Hope For Getting Deseril/sansert Back?

I have been taking Sansert, later called Deseril in the U.K., and had almost none of the chronic daily migraines I had been suffering from for several years. Finally, I had a life without pain again, and I felt reborn. Like the rest of you, I am desperate to have this medication back on the market. Life with a constant migraine and vomiting is no life at all. I have called several compounders in the U.S., and none of them are willing to try making it. Others say they will make it, but they balk at the cost of it. Others say the raw materials are no longer available. Too many stories, and not enough answers. Are any of you taking this medication from a U.S. compounding pharmacy? Does it work for you? If so, are you willing to share the pharmacy name here? If no one has had any success, does anyone have any ideas about what we can do as a group to pressure the manufacturer, whoever it is, to begin making this medication again?

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My wife was taking compounded version of Sansert from a local pharmacy. However, late last year they told her they were not able to get the main ingredient anywhere in the US. I was checking the internet again to see if Sansert was available now but have had no luck. Sansert helped her. Since she has stopped taking it her the frequency, intensity and duration have all increased dramatically. Sansert was pulled because of the risk of fibrosis and heart valve problems....but, other info I have read suggested there were a very small number of cases of these problems.

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