Harvoni Side Effects (Page 36) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Re: Becca (# 82)

i started taking harvoni 3 wks later hospitalized w septis 5 days, never ascertained the cause everyone said it couldnt be the harvoni-i think it was-no other logical conclusion

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I need to find medical consultant who will work with my case

I am not asking for members to help me find a particular doctor, rather I am asking for members to help me locate medical consultants that in turn will help me find the right doctor for my son.

1. Age 42, male, height- 55, weight-143,3 lbs., non-smoker, living in Texas.

2. As far as symptoms, they are due to medical treatment that was for childhood Hepatitis C, as in all symptoms began during treatment and now remain (excessive exhaustion, severe brain fog, constant lightheadedness, memory issues, photophobia), although Hepatitis C is no more after treatment.

3. Treatment began in 2016. He was treated for 3 months with Harvoni.

We have seen a few doctors for the issue, they have ruled out autoimmune, and MRI showed to be normal (as per doctors), and after they rule certain things out they simply let us go, that is why we are asking for a Professional Consultants who can advise which specialized doctors are because doctors just dropped the case, so Professional Consultants who will take the case and will lead the case with the goal of actually helping us take the case to a certain completion.

THE DIAGNOSIS OF MY SON HAS NOT BEEN ESTABLISHED SINCE 2016!!!

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Does anyone else have puffy to tingling feet after taking Harvoni or Epclusa?

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You guys are lucky to be able to afford the $1000 per pill cure for Hep C. I think I would just deal with some back/leg pain. Sorry, but it kills me to know that I will probably die from this disease because I am not wealthy.

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I should have said my previous post was for kkh. Instead of complaining about not being rich enough to get the drug, I was suggesting you get it for yourself. Ask questions, make phone calls! This medication is available to the poor and the rich. If you really want it you can get it. I am absolutely not rich but it's being made available to me. I'm not even sure, after reading these posts, whether I'm gonna take it or not. Good luck and a change of attitude may make you feel a lot better

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I am also dealing with HIV and have applied some of what I have learned over the years in symptom management with HIV beginning with an exercise regimen and pre-preparation.

I have applied these techniques to withdrawals from Harvoni and began these preparations about a month before I actually stopped taking the Harvoni and also incorporated some pain management techniques derived from The University of Washington Seattle and U.W. Harborview Burn Center.

Several years ago, studies were done at the University of Washington Seattle and U.W. Harborview Burn Center concerning pain management for burn pain.

Part of what they discovered is that the more a person focuses on the pain, symptoms or ailments, the more neuropathways actually open toward these conditions and these conditions actually worsened - another form of self conditioning and self patterning.

Among the many diverse techniques that were discovered was the usage of various types of software programs which require strong concentration and focus. They created a specific type of Virtual Reality(VR) software(SnowWorld) designed for burn patients developed by Hoffman & Patterson at the Univ., of Washington Seattle and Harborview Burn Center.

hitl.washington.edu/projects/vrpain

As the test subjects began using the software, neuropathways would open toward the VR software objectives and close toward the pain thus resulting in reduced levels of pain.

These same techniques that were discovered can be utilized through many forms of available software which require high levels of concentration and focus including VR PC games, on-line education, mathematics etc. just about any software that requires a moment by moment interaction of thought processes.

Use caution with VR games and seek those that are of a positive nature. I utilize both single player games and on-line, multi player games which provide an additional benefit of a social atmosphere with other gamers who are also on-line playing the same game.

Generally, these games involve joining a group of people to accomplish game objectives. The social benefits greatly add to distracting myself from symptoms and side effects from medications.

I am using the VR technique in conjunction with an exercise program and keep myself focused with these activities and away from the side effects.

When utilizing the various forms of software that I use becomes to much, I will exercise, including long walks or house work, chores, etc. and make every effort to avoid thinking about symptoms or withdrawals. I refuse to acknowledge these symptoms in every way possible that I can find but at the same time maintain my awareness for legitimate medial concerns and deal with these concerns as they may arise.

It has been almost 30 years now with the HIV and to this day I cannot name the medications that I am currently on for these reasons.

My attitude is that these illnesses are subject to me and how I will or will not allow them to affect me. They live with me on my terms.

I also make every attempt to avoid thinking about the side effects and rather focus on the positive effects of my recovery and also actively seek to find more positive benefits of my recovery and additional activities.

So, what can be accomplished with these regimens on a psychological and physiological level is the re-patterning and re-conditioning of our minds and bodies to focus on recovery and positive thought rather than focusing on debilitating symptoms or the effects of withdrawals.

As for detoxifying, one of the best methods for detoxifying is water. Avoid putting to much strain on your recovering physiology which includes most if not all of the systems of the human body.

Remember, our after-care begins with a recovering liver and then depending upon just how much damage was done to the liver. Be careful to avoid adding to many supplements or complex food products that will over over exert the liver.

Above all allow yourself to focus an anything and everything positive regarding recovery and our second chance.

Dream again, aspire and know that anything is possible with a little effort.

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good for u, may i ask what you do? and do u have any side effects after taking these meds/ tks jbw

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thank you, i hope that i doing the right thing, i will pray for you !and you loved ones, i really what to stop this med! idk have same systems, as everyone else, but i cant sleep never could from a child,thanks for your time

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@Post #584,

Why do u say u don't want to die? Sometimes the side effects are painful.

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I would advise you to call your doctor or whomever prescribed your Harvoni.

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Tony, you are experiencing some common Harvoni side effects that they don't like to admit to. Unfortunately there are many more. There are open support groups around.

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Have you had testing done for Fungul Infection? or Candida overload?

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Methocobalamin?? I think the spellings off. You can read up on it. You want a high % of this Vit B for neauropothy. Vit B depletion is rampid when you have infection. There are a few B vitamins. I took this for a few months and mine subsided.
I had ALL tests including hormones checked as none of us after having this infection are ok really.

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Re: David (# 1)

I have nuropathy in both legs, feet and hands. I garden for a hobby. My legs tingle, go numb and my feet feel like I'm walking on lava hot gravel. One day I was inn the garden and didn't relize I was standing on a red ant mound. That's how much my legs hurt. For months I'd complained about my vacume cleaner not working. It was working fine it was my nuropathy. I thought there was sand still in the carpet. I was going crazy cleaning the carpet all the time. I wish there was a cure for just the nuropathy. They have drugs for the pain but I'm not taking a general purpose drug ie: anti-depressants for leg pain and I'll be damned I'll not take a narcotic for it eitger... oh well im just stuck.

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the person to ask is your doctor. I would be hesitant to be on all of that stuff while treating. That is just me. I think you want to fight a good fight if you going to treat. Drinking wine on the weekends isn't cool either. That is pouring gasoline on a fire in your liver. I treated several years past menopause and did it in 8 weeks and am an F2 also. Your taking an awful lot of alternative things and I would expect a doctor to decide if that is cool during your treatment. It's only 8 or 12 weeks stopping it. Then start again when your done.

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Thanks guys for sharing. I guess I'm going to keep taking this med, I don't want to die. Praying for everyone. God help us all.

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TONY: Lucky you. I would be glad to deal with some back pain in order to be able to cure my Hep C. Unfortunately I do not have $90,000 in order to save my life. So consider yourself lucky. PEACE.

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