Levothyroxine Is Satan (Page 10)

Updated

I don't feel so confused anymore. Now I know all of you are going through the same thing. My doctor put me on 50mcg of Levothyroxine about a month ago and I have gain 8 pounds! I get short-breathed and winded REALLY easily when working out. I used to go to the gym for 2 hours, now I can't make it longer than 30 minutes. I wake up ALL the time with tingly fingers because my hands have fallen asleep. I have headaches, I feel 100 times more lazy than before...and it's supposed to help your energy, not drain it. I e-mailed my doctor today, this is not making me happy. Not to mention I now have an acne type rash that burns like hell on my chin and I've always had clear skin. If this drug is supposed to make you feel better it sure as sh*t isn't working for me. I feel like a fat lazy a$$ with an itchhy burning rash on my face... stay away from this drug, that's my suggestion. :(

223 Replies (12 Pages)

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181

IVE GAINED 10 KILOS IN 10 YEARS ON THIS HORRIBLE DRUG. IM TOO SCARED TO CONE OFF IT NOW. PLUS I GT MOODY SLEEPY AND HAVE NO ENERGY AT ALL. ITSCTURND ME INTO A PISS HEAD

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182

IM GOING TO GO OFF IT. OR ASK FOR A NATURAL ONE. IM SO BLOATED.. IM NEARLY 70 SO WHAT THE HECK. I KNOCKD OFF IT FOR 5 MTHS. LAST YEAR AND MY HAIR THICKND. I LOST 5 KILOS. MY HAIR GREW ETC. BUT WENT BK ON IT COS ITCWAS GOING TOO FAR UBDER ACTIVE. PEEVD OFF. ILL KNOCK IT OFF. MY DAUGHTER KNOCKD IT ON THE HEAD

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183

SHERRY IM GOIN TO GET OFF IT AND GIVE MY DOCTOR A MISS. I AM SO TIRED LAZY BLOATED. I GET A SURGE IN MY EAR AND HAVE GOT TINNITUS EVER SINCE I STSRTD THE DEVIL DRUG

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184

Hello. Please let me know if you find a way to get off it safely. Thank you.

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185

It drove me to insanity! My Dr put me on Armour Thyroid which is a more natural harmone.

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186

I take only the brand name Synthroid 150mcg the last 10 years, due to an autoimmune disorder that has been killing off my thyroid. I have never had one bad effect, no acne, nothing. However I'm no longer losing my hair, I no longer have itchy dried out skin, my hormones levels are better so less mood swings, my weight has evened out, no more weight gain. All of my blood work is much better and shows I'm much healthier. My doctor stressed the importance of taking the brand name Synthroid and no generics, most insurance companies will allow you to switch over to Synthroid with or without a prior authorization from your doctor. I do wonder if these acne complaints are coming from folks who have hormonal issues anyway and low Thyroid levels were masking other hormonal issues. Synthroid helps to stabilize Hypothyroidism which in turn helps stabilize other hormones.....just like when I take Metformin which is a blood sugar medication and it causes me to start ovulating again and then I will have some acne because Metformin is used off label for Polycystic Ovarian Syndrome because it works to normalize your hormones and help you ovulate. Many ladies have acne when they're properly ovulating. A healthy Thyroid gland helps regulate more than just your thyroid levels, therefore a medicine like Synthroid will help more than just your thyroid levels, it will affect other hormone functions as well. It's really easy to blame the medication for everything but you need to understand everything that the medication really does and all that it helps to regulate, off label. Synthroid has helped millions of people live a more normal life, it's not the devil, lol......If you don't like how your body responds to a particular medication then talk to your doctor and find an alternative if there is one. Trying to scare people and bash a highly successful medication such as the active ingredient in Synthroid is just not the answer.

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187

What would happen if we stop taking the Levothyroxine I find I'm tired, breathless, blurred vision some days even a kind of dizziness just feel awful, I take 50mg one day and 75 every other day. I cannot keep on top of things like housework, garden and I'm retired and have all day just no energy and limbs ache after small task.

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188

Is there a reason my original post was not posted?

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189

I understand as your symptoms are mine. Id love to stop my bones are so painful. No energy. Goin bk to doct today. I cant get armour natuural thyroid in NZ or Aus. Mite stop. Its killling us . Now im dizzy and swilken up like a beached whale.

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190

How did it go? My pain is worse now. I am call v my pharmacy to see if I can just switch to brand name synthroid. I will give that a chance to see if the debilitating side effects go away. ibwillbthek push for armor. This has been so much time out from loving a normal life. Life is too short and I will do what helps my body best to get out of this nightmare. Don't feel ashamed for being one of those that have a bad reaction to certain meds. We can feel free to express our feelings and experiences here thankfully. One of the few places we can share and have shared experiences and support.... complete understanding.

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191

You should talk to your doctor about your symptoms, chances are Synthroid or the generic if you take that is not the cause of all of your symptoms. If you believe that it is then have your doctor switch you to something else. If you are hypothyroid then you should be on something or you will get all of the hypo symptoms that your current medication is currently treating you for. The problem with these forums is that a lot of scary unproven stuff is thrown out there about certain medications when there is no actual proof that the medication is actually causing such symptoms. Posting such stuff only causes a mass hysteria when sometimes the very symptoms that a person is experiencing are actually symptoms that their health condition(s) causes in the first place. Unfortunately the only opinions that you will usually get from forums like this will be negative and will not always reflect how the masses feel about the medication, only the few that complain on community boards like this. The best thing to do is talk to your doctor and even your pharmacist about your concerns, most of the people on these boards are not qualified to give medical advice, only a few are. Just remember folks that are happy with Synthroid or a generic form of it are not the same people on boards like this complaining, there are hundreds of thousands of people on Synthroid that have zero problems with it with zero adverse reactions and are pleased with the medication, some of the discussions on boards like this are not fair and balanced and only frighten and scare people. Talk to your doctor to make sure that your symptoms are inline with the adverse reactions of the medication and not caused from something else. As for me I can only take the brand name, Synthroid and not the generic because I'm allergic to something in the binders of the generic. I wish you well!

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192

Been on levothyroxine for 9 years. I dont have a thyroid so its necessary to live. (Hypothyroidism) The first 2 years after the surgery, I didnt take it daily or as instructed. Thought I was going crazy. Once stable, I started gaining weight and now am 40 lbs heavier. Cant breathe well and I have bumps in/on my scalp as well as my face. Been worried and was going to go to a dermatologist until I saw these posts about other people and levothyroxine. My hair is very thin, have no energy, muscles stay sore daily even without using them, extremely dry skin just to name a few. Now I dont know if these symptoms are side effects of the medicine or the hypothyroidism.

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193

ITS A TERRIBLE DRUG BUT NECESSARY. I LOATHE IT BUT GOTTA TAKE IT. CANT GET ARMOUR THE NATURAL ONE IN BZ
YOUR WEIGHT GAIN IS LEVOTHYROXINE. IM TIRED THINNING HAIR MUSCLE ACHES. NOW OSTEO..... GOOD LUCK

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194

I have to share an update. After being a good soldier and enduribg the sudden "coincidental" symptoms that popped up just as I started taking Levothyroxin for THREE months, I finally couldn't take the incredibly debilitating joint pain(especially in my left arm..wrapped in an ace bandage). I switched from the generic levo to synthroid. I am on day three and cannot deny the pain in my arm is anout 20% of what it was, the "bumps" are going away verses festering, the swelling, tingling, burning in my hands and feet are dramatically better. My neck/throat feels better. Some things are still crappy but I again will soldier on to see if it gets even better as levo leaves my body fully and if synthroid continues in positive ways. If not, I will try armor. I have to conclude, I WAS allergic to the generic inert additives. Wish I had gone off earlier but I had to give levo a chance. The extra cost is pitiful being many cannot afford this and levo is toxic for some of us. I can only imagine what armor costs. Anyway, had to share. Here is to hoping this progress continues. Dare I hope to finally lose some of this dreadful weight I have gained even while on the strictest body builders cutting diet? Just happy I can use my left arm now.

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195

If the brand name Synthroid works for you and you decide to stay on it, have your doctor do a pre-authorization to your insurance company so you can get Synthroid for about the same price as the generic or hopefully only slightly higher. My pharmacist friend says that she highly recommends Synthroid over the generic, lots of problems with the generics on this medication. I'm allergic to the one of the binders in the generic myself.

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196

I was wondering why those of us that cannot take the generic wouldn't get some kind of clearance for a more reasonable cost for synthroid. Thanks, j will try.

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197

Got osteoporosis bad. Now they say thlaking thyroid medication has increased the risk. I cant just stop my thyroid meds. Its messy. And stopping Estrogen replacement makes your bones brittle .. its a no win no matter what

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198

Here's a good read on the subject of Osteoporosis and Synthroid for Hypothyroidism. After reading most of the studies through the years it really doesn't look like much of a contributing factor. For example, http:/­/­www.thyroid-info.com/­articles/­osteoporosis.htm. I keep my levels between 1-2 so it looks like I'm fine plus my Dexa scans are good. I started getting them at 40. The problem has always been when you are over medicated or have hyperthyroidism. Most Doctors and Nurse Practitioners check this at least 1-2 times a year if you are stable and your numbers aren't all over the place. Synthroid has done an excellent job of keeping me stable for the last 8 years at only 100mcg, I respond very well to the brand name.

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199

You are lucky that Synthroid works so well for you. Unfortunately many of us are not helped at all by Synthroid; in fact, we dont get better, we get worse and doctors dont believe it; they think its all in our heads. We are the ones who need recognition that we are not crazy and Armour Thyroid.

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200

Levothyroxine doesnt work. I hate it but cant get armour in nz. Gota stick to synroid. Otherwise if i stop ill likly get underactive again. Mite bloody stop anyway. Bern depressd since i took itc12 yrs ago plus 10 kilos. And no energy. Annie

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