Metronidazole Lasting Side Effects (Page 42)

I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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Bjh
I understand that
Well you are right. We also have to be our own doctors, because they dont belive what happen to us with The flagyl toxicity . At least not The doctors i have seen.

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I am not as bad as the first year. Thank goodness. Eventually the sensitivity to noise gets less. It is no where as near as bad as the first year as well as the insomnia and nausea. Those are the things that did get better with time. I still get ringing in the ears most days but not as high pitched. That nausea and every noise in the room, even a loud whisper hurting did get better. If you have that, I can say that I have not read of anyone that was severe as myself that did not get some improvement in those areas. It took a while though. It was odd when first floxed, I hung on with all this pain as I felt that there was no way possible for the body to have that much pain and not die or eventually would get better. I was aiming high for complete healing and did not know that it would not happen. The first year is so bad for most. I am sorry that Sweden does not have a place to go for Glutethion (spell) ivs. Do you have a chronic fatigue center or Fibromyalgia center anywhere? I know it is a lot to look into. These offices/drs/ have programs that try to help those of us who deal with the unknown. That is where I received my IVs. They are not easy to find around here as well. Many do not have access. I know we all say to take this and that and we all have a lists of vitamins and herbs but do you have Milk Thistle? This is a known plant that is in pill form that helps with the liver. My vet even gave it to my dog for liver funtion as his liver counts were high and he had crystals in his urine. I was amazed how it works and how fast our dog was better. He stays on this and I was using it way before the dog. It is not a cure but to cleanse the liver-why not. Hang in there, there are many that do recover in time and there is no way to know. Support from family is hard to find at times. I am so sorry you are in this as well. I really do feel for you. It is a tough journey where you are located--I wish there was more help for you.

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ANA-OH-I have read some people that said they "heard" that some were worse on the IVs but I cannot say I know of anyone yet. I know of a few that are better after taking the IVs. But I maintain that who is to say they would no have been better either way. I know of a few people that did them, recovered, and went back to work. Something has always made me feel that they would have recovered with time either way. I am sorry the magnesium does not work for you. Is it the Ionic Mag.?
I still have a lot of pain as well. I am better than the first year though. I am having a tough time keeping my eyes open keying this--I keep falling asleep at the computer. Have to go nap. stay strong.
.

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Hi Malinda!

Okay, the first year was the worst for you. Im 14 months out, but just getting worse and worse. But i got even worse, when i had to go to the hospital with heart issues, because off this flagyl poison. I hope i can get better though.
The first months after flagyl every sound was like an echo in the head. It hurt so much. Then it got less, and then it was more sound sensitivety. But now its back again. I also have ear pressure. So weird.
No we dont have centers here for fibromyalgi or so. We have to go to our doctor. But over here, they dont even belive in something called toxicity and nervedamage and so on. They just think everything is anxiethy. Makes me so mad.
Have you talked to people who recover after years?
I think you have a point. The people who did ivs, maybe they would have healed in time anyway. If we had ivs here, then maybe i would have try that. But i have read several people get hurt or even more damaged, so i dont know if i would dare to do that. I will look into that milk thistle you talked about. Im trying to take colostrum right now . I have tried so many supplements, but most off them make me feel worse. Do you take anything for your pain? Do you have pain in your whole body? My pain seem to travel around in the body, from head to toe. And all the other things going on.

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If you have fibromyalgia it is not caused by one of these meds but is a kidney dysfunction that you are born with and it runs in families... do a bit of research and get a copy of Dr. St. Amand's book, "what your doctor may not tell you about fibromyalgia" Read it cover to cover.. If it sounds like he is writing your life then you are on the right track. I found him in 2000 at age 58 when I was nearly disabled.... now, today I don't have that pain any more... I'm just suffering from the flagyl treatment now.

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Hi. I have been taking this now for 5 days. I've been prescribed for 7 days. Does anyone experience problems during intercourse (i.e. -symptoms of ED)?

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I do believe that is one of the side effects if I remember correctly... being female I couldn't say for certain...but I know I had zero libido.

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I was really sick with a lot of issues, so that alone could have caused the zero libido. But yeah, I had no libido after my reaction. It started to return after about five months.

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Ann - Every word you write is what I still go through to a degree. If I said it was as bad as the first year, I would have taken my life at some point. I never understood how my body and head could have so much pain and still be alive. Never made sense to me at all. Like you, I still have pressure in my head and ears. Just not as bad as the first year. More able to cope with this. One time when I was put in the hospital for Failure to Thrive, which was an embarrassment and an infant syndrome by most parts, but at least it put me in the hospital, anyway--after three solid days with not sleeping due to pain the drs. finally agreed to give me something for the pain. They gave me Dilaudid in my IV. I was scared but as the nurse was putting in my IV and I was asking about the side effects I actually fell asleep while she was giving it to me. I never had any pain med before. I woke up a few hours later for the first time in months with no head pain and actually hungry. It was unreal relief I was in need of for so long. I asked for food at 2 a.m. and they gave me a turkey sandwich which was the first food i properly held down for many months. I felt so much better. I did not get anymore Diluadid at the hospital after that but within 24 hours I was headed right back into the same symptoms and in three days back to the max pain again but so grateful for that relief. So many have the exact side effects you and I do. We are far from alone and it is not right at all. Drs. are the same here--they do not listen or believe. We do not have Fibro Clinics across the U.S. that I know of either. We just happen to have one in the next state of Connecticut to me which is now closed down years later. I am grateful it was there for me at least. They needed more funding. The clinic was full of people like myself in pain and looking for answers in a healthy way. Some had Lyme and did recover. Of course, I was treated for Lyme even though I had been neg. so many times even with the most expensive accurate lyme lab I came up neg. and I was still treated and it never worked. It was obvious I was floxed and drs. at that time did not listen yet. I have been through enough to know that I am, as of right now, not someone that is going to recover-sadly. Not that I give up--but I have tried too much and paced myself doing so as when I once did too many supplements at once, that did not help as well. My list of doing things for year(s) at a time is lengthy to try. With that, I absolutely need pain medication and at this time in my life do not care what others opinions are anymore. I hurt way too much to care. It helps dull it to a degree where I can get up at some point and get some things done. I am not saying that is the solution for everyone but for myself, coming from a healthy, active background, I put it off as long as I could - My pain dr. put me through a lot of evaluations and background checks before helping with pain meds. He knows of the floxing so that helped. I am not his only patient with this condition as well as he has a colleague that Cipro hit. Hydromorphone is very strong but believe it or not--it does not get me even close to out of pain. I never understood how I could be in so much pain, never had drugs in my life, and then take these medications and they did not even touch the pain or get me so called "high or buzzed". Guess that is a good thing but shows you how much pain this really is. I am by no means an expert on any or this all I can think is that the receptors these meds use in the brain are not what this pain is fully about, therefore not taking care of all the pain in our bodies. But some relief is better than none. I fully believe to this day that if I did not get the Dilaudid in the hospital that one time I would not be alive today. Something needed to give me a break from the pain and let things calm down a tiny bit and that did it. I am grateful to that nurse to this day speaking out for me. Like you, I have a long story with many ups and downs, scary days and nights, and drs. not believing in me and crushing my spirit. Family not believing me because of these drs. It is unreal. I use to say I do not want my family to walk in my shoes no matter what they think or say. I changed that thought a long time ago. I would like to give them what I feel for an hour if I could as it would help with compassion for sure. I am sorry the stage you are at....it is awful. I get it for sure. Is there anyone to help you get a slight bit of relief for your pain as it is sounding like you are there. Like trying all you have is not working as of YET, and you need a breather. Do you take any pain meds or anything as well?

PS-GEORGE MICHAEL passing, I am watching this morning on the news, and his struggles of addiction but the odd part was when NBC news journaled that George Michaels was very ill with Pneumonia in 2011 and had to be rushed to someplace for help. He recovered but they said from that point forward something changed. He was reclusive and not seen out. It sure makes me wonder if he was floxed during his treatment as that is the usual treatment. Coincidence, I doubt it. The psychiatric side effects are so severe and depersonalization is tough. Sorry for how long this is....I did not mean to write too much, just kept going. Ann- hang in there, I know you are suffering so much right now and I am so sorry. If you're able to get yourself help for the pain where someone will finally help you and YOU feel this is right for you AT THE MOMENT...you do what you feel is right and no one can ever judge you for sure. And frankly, I did not care if they did at the point I was at....my head was exploding inside and no ice and motrin was ever going to touch that pain. It still echos and hurts, but not as severe at all.

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Hi Malinda!

Im so sorry. Its horrible that you still are going through this. Its just awful. Everything you wrote, its like a horror movie. And i am also in that horror movie now. 14 months out, and are just getting worse. It has effected everything in my body. extreme pain, every where. i never thought this pain could even exist. But no, im not taking anything for this. I dont know how i get through this pain that travels in the body all day and night. But im to scared off more medications. But sometimes i feel that i dont have any options left soon. Maybe i will have to take pain killers. BUT.... im afraid because in september i was rushed to the hospital with my heart. Yes because off flagyl, im sure off it. And they had to give me medications through my veins (no antibiotics), and i got even more worse after that medication. But they had no choice. Because my heart didnt get enough oxygen. So im afraid off any medication now, scared to death actually. But soon , i maybe have no choice.

I know what you mean when people around dont belive. Because some people around me, dont seem to know what im going through. People say " no you cant get that hurt from an antibiotic". So i know exactly what you are talking about. I dont wish this on anybody either. But if they could feel just for an hour what im going through. They would understand, for sure. And beg to go back to their health again.

Its been 14 months, and this feels like a nightmare.

And i agree with you. Do what you think is best for you, about the pain killers. I know what you are going through. You are doing the right thing not to care, what other people think about that. Sometimes we have no choice. We need a break.
But i hope that you have some people around that supports you and belive you that you got hurt from levaquin?
I have support from my parents and my lovely fiance. Without them, i dont know how i could go through this.

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Malinda
By the way. I saw that with George Michael that he had been eaten antibiotics years before this. To be honest......i guess much off this antibiotics are causing so much off peoples sickness and diseases.

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Hi Chantal-

If you are active - drink lot of water, yogurt, probiotic milk, add salads. You would be able to get over typically after a week. Don't forget water

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Anna-14 months feels like an eternity when going through this. All one can do is lie there still as breathing hurts. I used ice packs on my head all day and night. I remember that well. I had many bags of frozen veggies go bad from using them on my head for my head pain. The fear you have for pain meds is a good fear. I had it as well for a long time. But as I wrote, when they gave me that one dose of med. in my IV in the hospital-I slept and ate for the first time in a long time. Do you sleep? Eat much? We all tell each other to eat well, drink well, like we do not know this. We all know right from wrong but when the body actually cannot eat or drink and I do not understand how to explain that to someone but remember how it felt--then it is easy to say and not to do. I had such pain and the tests on my stomach showed inflammation and slow emptying stomach. Because of how severe this pain is it is NOT POSSIBLE for any of us to go through any day and not say how much it hurts. My husband thinks that if he does not listen or give me compassion that it will force me to try to get better faster so he ignores my condition. I gave up on him a long time ago. It did nothing but make me worse because I was dealing with this on my own. I am here because I have to be. He was supportive in the beginning because I was healthy before this. There is no explanation for his behavior. Those people like him are out there and right here. I am glad your fiancee supports you. Tell him to not give up and to keep up the support as you need someone to share this with or it makes it worse....take it from me. To not be able to share how much pain you are in does NOT make it better. You do what is right for you. Some of us can take supplements and others not as many as they feel sick from them no matter how long we try. Foods and liquids--we all know the word organic and antibiotic free by now. We all do this. You are early on even though you feel like you have been in this forever. I do know many that have recovered after 14 months and after a few years. So do not give up but do what YOU have to do that works. You are doing great so far dealing with this hell...

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Hi malinda,

Thanks you so much for your words, it really really means alot. Talking to someone Who knows what kind off hell this is. I started to cry what you wrote. But thats so sad that you haven't had that support around you. Many friends have taken a Step back since i got Hurt. And that hurts alot. I believe.. Maybe they were not as good friends as i thought. One friend have been there for me, and my parents and my fiance. But even if they are There, i feel so alone going through this. Even if they are there and try to support and understand... Well..they cant understand fully. Only we Who go through this can understand each other. Its a horrible way to live. Can i ask you. Did your head pressure and pain get better, or is the head pressure like it was since beginning? About pain killers, you havent had any side effects? Did you have or had dizziness and off balance? This is horrible for me. I cant go any where because off it. Today i tried to go shopping. I almost fainted several Times and had such a nausea. I have this fainting and even seizures, this has gotten worse for me last months. Im very worried about that. and my body can not regulate my heart rate and blood pressure any more, mostly when i stand up. Can i ask you what you have and had since The beginning since you got Hurt, or is it to painful to talk about all this symptoms and damage? Now i have a hard time eating Again. I guess its because what you wrote, my stomach can not regulate my stomach movement. The Weird thing is, after flagyl and six months after that i could eat more. But i lost alot off weight. But since this with my heart happen, when i was rushed to The hospital and was given medications. This time im even worse then The last time. I have lost alot off weight since september. Its starting to worry me. Because im loosing more and more. Dont now what to do anymore. I tried probiotics, but stoped with that a few days ago. But i cant feel any difference with them or with out them. Are your stomach better today? I eat healthy and organic. I have tried so many supplements, but i cant take them right now. Yes my fiance has been a rock. But i feel bad for him, seeing me suffer like this. He is very worried about me. But he says everyday that he Will be there for me forever. Thanks malinda. Many seem too recover the first year. But you have talked to People Who got better after years then? What did they do to get better? For me, im really afraid im damaged for life actually, because its not going The right way for me. Can i ask you how old you are? hugs.

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Update: I saw a neurologist on Friday this week. I do like the man and think he works rationally with people. He said the ataxia could definitely be related to flagyl but didn't want to totally commit to it.. I also noticed that there is a sign on his office door that says drug reps have to call for an appointment... seemingly that could suggest that he's not into drugs so much..

But what he did was check my feet and legs, muscles, etc.. and said I have peripheral neuropathy in addition to some issues with my cerebellum and wrote RX for me to get some physical therapy and come back in 3 months.

Meanwhile my bone density evaluation shows that I have progressed or regressed into osteoporosis. Reading up on the meds for that I found that they create a lot of the same symptoms that I currently have with my gut, etc...so doing my homework.. It seems I have to get some regular walking exercise... going to walk every day either outside or at the rec center... and maybe some weight lifting.. and continue with my tai chi and have to drink green tea... eat prunes and kale and spinach. Guess i'll grow more of that this next year.

Will update you when I am finished with the physical therapy.

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Hey, BJH. Good to hear your neurologist is taking this seriously--when I finally saw a neurologist and showed him my stack of research papers, he conceded that the metronidazole was at least a possibility.

Sorry to hear about your peripheral neuropathy. I didn't have that but ironically, I did end up getting a referral for PT from my neurologist due to lingering neck pain, also from the effing drug.

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I'm glad you got the referral... hope that it helps... how long have you been having neck pain? I'm still working with the tai chi in private sessions and based on the osteo diagnosis have done my home work and will NOT be taking the drugs for that but am starting a walking program and will do some weight training and eat the right foods... NOT dairy so much as green leafy veggies will be added to my diet starting this morning with spinach in my breakfast... the body needs calcium, magnesium and K2 to make bone...so I'm on it. I'll chat later about what the PT is doing if anything helpful.

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HI Bjh!

Ok, so you also have neuropathy to? Like me? Do you have that tingling, pain, and numbness then?
osteoporosis? I tried to read about that. Is it when bones reduces? Or am i wrong? Because i have seen on me now, that my muscles starts to go away, to a point, that im worried. And my joint pain is getting worse every day. couldnt sleep at all last night because off the pain. Every joint in my body make sounds, like popping sounds.

Thats good that you train tai chi and take walks. How can you manage to walk? I have a really hard time even to stand because off the off balance and diziness. I force my self to try, but its hard. I used to love to go for walks for hours.

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Well, I think you are going to need to figure this out.. lots of research, etc.. Hoping the PT will help.. I am only dizzy when I try to walk looking up at the landscape... and I'm going to try the inside track at the rec center because that should have less visual stimulus. Tai Chi, private sessions working ONLY on my balance is helping. I can actually walk outside now without having to look at the ground all the time.. I do use a cane for balance.

I would ask how long you have had the joint pain? The osteo is new diagnosis... and makes sense I think that I'd start having more issues with my hip....So I'm off on a regime of whatever exercise I can get and getting my gut to work properly so it can actually digest my food...and then eating green leafy veggies such as spinach and kale, 3 prunes a day, and mild exercise.. the tai chi person said that merely standing balanced on your feet and bouncing up and down without letting your feet leave the floor is a good beginning.. Any kind of movement that carries your own weight helps to build bone....

So you can start with whatever you can do and see what happens next.. did you see a neurologist yet? What did he say? What actions are you taking at this point?
the Neuropathy is not pain at this point.... so getting the PT and moving may help... we'll see.

If you don't move your muscles they will deteriorate for sure.. and if you don't want to lose both bone and muscle you must force yourself to do some kind of movement even if it hurts... just start with what you can do, record it and then repeat the next day. Keep it up until you can add a few steps or something, anything extra. Do you have some dumb bells or can you get some and do that or weights that you can put on your wrists or ankles? If so you could start by doing that in your chair.

I think maybe you've had this long enough to figure out what bothers you most... I figured out that when I walked I was walking with my feet far apart to keep my balance even though I'd not thought about doing it. And then I noticed that I could drive without being dizzy but it happens when I move... and then I noticed that when I sit and something or someone moves across in front of my vision up close I feel really dizzy.. So I've had to instruct the tai chi fellow to NOT move his hands across my field of vision.... and I also noticed that he asked me to do some movements and count and breathe at the same time. I finally told him I could NOT count and move and breathe at the same time so he does the counting. Some of my homework I do without counting but put a timer on instead. I'm accustomed to a life of multitasking but found myself unable to do that so much any more if it involves my body in motion.

I had a group of people over for breakfast last week and I was making eggs but there were too many people standing in my kitchen talking loudly.. I had to push them out of the kitchen.. didn't push them down to the family room as I should have done.. and I couldn't figure out how many eggs to break even with counting people and figuring two per person. I finally had one person help figure it out and count the ones I'd already broken.... stressful...

I don't have the solutions for you Anne but I think with a lot of research you can find a way to get better.. I'm doing everything I can.. gotta stop and go stretch on the floor.

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I had PT last year, between March 2016 to August 2016. Spinal manipulation once a week for a little over four months--the PT therapist was very nice. It greatly helped; the pressure at the back of my head went away and the neck pain was greatly reduced. I still have the neck pain but it's much improved.

PT is funny like that. It usually helps but doesn't fully cure. I hope it helps you--it's worth the time and energy.

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