Fentanyl Withdrawal Symptoms (Page 76) (Top voted first)

I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

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REPORT

The FDA cannot black box a drug used by millions. That is ridiculous as most of what is written here lately.

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The truth is Duragesic is used and prescribed for severe, intractable pain. Physicians prescribe it for the terminally ill, and those who are disabled by pain.

You may find that others who are disabled by pain do have their benefits because either due to a work injury (myself) those measures are still available. One does not take a drug like this and work. In fact 3 SSA attorneys I recently spoke to said that makes you legally unemployable as you are a "liability" on medications of this nature.

That means if you slip, fall off your office chair eating a donut etc. their comp insurance and other legal issues will arise putting them in a very serious predicament.

Therefore, does your employer know you are on this medication? Have they had you sign a waiver for any issues that arise while at work on this medication?

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If anyone has a good pain specialist for a rare case I can die very soon; due to Dr. Famous in California ditching 30 out of state due to ole Jerry Brown heaping up regulations for us we were removed. On top of that I had to take my comp carrier back to court they jump on physician changes so they can kill me literally. I'm cheaper dead than alive.

Actually any state will work but after 10 years in Houston, TX with the best (now deceased) and then Dr. Famous 5 years in California I need a pronto doctor with balls and strength and some intellect would help :)

Due to P450 I must be on brand Duragesic and also liquid oxycodone for ultra rapid metabolizers. We do not do well with pills, we metabolize them in less than 15 minutes. They do us no good. So the provider must be ready, willing, and able. I was on 80 of 100 and 80 of 75 a month. My bill was over $25,000 a month. Now housebound, and on less than 30% of my dosage all benefit and stabilization are destroyed.

I'll take names now line up (smile).

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Pretty Pansy brings up a good point. My insurance requires pre-authorization for certain meds that has to be renewed every year. It's a pain because the office workers (not the doctors) don't always do the extra work and you assume your insurance is no longer covering the meds. I call the insurance company directly, get a direct line for the pre-authorization of meds and give it to the receptiionist. The first time may require more documentation but continuation is simpler. It also varies from one state to another. Interestingly, the medication that requires this is NOT a pain medication. Good luck, no one should be left without meds to face withdrawal "cold turkey". Let us know if it works out.

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I guess that's one of the reasons im glad I live just outside new Orleans and have the pain management doc I do.. no weekly or monthly drug panels used to write my scripts for 6 months at a time (saw him every six months) no problems if u needed something for brake thru pain or sleeping pills just call him. I guess its where ur at and who u have ur doc thru is how good he is and how knowledgable he is about ur needs

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Stephen I did send my information to Dr. Troy. I will go to Louisiana. I had to go to California for five years. Right now I could die within days without help. Would you be willing to pass along his name if he's still working?

Thanks,
P450

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P450,

Not on an open chat like this.

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Little coconut, a black box warning just means that there will be information booklet about potential side effects and overdosing. There is also a warning on the outside of the box. It does not mean the product should be taken off the shelves of pharmacies. It's the equivalent of the Surgeon Generals warning on a pack of cigarettes. You don't even need a script to buy those!

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Hi there, I'm so sorry to hear what you're going through. I myself found to be in that position 11 months ago and I'm here to tell everyone. ..you can get off the patch, I did. The secret really is a combination. ..Hemp oil is #1 weather you believe it or not. I had my MRI few days ago and I was told yesterday that the huge tumor inside my spinal cord is GONE!! Yes it's a true miracle. Anyone who wants info about this just let me know....stay pain free my friend.

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Little coconut
I been off the patch over 2 weeks now quit cold turkey after being on it 3 yrs ( 150 mch every 48 hrs ) .. just took benadryl every day no w/ds at all .. im not saying everybody can do what I did I just have a really strong will ( thxs to uncle sam over 40 yrs ago ) and sometimes thats the first step

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Stephen,

Hemp oil does not remove spinal cord tumors this is a sales pitch. I'd bump the post. I would not suggest anyone thinking any product is suddenly going to remove a spinal cord tumor. If it disappeared then the initial test was wrong (mixed up with someone elses test so you should not have been in pain or needed Duragesic), or that was not what they saw initially at all. Just the thought of contacting people to sell natural products tells me scam sorry."little c."

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P450,

Don't worry im crazy not stupid. I don't really think hemp oil can remove anything myself someone just trying to make a sales pitch.. we use to call them snake oil salesman a long time ago. And in some places in La and south Tx they still tar and feather ppl like that LOL

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Sorry but you cannot convince me or intelligent people that hemp oil was responsible for the disappearance of a tumor on your spinal cord. It sickens me that people are using this forum to deceive others that are sick and in pain for their personal gain. Shame on you!!!

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I agree Hop. It might relieve some symptoms but it won't remove the tumor. So many people are trying it. It's crazy. I'd also like to get back on to the subject of Fentanyl. We need to get awareness out there about it.

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Sandy
I agree but also u got to remember there are ppl out there that really need fentanyl just so they can try and have a normal life . U cant throw the barrel away just because of one bad apple .. I believe that doctors need to educate patients alot better about fentanyl .. I know my doctor didn't really say to much about it to me just said I want to try you on fentanyl I ask ok what is that . He told me it was a pain patch that you wore and changed every couple days .. that was my intro to fentanyl

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Sandy, thanks for standing up for those who would not have any life without fentanyl. Patient education is key and doctors must remember to tell each patient the pros and cons before starting any medication.
Good luck to you.

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Thx you Sandy
Like I said I been there and on fentanyl and got off it . And don't ever want to go back to it .. but for the ones still on it . I do know and been there . And I dont judge one way are the other

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Sandy and all,

As a professional I hate the day my physician now deceased began me on this drug. It is a poison and was not adequately evaluated prior to being put on the market. I cannot walk without it and now the FDA has those like me (rare disorders who metabolize rapidly) near death for who will treat us?

I had Dr. Famous in California the past 5 years. When state regulations changed so out of state patients as myself got dumped and cannot be properly written for NOW I have no physician for 10 months and am almost near death. I cut back to below 30% because I put aside as he taught us. However, when I began this death drug almost 20 years ago I had panic attacks, impending doom and at five foot nine was down to 80 pounds most of the time. If you move your bowels or when you do you might lose another 15 pounds for when you finally go there is another person inside.

I have over 400 disorders and found that the patch addressed structural pain whereas Oxycodone is a life saver for my RSD in comparison.

I require brand on top of this due to allergies mostly to adhesives we found on generics for they contain silicone and latex.

It is a highly dangerous drug right now because pain specialists are being pissed on and fearing the FDA instead of being physicians and handling our pain.

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Hop,

No one should be on Fentanyl for that long who does as much as you are doing sorry. It is not appropriate with the new FDA mandates and it's an insult to those in need who now have difficulty obtaining PM to hear you gloat, and tell everyone that you work, do house work, and all else while using this powerful drug for all these years.

Did you try weaning a dosage to see what kind of poison it truly is?

Did you consider what happens when Dr. "FeelGood" drops dead or is shut down?

No one will write for someone like you that medication with what you are doing, not one.

Try it and report back.

P450

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P450,

I hate to tell u this but there r a few ppl my pain management doctor see's and has been on fentanyl a few yrs and still works; one almost 7 yrs and another over 12 yrs. I think a lot of it is where u live and the rules and guidelines for ur state.. I mean take one drug say like tramadol, in some states its a narcotic in others like Louisiana it's dished out like candy.. so a lot of ur medications r governed by the state u live in and there rules and u dont know what state hop lives in and there rules..

I just wish my medical condition would let me still work, believe me I was a long haul trucker (owner operator) and I made more money in one day than what SSI pays me in a month. But with my medical condition I can and do lose all feelings in my legs 2 to 6 times a day for a couple of hours (cant walk nothing) so they told me that's the end of my working. But really im damn glad and proud that ur still able to work and just a might jealous to tell u the truth LOL. Just take care of ur self and hope u make that retirement.

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