Sue Says:
Is There A Representative For All Chronic Pain Patients (Page 3)
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Updated
Christine Says:
Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.
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Re: Barbara (# 20) 
Barbara who do I write to first? The senator of NY the FDA the DEA the president? Any suggestions would b helpful. Sue. As I can't work for now anyway I want to devote what time I have to b heard.
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Sue Says:
Re: Barbara (# 20)
Barbara who do I write to first? The senator of NY the FDA the DEA the president? Any suggestions would b helpful. Sue
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Sandra Says:
Re: HOUSE (# 25)
Yes if I cannot try or afford the cbd oil please. I am near most of Maryland. {edited for privacy}
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HOUSE Says:
Re: Sandra (# 23)
Hello, are you still looking for a Dr? I may know of one in Maryland...
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Sue Says:
Re: Barbara (# 8)
I need politicians names, emails or address who r involved in this awful mess. I am not electronically inclined so if someone could put me in the right direction either DEA/FDA, congressman, manufacturers, etc. I will get my thoughts out and try to somehow get us heard. Appreciate any advice.
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Sandra Says:
Re: Christine (# 2)
I was taking the generic Opana they stopped making the brand as they people found a way to abuse Opana. But the generic was my god send but it was taken away and only give a very small dose of Percocet so again desperate for help. I am in Virginia and I will travel as far as the doctor will accept. If you know a dr please let me know. I will help any of you anyway I can.
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Hop63 Says:
Re: Christine (# 2)
I was on Opana ER for a short time in December 2017. My Doctor insisted that I stop Fentanyl on Dec 26, 2017 and start Opana ER. It did nothing to help; I tried for 2 weeks. I felt worse at the end of the first week than I did in the first few days which was the exact opposite of what my doctor had expected. I even took the DNA test using the cheek swab to try to find the best medication for me. The test cost me $250 because my prescription plan would not cover it. The $250 was the cost the company offered for “the poor”. If it cost more I would not have agreed to the genetic matching. After 2 weeks of pure hell, with the help of my psychiatrist, my pain management doctor gave me a prescription for the patches. Soon after I heard Opana ER was taken off the shelves of the pharmacies and was no longer being produced. I don’t remember all the details but it was found to be dangerous.
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Hop63 Says:
Re: Livingwithcancer (# 5)
I don’t want anyone to die. Programs for the addicts need to re-evaluated to find out why they fail to keep people from slipping back into using. Pain medication that was prescribed to me was “ the answer to all my problems” according to my doctors 10 + years ago. Then the tides shifted and the opioid crisis became a fight against prescription medication. Honestly if a doctor told me all the possible side effects of fentanyl I Never would have started to use it. The truth is it kept me a functioning member of society with a full time job. Before taking these medications away, a plan needs to be put in place to change patients over to something that can manage the pain with less complications. It looks as if they are looking to flip a switch and cut off all opioid prescriptions.
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Barbara Says:
Re: Sue (# 18)
I hope that you can find a physician who will treat your needs. The alphabet agencies are currently taking comments and concerns regarding how the increasingly stringent restrictions on specific perscriptions are affecting chronic pain patients. I believe the deadlines are within the next couple of weeks. Anyone who has been or is in the medical profession, like yourself, adds increased legitimacy as an advocate. It's such a shame that the government is wasting so much time and tax funding to deceive the Country and harm law abiding citizens who are afflicted with chronic pain causing medical problems.
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PAM Says:
Re: Sue (# 18)
I AGREE 100% THEY ARE MAKING THE PEOPLE THAT "REALLY HAVE PAIN PROBLEMS JUST DO WITH OUT OR NOT ENOUGH, IT'S JUST NUT'S!!! I WOULD BET YOU THAT IS ONE OF THEM WERE IN THE AMOUNT OF PAIN, THEY WOULD GET WHAT THEY NEEDED!!!!
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Sue Says:
We are selling our house of 40 yrs on Long Island NY and downsizing to Palm beach county Florida. One of my daughters and 3 of my grandsons and 2 granddaughters live in Wellington. I have to find new doctors.
I am nervous about starting over. Gotta get my medical records etc. Hope they keep prescribing the oxycodone and Oxycontin and hope I can fill them. I have OA all over joints now. Just had 1 knee replacement and need other knee and shoulder done besides lower back. When I get settled I want to lobby for our right to get meds we need to function. I am an occupational therapist and cannot return to my profession but have seen first hand what goes on and how scared doctors hospitals nursing homes are more concerned about addiction than quality of life.
Sue
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HOUSE Says:
Hello, the extremely sad fact is that because of the abuse of the "old" oxcycontin by those who only used it to get high, the newer more "abuse deterrent" oxy is all that is available...
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myst Says:
Re: Anjali (# 15)
The changes started when Obama was in office fact. so Chronic Pain Patients associate their suffering with Obama being in office. I had level 3 neck surgery worse pain after surgery than before and surgeon refused to treat the severe pain several years ago because of changes that us consumers patients were not made aware of.
My family doc called surgeon asked why he was not treating my pain non-treatment hinders healing.Also the hardware put in my neck was a experimental fusion unbeknownst to me it looks like 2 lightening bolts both sides of my neck . Thank God my doctor cared,ER turned me away,Surgeon,nurses,doctors in my doctors practice . 7 days of sleep deprivation from pain from day of surgery I was a mess. Nobody cared because nobody but my GP would go against the surgeon.
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Anjali Says:
Re: Mark (# 3)
Obama had nothing to do w/the FDA guidelines. Check your facts before you spew misinformation..
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Sue Says:
Re: HOUSE (# 9)
What manufacturer do u get your Oxicontin from? So far the Oxicontin I get does nothing to help me?
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Alan Says:
Christine is correct, it works a little, helps keep you level. But as a painkiller it's useless. But it is still very vishesh. Not to mention it's way overpriced thanks to the anti abuse formulations. I understand the hard shell, I don't agree with the total reformulation to stop drug liking. I don't abuse this med. I don't use a needle. There many of us that do not or will not. But because there are those who choose this lifestyle we pay the price in many ways. Now they are poisoning our meds to make us sick, make them ineffective. This was done in the ninetys, same thing. It's a violation of our human rights to prevent being treated so we can live without pain. I never thought I would see the day our government would stoop to this level. It's time to use our legal human rights. Unite. Start by petitioning for our doctor, patient privacy rights. It's the only way to begin to turn this around and the time is now!! Stop doctor, patient, pharmacist, harassment!!
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Sue Says:
Where do I start? How do I lobby to keep government out of this issue and leave it to medical professionals
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Vicki Says:
I’m right there with you! I only get up to do something the three times a month to go to the doctor. This Government has destabilized my health and some well known attorney needs to step up and help chronic pain patients across the US. Why do Govonors, Senators and the House of Representatives get to make decisions about my pain care? Where is their license to practice medicine??
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Hop63 Says:
Re: Verwon (# 1)
Fentanyl is the # 1 drug under attack. Even if you find a doctor to prescribe it for you it won’t be long until you are in the same situation.
I have noticed 2 of my generic prescriptions no longer work as well as they did previously. My insurance won’t allow my doctor to write “ dispense as written” as they did in the past. Also different generics of the same medication have different results. Only thing in common is that each one becomes weaker. Calling FDA won’t help unless a particular batch is found to have been tampered with or formulated incorrectly.
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HOUSE Says:
Re: Verwon (# 1)
Morphine is a total joke and fentanyl is sooo addicting! Ocycontin really helped me when I needed it!
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