Is There A Representative For All Chronic Pain Patients (Page 3)

Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.

REPLY

REPORT

Re: Sue (# 27)

Type into google, who is my representative, and it will tell you all their information, websites, which then has ways to contact them, email, or phone numbers. The best approach is to call the person they have answering the phone, b/c they take notes and then pass them on to your representative or Senator- I've done it here in Arkansas...

REPLY

Was this helpful? 4

Re: sandy (# 36)

I got mine Friday, I am not sure how long it will take. I know it tastes different. YIKES!! But I sucked it up and sucked on cinnamon candy after I take it. I feel different with a better frame of mind. My pain is pretty horrific so we will see. I got the CBD Tincture at Lazarus Naturals. Please pray it works I HAVE NO DOCTOR AT ALL NOW. I have nothing for withdrawals. I am 66 and been on major medication for ten years.

Isn't he obligated to give me medicine if I am discharged by him? Seems he cannot hang me out to dry?

REPLY

Was this helpful? 3

Re: sandy (# 36)

I just got the small bottle of CBD tincture I started it Friday. I feel better mentally for sure. Pain is pretty bad. But a person I talked to one person said it took a little while. My problem is I am not always the lucky one. Try it 7 on your side did an investigation said they had nothing bad to say.
there are no know side effects. I tried it and I take a multitude of medication. Only precaution it says if doctor told you no grapefruit I used Lazarus Naturals in the State of Washington I googled it ask if they have a tasteless one I will be asking. This makes me feel better mentally pray pain relief comes soon.

REPLY

Was this helpful? 2

Re: Mark (# 3)

Drug addicts are sick people too. If Mental Illness stepped in and helped the Petition for a change between, addiction being one completely different category from patients who have Chronic Pain, I believe there would be a faster conclusion. My nephew committed suicide last spring at the age of 33 which seems to be the age for suicide. He was diagnosed for deep depression of many years which is a sickness. Doctors should be able to fill out prescriptions for any patient that is in need for help. By the by, there is no law that stipulates that doctors are not to subscribe narcotics. Any MD with a DEA license can still write a prescription for his patient. The doctors who choose not to are afraid they will be randomly audited by the Medical Licensure Department of their State and they are guilty of being caught for non-compliance on other issues which allows the State Auditors to look into other areas of their practice. In CT the fine for over prescribing is maybe $1,000.00 and maybe placed on probation. Can you imagine? Call your Dept. of Health, Licensing, and ask them what their criteria is for penalties against a physician or just look it up on your State's website.

REPLY

Was this helpful? 6

Re: Vintage Lady (# 40)

Exactly what happened to me. Soma was supposedly the worst, started having a problem filling Norco (joke), Diazepam (Valium) and Soma, even though I was only prescribed 30 Soma a month, one at bedtime. They told me the same thing and were not nice about it, treated me like I was a criminal! Never had to experience this kind of discourtesy in a store, ever!!

REPLY

Was this helpful? 2

Re: Verwon (# 1)

There is another alternative. You can have a pain pump implanted which ur PM Dr can tailor to ur needs. Then there is no need to worry about ever having ur meds reduced or denied. U should inquiry about it on ur next visit to ur Dr. Good Luck

REPLY

Was this helpful? 1

Re: sandy (# 42)

I’m so very sorry for what you are going through. Physicians are not obligated to prescribe medications. However, if you were my patient I would not leave you alone and without medication, if I had to wean you off or switch you to another safer medication for pain control, that’s what I would do. Here’s the thing, MD NP PA’s can prescribe almost all opiate pain medications so long as they have a reason and can show documentation that you have a legitimate need and reason for taking narcotic pain medication on a long term basis and that your doctor has tried and exhausted all other available options. Whenever I keep someone on long-term opiate therapy I always have documents stating why and a plan to continue or not, but no physician should leave their patients with out medications no matter what the situation. I really hope this helps and FYI we are also doing study’s on replacing dangerous high potency narcotic medication ( Dilaudid, Fentanyl, OxyContin) with a just as potent pain medication called Buprenorphine. I will keep everyone updated on our findings.

REPLY

Was this helpful? 1

Re: Barbara (# 8)

Things seem to be getting worse. I have been in pain management for twenty years. The doctor I had been seeing for three years is the worst doctor I have ever been treated by. She has been force tapering me off the meds I have taken for years for my chronic pain. I finally had enough and went back to see my last pain doctor, he agreed to take me back as a patient. I was shocked and scared when he told me that he has had to switch most of his patients over to Suboxone for pain. He has assured me that it will control my pain. He said he has had no choice to do this so he can treat his patients because the DEA and government are shutting down pain doctors.

My other doctor was just going to take me off my meds and let me suffer, my blood pressure has been extremely high because of my pain. I shouldn't have to go on blood pressure meds when the only time my blood pressure is high is when my pain isn't treated properly. I plan on filling a complaint against the other doctor any other doctors, PA's and NPA, that have treated me. I have never in three years of going there have had a physical exam and I have to ask to have my blood pressure taken. She got mad because I told her I was done with the injections she was doing and they were not helping my pain actually it was making it worse.

Sorry so long of a post. One more important thing, nothing is going to change unless we pain patients stand up for our rights to be treated. Check out a Facebook page called Don't Punish pain. There is a rally in almost every state on January 29th, 2019. I believe they are doing another one in July and they will be protesting at the CDC in June. We were all lied to as far as the numbers of deaths caused by this so called opioid epidemic. It's an illegal Fentanyl and heroin problem.

REPLY

Was this helpful? 3

Re: PAM (# 7)

I’m starting to think they know the generic opiates are bad and a faster death sentence

They want us to turn to the street and instantly die off the system

Even drs that want to help us and I have one who has was thrown to see that generics are causing me such serious issues when he justified it because they helped me and I got fit and lost 90lbs

Then came managed Medicaid and it all changed

Meds got worse generics just awful

Stuff is getting real

REPLY

Was this helpful? 3

Re: Painwarrior (# 48)

If you have the money, just find yourself a good fentanyl doc and start getting it, it is a great pain killer - I wouldn't post this if I hadn't been through the ringer myself, I'm on a low income, and I can't afford to buy fentanyl from clinics that have it. But, it's not hard to find, especially if you live in a bigger city.

REPLY

Was this helpful? 0

I literally need help help !! I went and dug all my old bottles and they were all Perdue !!! This is traumatic all the years taking it thinking it was not the one that caused me pain. It’s not normal for Percocet to make you shake way later waking up in the morning and then when take it goes away ! I’m so upset how did the designs pill that shows more pain as s side affect way later and it’s not withdrawl at all of course . Like in 24 hours after taking two you are shaking internally! Yet I don’t have that kind of pain without any pain meds! This is crazy and every pharmacy in Martinsburg WV after managed Medicaid only gave me thst one !

REPLY

Was this helpful? 1

Do you end up having tremors or Crazy sciatic nerve like pain

REPLY

Was this helpful? 3

Re: ENJOY LIFE please (# 4)

If you can even get it prescribed and then filled, that would be great!!!

REPLY

Was this helpful? 0

We need Judicial Watch to help us protect our right to humane medical treatment. This board has fallen off track of the original post Is there anyone to help. Yes I believe there is there is a media onslaught on Opioids because Government wants the public's backing so they can do away with chronic pain treatment wake up people it is working and unless you, you and you do your part, kiss your pain management goodbye. Please flood judicial watch a lawyer group who goes after government overreach and their abuse of power only way we will get help is if the American people flood them about the abuse chronic pain patients suffer and docs also because I cannot share a website you have to google judicial watch contact and actually contact them...

REPLY

Was this helpful? 4

Re: Aguywhocaresaboutothers38 (# 51)

Percocet is an immediate release medication with a half life of 4-6 hours. Depending on how many and what time of day you take your medication.. Let's say you take one pill at 8 am again at 2pm and once more at 8pm then you go to bed at 11pm. The medication leaves your system after 6 hours and if you've taken it daily for years your body becomes physically dependant on the medicine so when you wake in the morning your brain's opioid receptors are empty so to speak. Have you told your Dr of your symptoms? I'm not a Dr but have suffered chronic pain for most of my life and for decades had decent pain control. It certainly sounds like an extended release medicine would eliminate those uncomfortable symptoms. Good luck!

REPLY

Was this helpful? 3

Re: Christine (# 2)


Hi Christine, Fentanyl did not help me either. First of all no relief then I notice my breathing was real shallow. Whether or not it was too much, i don't know but i went back and complained and got on Morphine. A little takes the edge off for me but too much does not help. Of course the thing that helped was the combination of Lorcet and Soma which my doctor will not prescribe for me. They are all paranoid of losing their license.

REPLY

Was this helpful? 2

Re: Livingwithcancer (# 5)


In defense of LWC, I don't think of it as go off and die but it sure makes it hard for legitimate sufferers. I know at least 2 people who died from an OD but they just didn't get the help they needed at the time. Addiction is a disease and many do not know this. And most addicts are in denial and feel they don't need help. Yet some don't deny it but cannot stop because of an underlying reason. And some cannot be helped no matter what they try. They either wind up dead or in jail because they don't want the help and don't want to stop even when intervened. So you can't make them stop. That is where I think LWC is coming from. I also know addicts like that too such as a girlfriend's daughter. It would take divine intervention to change her.

REPLY

Was this helpful? 0

In Cali., chronic pain teams goal, (no opioids) free of all pain meds. After 20yrs. Norco. & 15 high dosage fentanyl patches, it’s taken a year of stepping down, now free of all! I have 5 of 7 days rough & in pain. It’s forced me to accept pain, as a part of life & I can live through it. Others that abuse & sell meds caused my quality of life to be less!

REPLY

Was this helpful? 1

Pain medication behavior varies from state to state. I'm in Connecticut and so far, I have been able to stay with my primary care doctor for my intractable pain post (2) spinal fusions, (cerebrospinal dura tear during surgery) > foot drop, arachnoiditis, scoliosis, and L-2 is still protruding plus "other issues" connected to foot drop. My injury is work related and the claim adjuster is approving my medication due to the malpractice, plus me, NOT wanting to be cut open ever again!
My primary care doctor took over once the neurosurgeon got banned from CVS. Went to WALGREENS and so far, I am still getting everything approved and filled. The pharmacist was a pain in the butt a couple times, but I fixed that by reporting her to corporate. CT. also has to pay for medical marijuana, as long as you qualify and it is connected to your injury. It falls under "compassionate care laws". Florida and other "Red states" are terrible on both of these issues.
Blaming Obama is just stupid. The House & Senate were a Republican majority, during his time in office. Why isn't your orange criminal reversing it, since it seems to be all he does when it comes to anything and everything Obama?
#DontPunishPain actually is getting the CDC to "lighten up" the strict guidelines, now that people are committing suicide, NOT because of OD'ing but because their pain is not being managed. #CPP voices mattered~

REPLY

Was this helpful? 1

Big brother is hurting everyone who is in chronic pain. People who have been taking pain medication for years should not have the rug pulled out from under them. This is a short-sighted and stupid way of dealing with chronic pain suffers.

That's all there is to it.

REPLY

Was this helpful? 3

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight ...

557 REPLIES

Has anyone else been prescribed Belbuca? I'm unable to have any other opiates prescribed to me and now I'm on th...

4 REPLIES

I have been on methadone for chronic pain after back fusion in 2007. Been taking aderall for add for two years, also. Dr...

2 REPLIES

My husband is disabled. has had 3 hip replacement surgeries, moved to southwest michigan last month. husband's dr th...

3 REPLIES

Thanks to all you drug abusers there has been an ongoing war on us legit chronic pain patients. Thanks to all who abuse ...

118 REPLIES

Many people that are being turned away from opioids (and maybe other drugs) are refused based on the requirement that th...

1 REPLY

Is narcotic pain medicine becoming a thing of the past? Why are doctors across America phasing out the practice of presc...

1547 REPLIES

I had signed an old petition "Stop the DEA from interfering with chronic pain patients and their medical professiona...

29 REPLIES

My dr said they were limiting prescribing oxys to just cancer patients, took me off oxy 30s and now im on 4mg hydromorph...

48 REPLIES

Was taking 6-8 Lortab's a day with Fetanyl patch every 72 hours. Doctors need to know if my spine pain is still pres...

5 REPLIES