Metronidazole Lasting Side Effects (Page 44)

I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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Anna- Please do not get discouraged or think you are doing something wrong than others when you are trying so so hard. I did the bone broth and candida diet and so much more as I said for my gastro. system. I swear I was fine in the first place. Sometimes THAT makes me wonder if that was why I was hit so hard. I ate organic and healthy for so long I lost track of how many years it was...I read so often of people like myself getting such severe side effects at times which seems so opposite of what should happen. Anyway, there are times that you can do exactly what others do and recovery comes different, or slower, or whatever may be...I am always happy to hear when anyone recovers or starts to feel better. That is best news ever. Yet, that does not mean that the next person is exactly the same. This is frustrating for all of us. I made my own bone broth for a long time. I, also, had all my supplements compounded for myself through a dr. I was seeing as I did not think the over the counter things would work as well. Keep using the bone broth as it is absolutely healthy. I just do not want you to get discouraged and give up because you are not responding. the side effects of Fluoroquinolones seem to be exactly the same with flagyl. As I mentioned-hang in there--this is hell on earth. It hurts a lot every place on the body hurts which is the crazy part. The brain screams. The nausea I had in the beginning was unreal. How I was always the worst every night around the same time. Right around 7-8pm the pain in my stomach bent me in half in pain and I would roll around on the couch and cry and go on my knees and down and just could not stop the pain and then it would go away and come back to that severity the next night. It was nuts. I was given nausea meds finally. I cannot remember if they helped or not. Sorry-so much was going on at that time. I know they did not work at first but might have later. I remember taking ginger and mint and all those old remedies first. I do not have an answer why it was that way more than many others had the same thing. I forget how long you have been dealing with this. It took a while before the most horrible of symptoms calmed down a bit but some did....yes, I am not better, but not as bad as the first year as I mentioned. Yes, the gut and brain are connected, my dr. said this as well, which is why I tried the bonebroth and other things. I hope your nausea subsides soon. I could not eat for a while. My stomach would just tighten right up in pain when I did eat something no matter what it was.. nutrition was not on my side and some say you have to force yourself. Some can but I actually understand those people who could not even force themselves to eat something as the body actually could not handle it and the pain would be worse no matter the food. I have five huge, overflowing folders of my information, research, records. and so on through the years. I am no where near someone that is an expert on this, just someone like many that are going through this and do not understand why when I was so healthy. Now I am unhealthy and no by choice. Promise, I am not putting down anyone's suggestions, everything is something to read and research, I do not want you to feel like I did wondering why do I not get better when some do. I have read some get better in days/weeks/months/ and some even many years later--wish someone knew why. At least there is more information now on this than years ago. There is a group that goes to Washington DC here every year to advocate for the research. These are such great people. Hang in there --I want you to get better so much.

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Hi malinda!

Its okay, I understand that the holidays took a lot from you. It did that for me too, even if I was at home. I couldn't go any where, I just remained at home with my fiance. We tried to do the best off it. But it was hard not to celebrate the christmas with parents and my brother and his family. I wanted to go there, but I couldn't. But I hope that you had a good christmas after all? About the insomnia, its terrible. So we both know and understand each other. For me its like my brain cant relax. The weird thing is with me and the pain and the severe neuropathy all over the body. Its getting better when im laying down. Usually. Not always, some night its horrible. Today I laid in bed a little longer, and all off my joints in the body was popping and I wonder if my bones and joints are starting to crack soon. The sound is horrible. Did you have that too?

The problem with the insomnia, if I take sleeping pills, I feel so much worse the day after. I haven't taken any yet. I just hope that my sleeping is starting to get better soon. I just wished that I could sleep at least 4 hours. Or something like that. But I wake up, with muscle twitches and tremors in my whole body. Or extreme nightmares. I have never dream things like this. Horrible! You sound like me, me stomach can not take every supplement people suggest. And yes...I'm talking to a lot off other people out there who have been hurt, from flagyl or fluroqinolones. And so many say, take this , take that.....So much supplements. I wished I could take them all, but I cant. My stomach react to everything, even magnesium. But now im trying again with the magnesium, to see if it has some effect. Do you feel that the magnesium is helping you? By the way, where in your body do you feel all your pain? Is it pain? Or do you also have tingling, numbness and so on? Today I have had tingling and numbness in my whole head, and this awful head pressure, feels like the head is about to explode.

My fiance and I talk a lot. He has been a rock for me. He believes in me, and supports me. I cry alot , and he is there for me always. He says every day, that this is going to get better. But to be honest, I did believe that before. But not anymore. It has effected also my heart. And my body cant control my heart rate. I guess I have pots now. Because when im laying down, my body cant control my bp and heart rate, but when I stand up, my heart rate is going crazy and my bp too. Sometimes I have extremely high, sometimes very low. So I guess its pots. Because off autonomic neuropathy. I get so much chest pains when im standing.
No, here in sweden its not legal with marijuana. So thats not an option.

No, we have not decided a wedding day. We were planning a little before this happened, but every plan about a wedding is not there anymore. Not that we dont want to get married, but now, its just too much to even think about that. But I love my fiance so much. Like I said, if I havent had him or my parents, I dont know how I would make it this far. I have a hard time go to the store, my father has do drive my every where. And my mother has to do alot off shopping for me. Before I used to love going for shopping for hours. Now its not that funny anymore. Every light in the store is to much for me, im extremely light sensitive, and blurry vision. And im sound sensitive. And when I try to shop, its like my brain get overwhelmed by it. I feel overloaded. Never thought that a person can feel like this. I try to meditate, but even that is hard.

Yes, im drinking tea that is a tea called "Bed time tea". Its a lot off herbs, thats good for relaxing. I have tried melatonin, but I felt just horrible on that. Its like my body cant take anything anymore. I seem to react to everything. So strange! Many have said that melatonin can be good to take for sleep, but for me, it just made everything worse. I want to take q10 and ala, I tried that to, but I reacted to that to. The only thing that I can take right now is d vitamin, colostrum for my stomach, and d ribose for my fatigue. Im trying to take magnesium again, but I dont know if its going to work this time. The last time I got rashes all over my face.

Like you said malinda. I guess some people heal. No one can know, who is going to get better and who is not. Thats the hard part, not knowing. And some people get better with time, even if they have not taken any supplement. So I guess time is the main thing.

About your blood pressure, you said that it did go very high the first year, did it got better after that time? Is it normal today? I mean, my blood pressure when its low, it can be 80/40, with a heart rate off 48. Really low for me. And sometimes my heart rate is 180, and my blood pressure extremely high, the worst was 200/180. Thats not good at all. But its only when im standing that I have that high, not when laying down.

You have had this since 2009. You must be so strong. Have you heard about people recovered after a very long time? Or do the most people heal the first year? I have read alot, and some seem to recover most the first or the second year. But I wonder if some people have start to improve after a lot off years. I guess you have talked to alot off people out there, since you got hurt. It seems that recovery stories is not out there so much. I have read so much pain in people, and people not recovering. And the people who seem to get better, are the ones that see improvements pretty quickly.

I wished I could turn back time....I think all off us feel the same way. I think "What if I had read about flagyl before I took it", "What if I never had gone to that doctor or to another one, maybe that doctor would have gave me something else, that would not have hurt me" ...So many thoughts. But nothing can turn back time now. Nothing.

Hugs to you malinda!

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Anna, I agree with you. Don't get me wrong--I absolutely believe there is a big connection between the gut and the brain, and when the gut is unhappy, everything can be off. Even the blood brain barrier, which protects the brain from harmful substances, is less effective when your gut flora is depleted. So...there is a connection.

However, I do believe that the majority of the problems with metronidazole toxicity is neurological. And this isn't a guessing game--when doctors implement appropriate care (which is rare, but when they do) they can detect brain lesions on an MRI. Case studies, the FDA ADR report, and systematic reviews all confirm this--encephalopathy (aka, brain dysfunction).

These lesions are almost always found on the cerebellum, but can also be present on the basal ganglia, midbrain, antererior commissure, and even the brain stem. After discontinuation of the med, the lesions typically disappear, but there is poor correlation between the resolution of symptoms and whether or not these lesions go away. That means there is probably still some histologic damage that brain scans cannot detect.

A perfect example of this problem with limited medical technology is CTE--chronic traumatic encephalopathy. Watch the movie "Concussion" and it really shows it. Basically, on a regular scan, the brains of these athletes look fine, but when they die and their brains are put under a microscope, the damage is everywhere.

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Ok, your first brain is your stomach.. it formed before your head....research the vagus nerve... if it is not functioning well then there is little that works and taking suppliments, etc won't do nearly as much good as activating or reactivating that nerve.... do some research and see what you can find about how to reactivate it and get your stomach to communicate with your brain...

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Erin
Well i do belive this is from flagyl that has gone through my blood brain barrier. And did damage to my brain, definitly. I can even feel The damage. Never thought a person can feel The damage in the brain, but belive me, i can feel it. And its not only damage to my brain, its damage to my nerves around The body. I have tinggling, numbness and pain every where in the body. I can also feel tingling and pain inside my organs and inside The body, its horrible.
My muscles isnt there any more and The joint and muscle pain is horrible. So alot off damage
And i think The gut and The brain is very important. But in my case, i think my neuropathy is why i have so much pain in the stomach. Im certain that i have either dysautonomia or autonomic neuropathy. So thats why i have so much stomach pain, because i can eat The same food several days, and some days i have pain and some days its not extreme pain . But i also belive that my stomach dont feel right because off The destroyed good bacteria.
Thanks Erin, i will look at that movie concussion. And i belive we have brain damage that no mri or ct scan Will show. Its like you mentioned, they can only see that under The microscope
But its so weird. Many have The same damage and symptoms and side effects. But some get better and some get worse. Can The brain heal better for some People and for some not? And why? I just wished they had answers för this.

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Thanks bjh
I have read alot about vagus nerve. And i have read that you can stimulate it. I think The vagus nerve definitly has something to do with this to. Like i said, i guess i have autonomic neuropathy. And The vagus nerve has alot to do with heart rate, bloodpressure, swallowing (i have problems with my swallowing too now), and The gut, and also The breathing (have a hard time to breath, like i cant take in the air in my lungs) . But if it has alot off damage, i dont know if it can be healed, like The nerve damage around in the body. But im trying to do everything that i can to try to heal. im Reading about healing The brain, healing neuropathy, healing vagusnerve, healing The gut. I just wished i had The answers why im just getting worse over time. Maybe i have too much damage. But im trying to do what i can.
I wished they had a cure for all this. Or...that they would never prescribe things like this, that can do so much damage and harm.

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I definitely believe that eating right, getting the stomach in order, can really help. I drank kefir like crazy when I was the sickest, and it really helped my gut--I still had other problems but after awhile, my stomach wasn't one of them. My appetite was severely lacking for months after my stomach pain/nausea/constipation cleared up, but it slowly returned on its own as well.

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Malinda
Thanks thats so sweet off you. But i do wonder many Times. Why do some People heal, but why wont i?, i must be doing something wrong. But in my heart, i know im doing everything that i can. I eat organic, healthy, no sugar ( Yes i eat fruits, but that i really need to eat), no gluten, tried so many supplements that i have forgotten how many. And i dont want too think about how much i have spent for all off that.
About The bone broth, maybe that is not going to work. But i take it mostly for my joints and muscles, and some for my stomach. And some is when i do have alot off stomach pain, then i know i get alot off healthy minerals and vitamins from it. So im going to eat that for a long time. maybe its not going to make any difference, but at least, i dont think its going to make me worse, or i hope not. I was thinking about candida diet to. First i thought that maybe i have to much bad bacteria in my stomach. But i dont belive that any more. I think its nerve damage.
Malinda, do you still eat organic food today?
I have read alot off People that can not eat anything else but organic food, because then they react badly
See what you are writing about your nausea and The stomach pain, it makes me so sad, that so many go through this. I dont have nausea all day, but i have it alot. Either i feel extreme nausea or like my stomach are full, only on a few bites, or i dont have no appetite at all. And i can say, im one of The People that force my self to eat, because i have lost so much weight, and I still loose more and more. Im afraid im not going to have anything left on my body soon. But i was a heavy woman before this. But some days, even if i force my self to eat, some days i cant eat that much that my body needs. Before all this i could long for food. Thinking off what to make for dinner, feel hunger and be happy about food. Now its like something in my brain have died, before that says " mmm... Im hungry, i want food " now its more " do i need to eat... Noooo". But like i said, i force my self to eat, because i know that my body needs that.
Another thing. Sometimes i dont feel any thirst att all, and sometimes im so Thirsty even if i have been drinking so much water. So strange
I have been dealing with this since november 2015. It took flagyl 400mg three Times a day. I feel nausea even writing about it. many say its not a long time. but every minute is to long
Thanks malinda. Im hoping you to heal to. You deserve to get better and have no more pain and suffering. no one deserve to suffer like this.

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Erin
Kefir is very good for The stomach. I have tried probiotics in so many forms. But for me, it seems that it do not change so much. Right now im eating fermented foods. My stomach seem to handle that pretty Well.
Thats so good that your stomach got better. I think healing it, is also very important in all this. but i had trouble with my stomach even before this.

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Are you constipated or having diarrhea? Do you have a gall bladder?
Start with the very basics that your stomach needs.. I made no real progress on anything else until I got this one figured out.

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bjh
Well i have both. No, no gallbladder, it was taken out for over 15 years ago.

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Ok, so, look at health food stores, get some ox bile and take it. Since you have constipation you also need HCL with pepsin.. Start with these.. you should feel better within 2 days and everything should start moving nicely and easily... then talk to me.

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Bjh
I have found something called ergozym over here. I cant find just ox bile and hcl. But in this, its alot off other things in it. I dont know if its good for me or not. How much was it, that you took off ox bile and hcl in a day?
In two talets ( that is says to take every day) there is 150 mg pepsin and 200mg of ox bile, is that enough?
But im not sure if my stomach is because off that, i think its because autonomic neuropathy. But i can att least try, to see if i see any changes.

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Those should work well, take one of each with each meal. If you don't notice any differences in the first 2 days add one more of each... inch it up until you get results and stop at that level and keep it going IF it is working and you are NOT getting any effects such as pain or diarrhea... supposedly HCL if taking too much could cause some burning sensation in the stomach... so pay close attention.. Don't add anything else because it can confuse the issues...

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Anna-I have the exact same issue with food you do accept I gained weight and my dr. tested me for so much and could not figure out why. I was never overweight. 127 lbs and 5 ft. 6 inch-not sure what that is in metric, but I have no appetite either. Food never comes to my mind at all. I do not eat until usually the late morning or early afternoon and then try again around 10 - 11 at night. That is usually about all. I know i need to eat a more well rounded diet but I am just not hungry. Yes, I still eat healthy foods most of the time. I ate that way for 20 years before getting floxed and after floxed-could not eat for a while but when I tried, always organic/antibiotic free. It did not seem to change anything but still I felt better to continue. At times I will eat something not organic now. I guess started that about two years ago but it is occasional and I do not feel any different than I did all the years floxed. I will go all day and not drink and forget to do so often until I realize it just as you do. I have the same issues with food and drink as you do. I have a very hard time eating food as most of it makes me feel sick thinking about it. Especially any kind of meat. I use to be able to eat chicken and fish and enjoy it. Now, it is a chore to have a bit of it. I do alright with most vegetables, fruits and whole grains but do not eat them near as much as I should. Just not hungry. I was tested for Cushions disease a few years after this all started because of the weight gain that happened in a span of less than two months. I had not weight gain in the first few years. Then-bam-a whole bunch of weight super fast and then stopped. I never gained any more and the same dr. that treated me the whole time saw this happen. It put me in tears for sure. I was so sick I could not shop for clothes and had to wear sweats of my husbands. I still do not have anything nice as it seems pointless. I just have some sweats and large shirts because anything tight hurts to wear. It is crazy for sure. I know people that are hit by flagyl or fluors. have all the same symptoms and no one knows the hows to make it stop. The one thing I have noticed over the years is that the people that do heal are so fortunate and I am so happy for them but if they healed from the things they all write than I should have healed before I read all these posts. I do not give up--I keep trying. I still think that maybe tomorrow I will get better. Sleep is so bad for me though. I just do not sleep right and then all at once I will sleep most of the day. Usually once every few months this happens. I wish there was more answers for those of us who keep trying. I do know there are people that even heal years later so it is worth the effort to keep at it the best we can...I have a very hard time showering, that is a chore that takes everything out of me..and has since the start. I wish I knew why but I know i am not alone in this one. I hate this but it is what it is...if I shower daily, I am in so much more pain. All this is more than any of us could have imagined to live with and if I was one that recovered from the things I have done and still do than I would write about them to others as well in thinking it will help. Sadly, for some it does not. I was going through the clinic and getting the Glut. IVs before a person I buddied with who also started the same exact things I was doing. We were in constant contact. He recovered before me and I still kept at it and did not recover at all. Go figure. He is back at work and fine now. He thought he was dying as well. Wish I could understand this all. Keep doing the best things you can for yourself and do not give up. You never know--keep the faith. I think the bone broth and anything is always healthy. You might recover==keep the faith. I am going to copy and paste something someone in my group wrote. I will put it in a new reply box so it is separate to read. It meant a lot to me when I read it.

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Someone on a Floxed site that I am a member of posted this and it says a lot....
2017 DON"T LET ME DOWN
As my baseline lowers and I weaken, I get rather quiet. I'm still in here somewhere but interacting is extremely difficult at times. I have fewer words, I get more easily lost and/or confused. So I don't get to post or even check in too often. Hell, I hardly even look at my phone or answer when family calls. I wish I could be more active or engaged, but these are the cards I've been dealt.
My condition changes not only day-to-day, but this is truly a minute-by-minute fight for me most times. So that makes it difficult to give updates since by the time I find the words I want to use, my condition has changed. That's been incredibly frustrating for over 8 years now. Not being able to use my words when I want, respond to easy conversation. or being "locked in" as they say, is one of the most de-humanizing experiences I have ever had or can imagine. On top of that is piles and piles of shame.
I fight this monster with everything I am. I fight the pain, I fight a nightmarish list of symptoms that covers nearly every single system and bit of tissue in my body. I fight shame from being unable to be self-sufficient and for having to rely on others to care for me.Feelings of hopelessness from being unable to find or ask for help. Feelings of worthlessness for not being able to do many of the things I used to... I am a proud man who refuses to fail and refuses to give up. And as much as I want to say I've overcome the shame and feeling of being a burden to my family, I have not. And it's starting to eat me alive.
To combat this I focus almost exclusively on what's right in my world. I recognize and am grateful for small wins and I try to pay more attention to the times where I impose my will on this monster - perhaps that means I made it to the washroom. Or on a better day perhaps I spent 2 hours outside the house with my family. Or like a few nights ago, I was able to fight this enough to read a few poems to my boy at bedtime. That's not always possible, so when I am able to it really lifts my spirits. Still though, no matter how hard I fight the shame it still bleeds through.
So, I am looking to make a deal with 2017. Instead of my finding reasons to feel beaten or even cry - which never helps anyone - I promise to continue to do my part here. I will keep fighting and keep making myself believe that I am loved and am worth whatever extra effort my disabilities may cause those around me. I can't ask anything of 2017 if I'm not willing to do my part all over again.
I'm rambling and feel lost again, I've been writing this in fragments over the last 2 hours or so. I'm hoping this makes at least some sense.
Perhaps my only real point here is that you MUST do your part too. You've already spent too much time on your knees begging, crying... flailing your arms in the air out of desperation. I may not be winning the physical fight, or even the mental fight against all-consuming shame. But I am still fighting. And so are you.
2017: I will do my part. I will live with purpose and I will inspire. Will you do yours?
If you've actually read my tangential ramblings, thank you. Much love for you all and I wish you all strength to face 2017 with a better attitude and a renewed sense of worth.
Your Brother in Fight,
/M

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I think you have made great strides just getting this communication out. I wish I had something to offer to help but since I didn't have this particular treatment I don't have any background or knowledge or experience to offer. I can only offer this. Hug someone everyday. Hugging is supposed to help your immune system.. IF it doesn't then it still makes for a better world. We must all find ways to help each other so we don't end up victims.

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Malinda
That made me cry...so beautiful written by that person M. He had Come a long way, to see in that way. I hope i can change my mind and see in that way to some day. I needed to read that. So thanks malinda. Im on floxiehope to.
That person you wrote about. That took ivs when you did that. That healed. What did that person suffer from, what kind off damage ? Thats like we have talked about malinda. Some People do recover, and some dont. There isnt an answer for this. But no one should been going through this. but i Wonder why some heal and some dont.
We seem to have it The same, with The stomach. Its like nothing seems to matter, how little i eat, how much i eat or how good i eat. I really think that its because off autonomic neuropathy in my case, because off The gut, my blood pressure, my heart rate, my swallowing problems, my breathing problems and so on. Even my throath tingles and is numb. I have extreme pain in my teeth also now. When is this going to change? At least to get a little better.
Im so sad malinda, seeing you have gone trough this so many years.
So you gained weight after this? But not anymore, right? For me, im really worried. Because i just loose more and more weight, and I cant seem too do anything to stop it. I have lost 53 pounds since flagyl. I lost alot off weight before that because i was so over weight and did change my diet and eating more healthy. But since flagyl... I just loose more and moore. I dont want that. Its enough now. But i do eat, but something do not seem to take up The food or something.
Malinda about clothes that are to tight, i cant have that either, it just hurts.
Malinda can i contact you on mail? So we can have contact and support each other through this. Hugs!

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Bjh
I Will try that. I Will order that when i have some money. Its not easy beeing on sick leave right now. But i Will try that. I hope i have results like you had.

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Anna-I hear your frustration. There are research groups here trying to figure the WHYS out. The flagyl and fluors do the exact same thing to the body and I do not know why. It damages the mitochondria and cells and usually good cells replace the bad cells after time but that is not the case here. There is going to be a controlled study on people who have taken these meds and had no reaction and people who have taken them and had a reaction. There are drs. here trying to figure this out. Until they know why they will not know the how on repairing. So for now, we must keep on trying and trying and sticking with this. I have the exact same issue with my swallowing, throat, and teeth. I had great teeth and now they are a mess. Never had an issue until this. It is embarrassing. I know of many that gain or lose so we are like many. I sweat a lot as well and that is torture. That did not start until the second year. Not sure why and I had so many evaluations in so many places and hospitals and there is no answer as it is not menopause that it started with and it does not mimic meno. I am in menopause now as I was forced there by having everything taken out in my second year as the bleeding was non stop when I was floxed and I was anemic. Never had that before either. It is 4 pm here and so far I have eaten a small bowl of granola and one coffee. Yes, bad, but just not hungry. I am the same as you. I stopped coffee for years and it made no difference so I went back to it and no difference. I have a cup or two. Oh and had my small glass of Orange Juice. I will not eat again until 10-11 tonight as that will be when I get at least hungry enough. I know you lost a lot of weight. But if you were a bit overweight, then was it just the weight that would have been normal to lose if you were on a routine diet or is it too much weight and now you are wasting away? I ask because my best friend from childhood was 240 lbs-not sure in metric--and when she ate correct and routine she lost a lot and fast. 53 is a lot to lose. I gained more than than in two months--it is nuts. I do not know how much food one person would really have to eat to gain that much in two months. Then it stopped as I said. You are home-correct? are you trying to work through this? do you have any kind of money to help there? I hope so. Know that the pain I had in my jaw, throat, and swallowing is not as bad now as the first two years. Yes, still there, but not as bad. I sleep on the couch by most part as I cannot sleep well and do not want to disturb my husband all the time. Plus if I sleep leaning up it feels better for me. I miss my bed--nice new mattress, but no choice, I am up most of the night until things calm down enough in my body to sleep of I finally knock out. If I sleep for more than 3-4 hours, then I wake in more pain. I do not like to sleep too many hours in a row. I still try to laugh each day at something. Have learned to enjoy tv which I did not do much of years ago. Reading is hard for me as I have weird vision issues but I test fine. It is an odd feeling looking out of my eyes--like everything is in a different dimension or something. So odd. It bothers me at times. My right ear never stops ringing or thumping. Just crazy things that go back and forth all day and night second to second and minute by minute. You are experiencing what so many of us do. We might get better. You never know so hang in there and push through. Do not give up. We can do this even through this suffering we can do this. Remember how bad the first month was and where you are now. Is there a slight difference? At all? Stay strong.

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I had to take plan b in early November, and ended up having two periods a week apart from each other. 11/14-11/18 and 11...

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## what is this? ## WHAT DOES THIS DRUG DO TO ME.......... ## There are several brands with this active chemical; Please...

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