Harvoni Side Effects (Page 26)
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I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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@ Jane thank you for that info. I agree of course we would want to rid of the virus, who wouldn't. Is it fair to call something a killer if you have it over 40 yrs? Up to you, I read that only 25% of ppl die from hep C. Many ppl don't live healthy lifestyles in addition.
That said, yes I would definitely like you to share the website. When I was on it I knew I was ready for a stroke like I said my b/p was 186/118 and I am on med's used to be stable. My eyes were another issue, I thought I was going blind. Again why some ppl tolerate it well is anyone's guess. I would imagine as time goes on more ppl wil be reporting bad sides. It's treatment but intention was for ppl with bad liver disease not ppl who were stable.

Please share any and all new info on this product. Be well and best wishes to everyone who is still living with this disease. It's also not fair to say it's the # 1 killer that would be Ebola or HIV no?

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Yes, Hep C does kill and I'm glad I'm cured. I do, however, want Gilead to be honest about Harvoni and the doctors to become educated on the side effects of Harvoni.

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Sadly it was just in the headlines yesterday that Hep C infection does kill and it is the number one killer of the infectious diseases. Even though I had sides and continue to be "post treatment effected" I would treat again rather than risk more damage to my liver. Just my opinion!

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I receive lots of medical journals, etc., and I just read that Gilead is putting new warnings on Harvoni. One of them is coronary problems and I don't remember the rest. Those of us who have suffered from Harvoni and try to tell others should never that they have to keep quiet about the side effects. Too bad Gilead wasn't forced to disclose the serious adverse reactions sooner. If anyone wants to know the web site for this particular information, let me know. I just read it last night.

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NewDay: I have been looking around online for weeks at people's experiences with Harvoni. There are enough who are experiencing the terrible leg and foot pain to give me pause. I get annoyed with people who think I am stupid for not eagerly jumping on the Harvoni train. This drug was fast tracked by the FDA and the whole process is not very transparent. My liver is not in bad shape because I've done everything I could to keep it healthy. Most people do not die from HCV, especially those who make the effort to stay healthy. I am very appreciative to all of you who are sharing your experiences, but sorry for what you've gone through. It's not fair that the people who had bad results/side effects are treated like villains for simply being honest. I, for one, refuse to stick my head in the sand and want to make well informed decisions on my well being. Thank you so much for sharing with us.

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I'm not concerned; I was curious because I should go more often if that's the case. My physician said I could be tested as many times as I wished but she said it isn't necessary. After reading about the virus, etc., I'm fairly convinced that, if it undetectable at one year post-treatment, it's gone. If you want to be tested for your own reasons, that your business.

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I feel reassured by testing so I don't need to decline it nor ask him. No one knows if this will last forever? Why so concerned about it Jane. Better safe than sorry. It's a learning curve at this point.

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They say that if you are clear at one year the virus is undetected. Why not ASK why the doc is testing you after one year. Has there been reports of the virus coming back? Are you using drugs? There has t be a reason. People speak up, ASK your Doctor questions they don't know as much about this drug as you might think it's only been around 2 years if that.

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Jane I am doing what they request. I am sure since I started treatment in Dec 2014 that they are following up on if the undetected status holds long term.

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That's correct. I hate to even read about this drug that 2 wks I was on it was two of the longest wks in my life. I can't imagine why the doc wanted to " treat" it when I had no symptoms.

Now I continue to keep an eye on my liver like I have done the last 30 yrs. this is very strong med and we all react differently. If only the docs were more honest and forthcoming. Big pharma pushing this on everyone with ridiculous prices. That should tell us something. I am still angry about what I unnecessary went through for nothing.

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I was under the impression that patients are tested 6 months post-Harvoni and then again at 1 year post-Harvoni.

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JANE: I have heard of that with other HepC patients; them being tested again at 6 months, a year, two years...

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Why is your doctor still testing you for Hep C? I assumed that Harvoni cured you of the virus. I'm very sorry that you are suffering from taking Harvoni. Many of us are trying to support one another and we hope, someday, we will be well.

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I am 16 months post treatment with Harvoni. I also had the liver doctor discount any suggestions that I was sick from Harvoni during my treatment. I had leg cramping that moved to my feet. I live with bad foot pain to this day. It took months for my brain fog to disappear and I will never be the same. I am fatigued and worn out. I was on the medication long before anyone was writing about side effects on the forums. I am glad because I might have been more frightened!! I have had no follow up from that Liver doctor and he just emails me on my chart when it's time to retest again. I made it clear for a year and will be tested at two years out next. I still have upper right quadrant pain and had Hep C for 40 years and never knew it till I started having liver area pain.

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I had some pretty bad side effects from the Harvoni but I'm starting to get it out of my system after 6 months off. Feeling better and hopeful that I will continue to improve.

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JAMIE: Thank you, I will. I have made calls to everyone I can think of and so far, not much assistance. I will contact them.

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KMH totally understand your frustration with this. India would not grant Gilead a patent on Harvoni so treatment is $300 there. The 2 drugs that make up Harvoni are not new and much of the research was underwritten by NIH so India didn't think it deserved a patent.
Try contacting Acaria Pharmacy. They are who supplied my Harvoni and were able to get me assistance within 30 minutes. Maybe your Dr can contact them on your behalf. A friend of mine had the same Dr as me and also got the assistance.

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i had those things before i started the drug so it didn't cause it but the liver was the trouble. pain meds will help. tell them that is what u need i never ask , i tell them what works and u have to be telling the truth. plus i am an o older white male that matters with Dr nowadays.

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JAMIE: Well at least the vets are getting helped with that. I know that health care for vets can be..... IFFY? But no, I'm not a vet.

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The VA hospital give it out (9.00 co pay per month for the few months that is needed. I couldn't have gotten it otherwise. it still cost the VA 600-800 a pill themselves . it works 96-98 % of the time . i was lucky. good since Dec 22 2015but still have the effects of cirrhosis. Pain not eating which they now allow a drug that has THC in it but they took out the pleasure pat but makes u hungry.

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