, I need my pain medication to have a life, but I mean there are shortages of stuff people need for survival.
Look at the FDA shortage list once in awhile. It’s alarming. Last year there was a shortage of one type of anesthesia. And bags of saline.
Always always always try to get a little stockpile for yourself. Wallgreens lets you fill up to two days early if your doctor doesn’t write “not to be filled before ___ “ on it.

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