Harvoni Side Effects (Page 29)
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I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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JANE: Yes I am familiar with the Kaisers in Norcal. I was born in the Kaiser in Sacramento, and so was my son. I have two friends who were born in the main Kaiser in Oakland. I grew up in Norcal. I will have to see if my current addiction specialist takes Kaiser. He provides me with tablet methadone, which basically NO ONE will do. So that is something to consider. Man, I wish United was better. I would love to start the Hep C treatment, but a thousand dollars a pill is a joke. Gilead could lower the price to $50 or $100 a pill and make it up in volume of sales. I don't know those pharma execs keep a straight face when they actually say "$1000 per pill". I mean, they have to be LAUGHIING THEIR ASSES OFF!

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JASMINE: But I assume he no longer has Hep C, correct?

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I am not familiar with any Kaiser Medical Centers in Colorado. I know quite a lot about the northern california Kaiser establishments and I believe they are quite good. Kaiser is the oldest HMO medical system that we have and are much better than they used to be. When I worked with HIV patients, Kaiser was (and still is) highly regarded. The patients like their care there. I would assume it's the same with Hepatitis C. Kaiser offers many different specialities to it's patients. One can see a therapist within the system or a dermatologist. I think they are probably better than United Health. Remember that if the Kaiser you belong to doesn't offer the speciality that you need, you may see someone at another Kaiser. I have a friend who is a Kaiser patient and she had a liver transplant at University of California Hospital where all the really good specialists practice. Good luck and please know that I'm available to answer any questions about health insurance.

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Not so lucky for some people that was just 3 months after starting on that . I do know because Tony is my husband that he has now been off of what I call the poison for a year now. Not just back pain my friend but. He now has anemia, nerve damage in the legs and now neck, his eye sight is so bad he can't drive, platelets are dangerously low, insomnia , and nausea but worst if all a low heart rate that caused his her to completely stop and if he was not taken to the hospital right away would not be with me today my friends. My husband was much better off before he started on Harvoni.

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Babies can contract Hep C from their mothers in utero. Like HIV, the virus transmits through the blood to the fetus. Mothers with HIV can now take AZT and prohibit the virus from invading the fetus. Prisoners are most likely treated in order to stop the spread of the virus; Hep C causes liver cancer and it's far cheaper for the state to pay for the treatment rather than a liver transplant or liver cancer.

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JANE: So what do you think about Kaiser? I have insurance through my spouse, who works for the State of Colorado. The only two there are to choose from are United and Kaiser.

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If you are incarcerated you pay zero, that's what smells so bad. Not to be ungrateful but when certain minority's get $100,000 for treatment it just smells bad. Let's hope for the best that this is a good drug for some even though my experience was awful.
I read today they are in phase 3 trials for ppl under 18. What person under 18 has hep C? Don't you think they should wait and C? Give it a few years before you are so quick to put children on it.

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You can get assistance based on your income. My friend paid zero.

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United health insurance is one of the worst! I work with patients and health insurance and am familiar with who's good, etc. Unfortunately, United covers the military (ex GI's).

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JOHN357: Well I have United Healthcare, and it is crap. They want to pay for 20 percent of it, which still leaves me with over $70,000. So I guess I'm SOL. PEACE.

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I agree no one paid out of pkt for theirs . I have half a bottle of wasted med's and my doc as the other 2 imagine that!

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KKH- I sure as heck didn't have the money to pay for mine. I'm on SS but the fulfilling pharmacy applied for assistance and it cost me next to nothing.

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You may qualify for assistance in order to obtain Harvoni. I hope you check this out and, if you qualify, remember that you had the advantage of knowing about what to expect while and after you take it. I don't think anyone on this site regrets being cured; they simply want to know when their symptoms will stop. If they suffer permanent damage, they may or not be glad they took the drug. That's totally up to them.

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TONY: Lucky you. I would be glad to deal with some back pain in order to be able to cure my Hep C. Unfortunately I do not have $90,000 in order to save my life. So consider yourself lucky. PEACE.

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I started having joint pain right before i was put on harvoni, the docs thought it could be caused from the hepc. My inflamation profile was extremely high. I took harvoni and cleared it. 1a. anyway it made me feel like crap. 6 months out i am feeling somewhat better but having inflamation in my knees to the point of retaining fluid, hands and body pain everywhere. I know taking harvoni set me back even thou i am clear of the hep c. Thought i would feel better.

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That's true the ACLU had to request via FOA what the real results were of trials.
Only 650 ppl were used that not a lot. In addition I would bet that most were withe dual diagnosed HIV-hep C so probably quite ill. Most ppl go into trial when it's the only game in town aka out of aces. The FDA should do follow up once drug is approved but you said it, they push it through because it's a $$ maker. In addition the "subjects" or reason for the price gauging is research. These ppl were the research! Let's continue to stay connected, report any changes positive or negative and best wishes for good health to all.

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Thanks, New Day. I have 1a also. Not sure if it is relevant, but could be. CHep Free, did you comment on a forum about a year ago about an FDA report? If so, I just sent you an email. If not, it's quite a coincidence. I did read that Harvoni was fast tracked by the FDA, so that is unsettling. I don't think any drug should ever be fast tracked.

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I have geno 1a. Regarding litigation it's up to the attorney to find a professional to testify. Most lawyers don't want these cases unless people are blind, crippled, or dead.

My instinct tells me eventually if we keep reporting there will be a litigation of sorts. Too scary to think of. I feel "different", tired, weak, and nausea all day. In addition I have ringing in my ears on and off all day, muscle skeletal issues exacerbated had to amp up my pain med's that were stable for over 4 yrs and double my b/p med's. This is all from just 2 wks of Harvoni. I hope it goes away but I feel old, I knew and said to doc why rock the boat I am just beginning to feel better. I really feel like they think this is a joke, almost as if it's some form of ethnic cleansing not anti viral. I know that sounds harsh there are reasons for my thinking that. Please, please report sides to FDA not Gilead I agree they are the problem not the solution you will get a letter of recipes from them what they do with it is another issue. Peace and healing I wish I knew what happened why some and not others or is it a yet, nothing happened to them yet?

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Can some of you share your genotype? I'm still on the fence about getting treatment and wonder if those with the nerve and muscle pain have a commonality.

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Mari, Can you please provide the name of your doc. I have been searching for an attorney and no one will take my or anyone else's case unless a doctor state the problem is from the drug. I think we all know that our problems are the result of Harvoni. For everyone, I have reports from the FDA that show that MANY of the problems we are experiencing have indeed been reported. Gilead unfortunately has people who are trained to say they have not heard of such side effects, whatever they are. Crazy! For those who have NOT reported your side effects, please do. Even if you are not sure it is Harvoni related, if it showed up while on or shortly after you treatment, it is likely Harvoni.

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