Hepatitis Forums (Page 5)

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Can you take lactaid with Harvoni if you have lactose intolerance issues? I'm due to start Harvoni treatment next week, and no one at the liver clinic can tell me if it's ok to use lactaid to minimize IBD issues from lactose. ## I FINALLY found out - not from the Hep C clinic Drs. overseeing the treatment of course, nor from Gilead because when I called to ask they refused to tell ME - the one who's paying for their product. They told me to have a pharmacist call them to get the answer for me. Go figure. So for anyone else who might need to know: YES you can take lactaid/lactase with Harvoni if you have lactose sensitivity as side effect from another health problem. YES you can also take gravol for the nausea from Harvoni YES you can take any pain reliever for headaches etc....

1 REPLY Updated in Harvoni

Started 3 weeks ago. First 3 days I got tired... but was taking it at 7pm so it worked out great. No side effects at all now! Very happy and looking forward to my first doctor visit to see how much the viral load has dropped. Stay WELL hydrated...I drink at least 8 bottles of water each day and many say it helps. Best of luck to everyone! ## Hello Pop pop! How are you doing? Has there been any change? As to your fluid intake, please be careful, there is such a thing as too much! While many people think you need to drink 8 glasses of water a day, that should actually be your overall fluid intake, not just water, so it should include juices, coffee, sodas and etc....including the liquid in the foods you eat. I just wanted to add this as precautionary note, since taking in too much fluid h...

1 REPLY Updated in Harvoni

My step dad completed treatment with Harvoni last year and was given the all clear on his Hep C, but 2 days later was diagnosed with MDS. He was going through chemo, hydration and blood transfusions, and recently underwent a bone marrow transplant. He wasn't doing well (fluid build up/adema), and on the 25th went to the ICU, and shortly after, into cardiac arrest. He's now on a ventilator, propofol, fentanyl, and on continuous dialysis. He was gone for 8 minutes. Today, they will be doing an MRI and a lumbar puncture. They want to try to wean him off the meds and take the vent out and see how he does, as when they do the "sedation vacation" in the mornings, he's awake and agitated but not really coherent. The only thing that makes me have hope, is that he is at the R...

1 REPLY Updated in Harvoni

I have been taking sovaldi and ribavirin for 4 moths now and every thing is going well . I have to complete two more months but think i have to change the time fro taking the sovaldi bill from 2pm to at least 8 pm as i wll be fasting in Ramadan .Is it safe to do that or i should be stick to the reguar time . please help me with your advice ## Hello, Ahmed! How are you? A few hours shouldn't make a difference, unless your doctor feels otherwise. The FDA lists the typical side effects of these medications as possibly including nausea, headache, dizziness and stomach pain. Is there anything else I can help with? ## I have been taking sovaldi and ribavirin for 2 moths now and every thing is going well . I have to complete 4 more months but think i have to change the time fro taking the ...

2 REPLIES Updated in Sovaldi

Harvoni made me feel like I had the Flu.some body aches, headaches, and insomnia. ..took vitamin c 1000mg. Sleeptabs only with Doxylamine succinate 25mg and Melatonin 5mg for the sleeplessness.rest..exercised. I feel great.?? ## How are your results? Has there been any improvement in your condition? Many people have been having good results with this medication and are showing no viral load after short periods of time. Other side effects, as listed by the FDA, may include diarrhea, dizziness and nausea.

1 REPLY Updated in Harvoni

I took Harvoni for 1 month, yes I said only 4 weeks and my Hepatitis C is Undetectable! I had absolutely no side affects. But of course everyone will react different I'm sure. I just wanted to give someone hope. Even if it's just one person. ## Awesome! I'm very glad that this medication worked so well for you. From the other posts I've read, it seems that many people are having good results with it, though some have experience various side effects, which the FDA lists as possibly including nausea, dizziness, headache and diarrhea. How much longer will you be taking it?

1 REPLY Updated in Harvoni

I am on day two and take it in the morning but I feel beat up and tired I feel better after 6 hours would it be better to take harvani at bed time? ## Hello, Steve! How are you? There is no specific time of day that it must be taken, so you can switch it, if that works better for you, as long as your doctor approves. The FDA lists its typical side effects as possibly including nausea, dizziness, headache and diarrhea. Is there anything else I can help with?

1 REPLY Updated

My name is tariq and I am 45 years old. I had started my treatment for hepatitis c with genotype 1a 6 months ago with sovaldi + ribavirin. I get very good results after 4 weeks of taking sovaldi tablets. My pcr report was negative but now after completion of my treatment immediately i have done my pcr reports but there is a huge amount of viral load about 1 Nd half lac. Plz guide me. I am so worried about it. Why wasn't it negative....? Why did it become worse....? Plz help me... I will have completed my pcr next week after completion of sovaldi treatment.

Updated in Sovaldi

Hola soy una paciente que tengo hepatitis C y también me quitaron la vesícula biliar hace 30 años fui a mi doctora de cabecera y por tener malas digestiones me indico la levosulpirida una vez al día antes del almuerzo lo cierto es que no me he atrevido a tomarme ni la primera pastilla ya que me puse a leer y a indagar sobre este medicamento y resulta ser también un antipsicótico que me dé sueño u otras reacciones ## Hola, Ulla ! ¿Cómo estás? Sí, es un antipsicótico , pero también es un procinético que se utiliza para tratar el síndrome del intestino irritable , dispepsia y otros problemas intestinales. La FDA enumera sus efectos secundarios típicos como posiblemente incluyendo amenorrea , cambios en la ...

1 REPLY Updated

Symptoms new treatments and how effective are these treatments and is there a cure. How many types of hepatitis are there ## Hello, Amentha! How are you? I think the most successful new meducation is Harvoni, which many people reporting a full 'cure' of Hep C, though a few have reported relapsing, after completing their course of treatment. The FDA lists its typical side effects as possibly including nausea, dizziness, headache, stomach pain and diarrhea. There are 2 Hepatitis viruses, as listed by the NIH, A; B and C. Not all are 'curable', so to speak and no doctor can promise an actual cure. Can anyone that's been on this treatment chime in? ## Oh and I forgot about the other two, D and E, though they are very rare.

2 REPLIES Updated in Harvoni

I have been on harvoni for two weeks. I still have a sharp pain in my right side under my rib. Why would I still have this pain? ## Hello, Kolleen! How are you? Well, it has only been two weeks, the medication does need time to work. It's also not a pain reliever, you may need to talk to your doctor about something you can take to alleviate that. The FDA classifies Harvoni as an antiviral and its typical side effects may possibly include nausea, dizziness, headache, diarrhea, insomnia and weakness. The good news, however, is that this medication has worked successfully for many people. Is there anything else I can help with? ## It affects the gallbladder negatively ## bad rash on LH forearm since using horvoni also a friend on this med doctor told him this would not clear up a 30 ye...

4 REPLIES Updated in Harvoni

Hi, I'm on 8 weeks but worried I have less chance of a cure (have read Ion 3 study). Had viral load of about 250,000 prior to treatment, am treatment naive and fibroscan of 6.1 - and supposedly F0. But I have had HCV (from blood transfusion) for almost 35 years! Should I be taking 12 weeks? I'm in week 6 of treatment. Sides include dizziness (almost passing out a couple of times). Worried about not taking treatment long enough to cure me but would have to borrow money for extra 4 weeks. Plus, what are long term sides of Harvoni - who can tell. Thanks so much! ## Hello, Elizabeth! How are you? Many people do have great success rates being on it for 8 weeks. However, if you're concerned, you should speak to your prescriber about it, as they may also want to up to it to 12 week...

1 REPLY Updated in Harvoni

My Healthcare Provider is aware of myself taking Harvoni, however he gave me the Testosterone inj. on a monthly plan anyways. I am assuming that knowing my Heathcare Provider who is so very thorough would not have told me to use the two. I take Harvoni by tablet once daily and the Testosterone once a month by inj. ## Hello, Bartholomew! How are you? I didn't find any problems or interactions listed between the two, but it's always best to double check such information to be sure. The FDA lists the typical side effects of Harvoni as possibly including nausea, dizziness, headache, stomach pain and joint pain. How much longer will you be taking it? ## Hi There Bartholomew: I didn't know that you could get Harvoni by pill form. I had been giving my husband the inj. however the D...

2 REPLIES Updated in Harvoni

Since 2012 i was taking gardinal 60 mg HS,now doctor changed my medicine from gardinal to levipil 250 mg because i want to take another medicine of hepatitis -c which have sofosbuvir as chemical compound, so can i take gardinal and levipal both till the doctor stop gardinal and continued the levipil for the whole life?

Updated in Sofosbuvir

I have been hearing more and more people relapsing after Harvoni treatments. I'm going into my 4th week and getting worried. I wonder if it's even worth it? ## Hello, Teresa! How are you? Many have had very good results with Harvoni and, if you don't try it, you'll never know. The FDA lists its typical side effects as possibly including nausea, dizziness, headache, muscle aches and diarrhea. This medication also has a much lower rate of failed treatment and relapses than the others that are available. Can anyone that's been on it chime in with their experiences? ## I'm doing ok, going into the sixth week of treatment with Harvoni. My 4 week blood work came back results detected. Time will tell. Side effects are not that bad.

2 REPLIES Updated in Harvoni

I take Harvoni and have a staph infection on my neck, what can I take that won't interfere with my hep c treatment? ## A staph infection is very serious and requires a prescription for antibiotics. the area must be cleaned frequently, cover only if draining. you may use a small amount of antibiotic ointment. The area must be clean and dry.Occasionally they heal on their own with good care, but most frequently need the antibiotics. See your doc. ## Hi Teresa, Apart from what Karen had mentioned (which is good advice by the way), I'd encourage you to ask your doctor about using tea tree oil (melaleuca) as well as black seed oil (nigella sativa) for Staphylococcus aureus if you haven't already sought out a form of treatment. I'm not aware of any drug interactions, but both ...

4 REPLIES Updated in Harvoni

been on harvoni for 7 weeks side effects not to bad, got to keep a full stomach n that usually takes care of the nausea and all of my joints are feeling a lot better, feel like the tin man in wizard of oz when the girl oiled the tin mans joints, moving around more easily. seem to cope with problems a little better n have more energy, hope its not short lived ## Hello, Joe! How are you doing? I'm glad this medication is working well for you. Many people have reported good results with it and positive outcomes, so lets hope the same holds true for you. The FDA lists other possible side effects as including nausea, dizziness and headache. Is there anything else I can help with? ## i am on my 9th wk on harvoni n i was only 5wks on my last reply n now im on the 9th wk so i was wondering ...

2 REPLIES Updated in Harvoni

Finished 6 mos. Tx in June. Severe mood swings, not depression more of an impatient. Frustrated...no energy and strange feeling areas ... Like overactive nerve endings.....,.Diah.Was horrible! Lost 10# in 3 days.! ????? ## Hello, Georgie! How are you? Yes, many people have been reporting some minor withdrawal effects, once they finish their course of treatment with these medications. As listed by the FDA, you may also experience nausea, dizziness and constipation. If they don't go away soon, they you should consult your doctor. Is there anything else I can help with? ## I just today finished 12 weeks - high dosage sovaldi/ribovarin treatment - miserable 3 months- anger, anxiety, crying for no reason-itching, skin feels like I'm on fire, ears ringing,lower back pain- FATIGUE !! N...

3 REPLIES Updated in Sovaldi

66 years old, geno 2, 24 mo treatment, just finished treatment jan.5, 2015, now feb 8, still have headaches, itching, and can't get to sleep at night but it is getting better the fatigue is not that bad and i am in a better mood. after 3 wks of treatment hep c non detectable, still non detectable. doc says we will know after 3 mos. just posting to let people know what they might expect. went through 2 interferon treatments that did not work third time the charm. ## What does it mean undetectable? is it undetectable in PCR test or HCV antibodies test negative or positive? If HCV (HCV antibodies) are negative please let me know........i need it, i really need it. ## @amer (post #1), Just to reiterate, I think what denny (the original poster), may have meant - in terms of it being non-...

4 REPLIES Updated in Sovaldi

Have 2b, started treatment.. sovaldi/ribivirin May 5 for 24 weeks. Have had fatigue, mood stuff and just recently dizziness occassionally, then got dizzy and passed out. Eating well, taking multivitamin once a day. Went to hospital when I passed out, they did a BUNCH of evaluations but found no cause. Could it be the hepc meds? SCARY to be passing out. Anyone else had this happen? ## No, passing out is not a normal side effect. Have you consulted the prescribing doctor? These might not be the right medications for you to take, or there may be something else that caused you to pass out, but it's very important to find out. The hospital only checks for so many possibilities, they can't possibly check for them all. Typical side effects, as listed by the FDA, may possibly include na...

2 REPLIES Updated in Sovaldi
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