Harvoni Side Effects (Page 6) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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I tolerated Harvoni pretty well for 12 weeks. My major complain is foot pain that travels up to my ankles and calves, along with a dull feeling like a numbness in my lower legs. I tested negative for RA. I'm following up on it.
Other than that I feel pretty good. I would like to know if anyone else has the same problem with foot pain.

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My doctor validates all my issues and is very interested in recording them. She referred me to a Rheumatologist for the joint pain. She told me other patients on Harvoni complained of similar symptoms.

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Yes I've had joint pain as well as nerve pain in my feet. I finished my 8 week program 3 weeks ago and the shortness of breath I had has subsided pretty much. I hope the pain goes away as well. My Dr doesn't really seem to care about these issues which ticks me off. I would like to know how much they get paid for each patient they treat. And if there is a kick back if sorts from Gilead.

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I have told my GI doctor, my internist and Gilead about the problems I've been experiencing. Gilead told me no one else has reported any of these effects. My GI says I should be fine as my labs look good. My internist is concerned but says she can't find any info about Harvoni causing such problems. She has referred me to other doctors. I will keep you updated!

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I should have aded in my previous post that I also am having back pain along with the foot and leg nerve pain. Dr seems to blow it off.

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Mari, Can you please provide the name of your doc. I have been searching for an attorney and no one will take my or anyone else's case unless a doctor state the problem is from the drug. I think we all know that our problems are the result of Harvoni. For everyone, I have reports from the FDA that show that MANY of the problems we are experiencing have indeed been reported. Gilead unfortunately has people who are trained to say they have not heard of such side effects, whatever they are. Crazy! For those who have NOT reported your side effects, please do. Even if you are not sure it is Harvoni related, if it showed up while on or shortly after you treatment, it is likely Harvoni.

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Thanks, New Day. I have 1a also. Not sure if it is relevant, but could be. CHep Free, did you comment on a forum about a year ago about an FDA report? If so, I just sent you an email. If not, it's quite a coincidence. I did read that Harvoni was fast tracked by the FDA, so that is unsettling. I don't think any drug should ever be fast tracked.

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Babies can contract Hep C from their mothers in utero. Like HIV, the virus transmits through the blood to the fetus. Mothers with HIV can now take AZT and prohibit the virus from invading the fetus. Prisoners are most likely treated in order to stop the spread of the virus; Hep C causes liver cancer and it's far cheaper for the state to pay for the treatment rather than a liver transplant or liver cancer.

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Not so lucky for some people that was just 3 months after starting on that . I do know because Tony is my husband that he has now been off of what I call the poison for a year now. Not just back pain my friend but. He now has anemia, nerve damage in the legs and now neck, his eye sight is so bad he can't drive, platelets are dangerously low, insomnia , and nausea but worst if all a low heart rate that caused his her to completely stop and if he was not taken to the hospital right away would not be with me today my friends. My husband was much better off before he started on Harvoni.

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Be sure to report side effects to the FDA, not Gilead. They are notorious for NOT providing full information to the FDA and will likely tell you nobody else has reported such a side effect.

fda.gov/Safety/MedWatch/HowToReport/ucm053074.htm

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I suffered from some minor joint pain before the drug now 6 months later I have swelling in my knees with water retention and my right hand joints are bad. I felt sick while on the drug, my cholesterol sky rocketed. I suffer from chronic myalgia and fatigue and just a general sick feeling. I wasn;t having problems before. Don't think I really needed it.

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I have not been treated but have been researching the data to help me make a decision. The hepatologist I was referred to was so arrogant on my first visit that I decided to try for someone else. He also shot me down when I told him that I take milk thistle for liver support. He said that there is NO evidence that it has hepaprotective effects. I could dump a stack of actual research journals stating otherwise. He participates in clinical studies for Harvoni, which makes him suspect from the get go. I felt that if I were to opt for treatment, I need a supportive doctor since we will be working together on this over a period of months. It's so personal, but many doctors don't get that. Thank you to all of you who are sharing your experiences. I am so sorry for those who are suffering terrible adverse effects.

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Good luck I agree it's very personal. The docs I saw yesterday seemed just as defensive like there is some secret. They don't know! no one is going to go against a big pharma or another doc. Just be careful and find a doc that discusses options and doesn't push or try and bully you to treatment.

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Here's a thought on the price gouging. Maybe they need to rake it in now, before we all catch on to the terrible effects it has on our bodies, and sales plummet. Or before they get hit with litigation.

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NewDay: I have been looking around online for weeks at people's experiences with Harvoni. There are enough who are experiencing the terrible leg and foot pain to give me pause. I get annoyed with people who think I am stupid for not eagerly jumping on the Harvoni train. This drug was fast tracked by the FDA and the whole process is not very transparent. My liver is not in bad shape because I've done everything I could to keep it healthy. Most people do not die from HCV, especially those who make the effort to stay healthy. I am very appreciative to all of you who are sharing your experiences, but sorry for what you've gone through. It's not fair that the people who had bad results/side effects are treated like villains for simply being honest. I, for one, refuse to stick my head in the sand and want to make well informed decisions on my well being. Thank you so much for sharing with us.

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I receive lots of medical journals, etc., and I just read that Gilead is putting new warnings on Harvoni. One of them is coronary problems and I don't remember the rest. Those of us who have suffered from Harvoni and try to tell others should never that they have to keep quiet about the side effects. Too bad Gilead wasn't forced to disclose the serious adverse reactions sooner. If anyone wants to know the web site for this particular information, let me know. I just read it last night.

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Sadly it was just in the headlines yesterday that Hep C infection does kill and it is the number one killer of the infectious diseases. Even though I had sides and continue to be "post treatment effected" I would treat again rather than risk more damage to my liver. Just my opinion!

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Yes, Hep C does kill and I'm glad I'm cured. I do, however, want Gilead to be honest about Harvoni and the doctors to become educated on the side effects of Harvoni.

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Just found an article dated 4/14/16 Study finds DAAs Risky in advanced liver disease. Not sure if I can post link on here.

Study of 834 pts with advanced liver disease in Barcelona Spain noted DAAs (direct acting anti virals) more likely to die during treatment then if they just left it alone.
Results showed pts with very advanced liver disease ( whom this med was pushed at originally) may not obtain benefits from these treatments.

Now if we could get the USA to jump on board instead of worrying about big pharma and the stock market.

I am sure you can google the article titled DAAs risky in advanced liver disease. Sometimes it's just not smart to poke the hornets nest.

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Had many side effects from harvoni now 4 months post treatment and still have weakness insomnia extremely dry skin hair losss... Really wish I had not taken this medicine as I was extremely active and healthy before.. Now I can barely get the work indeed to done.
I was hiking around 10 miles a day and now am lucky if I can do 4.... Had been biking around 30 or more and now am tired after 8 or 10..i was not informed of all the potential side effects or I would have not even considered this treatment as I was not experiencing any problems before taking it.

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