Help Others In Getting Their Pain Medications Go To Care2petitionsite And Sign Demand That Chronic Suffers Get Medication Now (Page 11)
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Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petition to get action and be a part in changing the DEA'a plan that is surely not working. Give us back our lives, Let the junkies overdose is they so choose to. Go to "Care2petitionsite" now sign the petition on "demand that chronic pain sufferers get their medication now, by valerie. I thank you for your support. Feel free to share it because the more signatures that we get the sooner we can make this a reality.

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Re: Mare (# 43)

I copied your message to keep accidentally posted in my message, so very sorry...

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I am in Virginia. Can anybody give me the name of a doctor please?

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I support every chronically ill person in thriving with their appropriate medications but I don't support your ignorant stance on stating "allow junkies to continue to kill themselves as they choose". I feel that you believe because you take legal prescriptions that you are superior to an individual that for one reason or another has gone to seek out illegal or illicit drugs! WE are all addicted one way or another. Prescription meds are considered to be synthetic opiates to many. Do you realize that so many of the very people you are standing up for by circulating this petition for have already or very likely may turn to buying pills illegally because they can't get them thru a Dr. and within a matter of time will or can no longer afford the prices for pain meds will turn to illicit drugs? Do you realize 75% of so called junkies started out on prescription meds? And only turned to illicit drugs because they got cut off by their Dr? So please don't be so quick to judge because one day it could be a friend of yours that because of their chronic pain and left with no other option do the same as those you condemn! THANK God I haven't had to go this route but I NEVER say NEVER because I do know some that have and some that have died. P.S. I WILL sign the petition, Listen to us. I am a prisoner in my house due to taking my medications.

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Where is petition regarding helping patients with Chronic Pain?

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Re: Deb (# 34)

I also live in Massachusetts. There has been only 1 actual response to my emails, phone calls from the AG office, Governor, Lt. Governor and others I've tried. At least this was a response from a very loosely defined, "person" in Sen. Warren office. Quote, get a lawyer and sue your doctor's, end quote. Talk about "lip service". I'd sit myself down on the steps in front of the State house but for these two very important reasons.

#1: first and foremost, somebody finding out where I lived and coming to steal my meds as well as the risk of harm coming to my family

#2: any one of my current or former medical professionals seeing/hearing me

Then losing any of the few of them that are actually trying to help me. Could we rally at the State House masked and anonymously represent all of us in this under represented area of "the Chronic Pain Epidemic". That is if there are enough people who are mobile enough to even get off their bed/couch/chair to get there? It's always the opioid crisis. What gets done for us suffering physically & mentally from our local government? How about the Honorable Charlie Baker? The abusers of prescription meds are better treated with our tax paying dollars than those of us paying for our own insurance. Narcan is free for them. Emergency responders risking their own health is also free to them. Pity is abundant for them. Last year there was one young woman on one of our local stations at some type of hearing with a glass jar filled to the brim with her hospital bracelets that she had saved to prove her point. Haven't seen/heard anything from our Commonwealth as to what she and those of us in the same mess as her can do about it.

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Re: Liberty (# 3)

At the rate they are going, we will see more pain patients going to the streets for relief.

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Re: sandy (# 41)

I feel for you myself being a patient and suffering after chemo, treatments from nerve damage I can not image going through what you must have to.

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Hi,

I am in Virginia near Luray. I need to find a pain management doctor as mine retired and it is really bad. I can only find spine clinics, and the shots do not work. I have so many issues. I am seeing a doctor who makes us come once a week and refuses to give a decent prescription. He is open 7 days a week and makes people come all hours of the night and even at 6 am. He is not helping many of us at all. I know this is long but I am desperate for a real doctor. I want to sign the petition and share it. Has it been shared on social media? It says care2petition but at what? Is it .org or .com? I cannot narrow it down. {edited for privacy}. I thank all of you for taking time to read my post. I take Percocet and Oxymorphone. I am in so much pain. I cannot do anything at all.

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Re: Mark (# 39)

Thank you for all the info. I could see where gov would see it as an easy way to get rid of pills. I do not think it is a 1 size fits all deal.not everyone would be able to do that and I am sure there are complications with it also. There are some people if it can or could go wrong it does. With a pain pump I am sure that just like taking pills there will be Chronic pain patients who need more than the average because they become tolerant and need higher doses so it would continue to work. Me personally if it is the only way to get any pain management I would do it.

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Re: myst (# 35)

It's not so much the expense of putting in the pump. That's actually cheap as compared to filling it and finding someone who will fill it. There's actually quite a few doctors who will put an infusion pump in you, but no one wants to fill them because they lose a lot of money filling them. I remember when they first came out 2 decades ago. Doctors jumped on them like it was the newest cash cow in the field of medicine! The FDA, FBI & DEA were all happy because they thought this will take all the pills out of patients hands because anyone needing that kind of medication will have to get a pump! Well needless to say it was a bust... The cost to fill the pumps was enormous! Insurance companies didn't want to bare the cost and a majority of pump patients within 5 years were back on pills too... Spinal cord stimulation is the only option that has lasted the test of time and it's one of the treatments the government now wants patients to have before long term opiate therapy is considered along with surgery, numerous Injections and nerve abalations. Even though there's a percentage of people who don't respond well to spinal cord stimulation. That's a big out lay of money in a copay if it doesn't help! Just more government playing doctor and they're very aggressive doctors these days... Next the government will probably suggest a frontal lobotomy if you can't stand the pain without narcotics! Although yes I'm joking, but in a few years if they don't change their Nazi stance on pain medications. Who knows?...

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I have had my hips replaced twice and I have degeratave arthritis all over my body I have been on two pain meds for 13yrs and just recently in February 2018 I was told by my pain Dr I had to go down to the equivalence of 200 mg s aday of morphine in 3 months I have been reduced more than have of what I been on for the last 10 year's it's hell and I am not doing good at all I need to find another Dr and it's not easy.

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where do I sign up for CT? I need pain meds for Chronic pain. I was in a Pain Management Group for years. But he was in the newspaper for prescribing the highest amount of prescriptions. His reply was "because these people are my patients of all categories of pain management. Well, I was discharged because he did not like the other Pain Clinic I went to for an appeal according to his contract. I did not know that he was asked to leave. So the proof from a blood test showing no Methadone given to him the same day meant nothing to him and he violated his end of the contract, and I reported him to State of CT Licensing, and the Dept. of Investigations is sending me an official auditor.

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I’m not sure where this message should post under but I am approaching the 1 year mark post op on my Spinal Fusion. Well, so now I am released to Pain Management and have an appt this week. She mentioned injections and I had way too many prior to my surgery so I do not want any more. I have, my idea, to titrate down to Tramadol from Hydrocodone. No more scripts to pickup and take to the pharmacy AND WAIT FOR HOURS!! She called it in and was ready for pick up a few hrs later. The pills are a lot smaller than they were prior to my surgery. Wondering what they removed from the medication. Anyway, I was wondering what else does Pain Management do?? I believe my PCP would prescribe my Tramadol. I will go for my first visit. Any advice to me about what to expect about pain management, the ARNP I am going to see and what they do? It was my choice to step down in medication and am feeling the withdrawal of the medication step down. So any advice for me before I go?

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Re: matt (# 30)

I would be surprised if Medicare approves a pain pump. Aren't they very expensive?

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I live in Massachusetts so I'm not sure where or how this will help you but I will sign your petition. I am on pain management. The problem I am having right now is affording my medication. Last year going through my mom's dying of cancer and my daughter's dying, I was late with payments on my health insurance so I was canceled by my state insurance. I purchased another plan but I cannot afford my medicine most of the time. Yesterday I paid $100 for a month of my pain medicine but had to leave other scripts unfilled, most of the time I have to go without. I am on disability, due to side effects from chemotherapy. I worked my most my adult life mostly two jobs supporting two children on a single parent salary without government assistance. I applied for extra help for my medication. I had that help until Trump and was told that I make too much money on disability, thank you mr. President. I did qualify last year but this year I do not and my medications were over $10,000 last year and they will be the same this year. I am a cancer patient and my cancer is not curable, it is only treatable so this will be a lifetime struggle. But at least I am getting a prescription.

My brother who has followed in the family footsteps with a lot of the same chronic pain we had a lot of the deteriorating disc diseases, he has had several operations on his neck, back, shoulders. He has also had cancer and was on pain medicine but unfortunately he had a bagel with poppy seeds and a PCP dr. was prescribing for my brother, whom we've both seen for 5 years. He got back a U/A and said that he had morphine in his system. It's very clear on my brother's medical records that he is allergic to morphine which my brother has no way of even getting nor has wanted. Usually the Dr's office has you leave the U/A in a cubbie in an unlocked unattended bathroom, although my brother did not put two and two together with the poppy seed Bagel until a couple weeks later when he was going crazy wondering how that drug had gotten into his system. He was thinking of everything. When do we get the right or how do we get the right to fight back if our diagnostics come back positive for a drug that we know we have not taken such as his did?

The doctors have gotten such a strict guideline now protecting themselves, they must almost turn that back on the care & faith of the patient, it seems. In the meantime my brother is suffering with no pain relief and the amount of people in my pain clinic is unbelievable. My doctor is not accepting new patients until the month January 2019. It is only March 2018 and what will be on my brother's record when he goes to see a new doctor? Although we are in our late 50s he is my little brother and I feel like I need to help him, protect him but what do we do and how do we do this? I know you probably don't have the answers but it's scary to think that potentially something that I eat could cause me the right to get pain medication.

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Take a copy of this law with you to your next doctor appointment:

U.S. Code › Title 42 › Chapter 7 › Subchapter XVIII › 42 U.S. Code 1395 – Prohibition against any Federal interference

Nothing in this subchapter shall be construed to authorize any Federal officer or employee to exercise any supervision or control over the practice of medicine or the manner in which medical services are provided, or over the selection, tenure, or compensation of any officer or employee of any institution, agency, or person providing health services; or to exercise any supervision or control over the administration or operation of any such institution, agency, or person.

(Aug. 14, 1935, ch. 531, title XVIII, 1801, as added Pub. L. 89–97, title I, 102(a), July 30, 1965, 79 Stat. 291.)

Congress DEA, CDC, and FDA are breaking the law Period.

I also sent copies of it to my Reps and I am not asking for care, I demand the proper care or cure me... 2 options. If you can't cure me do not waste Taxpayer money on unproven treatments that cause more harm than good. Read the pain blogs and spine blogs. Patients attest to the FACT that shots in the neck and spine cause more harm than good. I had 2 shots done in my neck; second shot nicked a nerve. I was already on my death bed from the pain so didn't notice how the nicked nerve would feel. Then after surgery I awoke to pain. I begged the RN to kill me because the pain was out of control and nothing helped. Well, I have long-term damage from the shot and 12 years of doctors not believing my pain was real. Neuro after MRI's called me at 6pm to say he was so sorry. I told him I do not lie about pain, I have turned down pain meds when offered when I did not need them and when I do need them and am suffering and blood pressure is close to stroke, I was made to suffer.

I do believe a day of reckoning is coming down on our Gov for their inhumane torture and treatment of their weakest citizens. The Chronically disabled by pain. Denying you proper pain management is illegal and inhumane. Please, if you remain quiet you will never be heard. If the pain is too much, have a family member, neighbor or friend type up your story.

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Do a search for opioids on Care2petitions. There are many petitions to sign. 1 petition is 1 too many. Another website that keeps patients up to date is Countable.com. It is the newly written and passed bills that you as a voter can go and vote. It gets passed directly on to your REPS. Comment on why you vote the way you do. They work for US, not the other way around. Type in opioids in the search and there are many... every bill they pass for the opioid crisis they are taking away #UnitedNPain patients meds. Also keep up on pain blogs, they are so spread out that it is hard to organize... National Pain Report is very informative! There are doctors and patients fighting for our rights. I tweet Trump about our plight, he talks terrorism and I post about pain patients and the terrorism being done to them here in the USA by Gov., dumb docs and media, pharmacies, nurses the list goes on. Trump complains about fake media stories. I tweet to him the fake stats and media reporting opioid crisis people are being misled by. My mom is one and she thinks it's the mishandling of scripts/overdoses. I told her it is illegal drugs causing overdoses. I have written letters to Doctor OZ, the doctors tv shows, mty Reps. Do you think I have been written back too? No. But I put them out there. The messages need to be spread on social media. Hang in there.

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Re: matt (# 30)

read your paper work tzansadine and gabapentin are not to be taken together ---- the pain pump has been suggested but what happens when medicare decides noot to cover the cost in the future (kinda scary aand i am twice as old as you are maybe i am just paranoid) i hope they get you to a bearable pain level ------ be well and may much good come to you and yours

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I have pain from having a fusion on T3-L3: Thoracolumbar Scheuermann's Kyphosis and just recently an L5 / S1 fusion. Kept me on Dilaudid for 3 months at 4mgs every 2 hours. No tapering off. Now they are saying that I need a pain pump. So they can put Dilaudid right on the nerve. Hopefully that will work, then I can get on methadone. I was going into the hospital so much they thought I was homeless. Weird how they love upping my gabapentin dose 800mg qid and tizanidine 6mg... My psychiatrist prescribed me Valium 10mg tid, trazodone 150mg with 20mg of Ambien at night. He knows I'm in legitimate pain & epidurals don't help. I have nerve damage from over-correction. I've also been taking oxycontin since I was 14 & I'm 32 now. They sent me to a radiologist for the pain pump. On SSI SSDI. With medi-medi.

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Re: Debi (# 25)

Did they give you any meds, or do you need to go back for next appointment? If they don't help you, make appointments with all the PM places you can find. Go to the appointments, and cancell the others if you find one you like before the last appointment you made. This will save time in between doctors.

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