Fentanyl Withdrawal Symptoms (Page 54) (Top voted first)

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I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

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999

Research away, I will be your campaign mgr. it's nice with our new mamma , our nanny of all nanny's, Lil, weelerwe,Chelle and our very own angel. Fid I forget someone? There is always someone up when we can't sleep in the middle of the night. I panic'D all month wondering is it going to happen again? Will it get filled? If not, then what's gonna happen... So, ya I feel like a beggar too. It's like Mexico not having any more Aguave and no more tequila! Ok, need to try to get going on with another day. Nanny and Angel? Why do you get to meet :( I'm jealous!
Shannon

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1000

Hi all , I actually totally understand how we all feel in chronic pain daily without it every going away. With the prescriptions my dr was in manhattan and I being in the subburbs was not convident to see him monthly, after he agreed end he would send me three individual scripts post dated so I would be able to at least get the meds on time.. I also used the same pharmacy every month and made sure they had the fentanyl there so would not have to first order it..just a suggestion..

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1001

Nuttynanny, hope the stress of having to deal with your family won't make you hurt more.. Try and stay off your feet if you can,, don't be a hero.. As we all try to do. Remind those your in pain if it gets to much..

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1002

Shannon,
You are invited to call me anytime. I wrote this post earlier but the admins yanked it because it had a sequence of numbers. So I am going to spell itout.

Here goes : four, one, four seven, one, nine seven, zero, eight, five.

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1003

Angel, that was so cute. Made my morning, it's been a while since i laughed that hard.

Hugs,
'chelle

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1004

Get ready for what can be a long hard road. I weaned down from 75 mcg over 3 months, 2 months later now and withdrawals are as severe as day one. Really wish I had been informed about this before I started them. Still looking for answers. Hope ya all do better than I.

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1005

TO ALL,
Let's start by stating this fact:

IT IS MY OPINION THAT IF YOU ARE IN CHRONIC PAIN
YOU HAVE THE NEED
THE RIGHT
AND MY PERMISSION
AND GODS
TO
GET
RELIEF!

The Bill of Rights gives us the right to " life, liberty and the pursuit of happiness. "
People in chronic pain have no life, can not move, and can not pursue happiness. PAIN is their existence.

God says he does NOT want us to suffer or fear.

My husband is mad. He wants to know why I screwed up my meds when I was PAIN FREE.

Now I hurt.

So I went back to 75mcq/hr.

Am I wrong?
Tell me.
Will I die sooner?
Tell me.
What is wrong with staying here?
Tell me.

I so love every one of you.
We are bonded now.
I'm going back to see how long it's been.

Hugs,
Angel
PS I am working to get Obama reelected.
PPS I will still look into that Foundation after Nov 6th

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1006

Welllllllll,
I went back through this whole blog!!

It started in 2006.

But we have made it active again with about 33% of the postings.

NuttyNanna and Shannon have been on here, I think, since February.
Is that about right, Ladies?
Long, long time with lots of great advice.
You all rock.

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1007

im 20 years old and i have chronic lymes disease along with cervical distonia. i was given a script to start 50mg fentynal patches by my dr and was told to keep using them until my pain could be controlled (meaning towards the end of limes treatment). i have an adhesive allergy so my dr told me to change the patch every two days and to discard any old ones. so i complied. after i finished the pack of five patches i went to the pharmacy to get more (my dr gives me a script every two weeks to get a new pack) and the pharmacy wouldn't let me refill it due to being 4 days early on the refill. the box says change every 3 days but i was instructed to change it every 2 days. needless to say there was no way around it due to the crack down on narcotics. I've never been one to abuse the pain medication i am prescribed and actually prefer to try other methods of pain control before resulting to narcotics. once the pharmacy told me they wouldn't fill it for 4 days i went home thinking thats fine i can make it through 4 days by using advil or tylenol depending on the pain and i also had percecet in case of more severe pain (usually experienced more pain around night time). for the first night in 3 weeks i am patchless and had the most bizzar feelings ever. first i had insomnia, couldn't sleep no matter how hard i tried, my hands (especially the right) felt pain full and felt as if they needed pressure put on them, and as if i couldn't get them into a comfortable position. the sweating and shaking came later. by 5am i had some of the worst feelings I've ever had. i was miserable to say the least. i want to tell anyone who starts the patches be careful and even if your not abusing it but following a drs rules make sure the pharmacy you go to knows your condition and will work with you. once i finally got the patches filled the symptoms slowly subsided. but i want to know if any one had with drawl symptoms that affected the hands as much as they did mine??? if so do you know why it focused on the hands?

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1008

Larry, I think all of us are different in the way our body reacts to fentanyl, I guess I was lucky, took me two full months to withdraw from fentanyl by myself after being on the drug for over 9 years straight after after spinal fusion and having nerve damage from waiting so long for the operation,,I was on it every other day,, I went longer in between changing the patches once I decided I still was in pain so why be on the drug,I did not have any shakes with my body,, I did have lots of chills and sweats which after taking this herbal pills called Relaxx concentrate which my acupuncture Dr. Informed e to take.. He is thrilled I am not on fentanyl now

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1009

Hi all for those that wear the patch more than the company directions say the doctor has to make sure he writes out the script correctly ,, the pharmacy will not give.. You also cervical could have gone to another pharmacy and had the pharmacy call the doctor. Here in ny we have many different pharmacies so maybe I just am spoiled

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1010

Dear Cervical,
GO TO THE ER NEXT TIME.
Hon, you can not just stop the patch.
I am sorry.
Read the whole blog.
You will find lots of symptoms.

Come to talk anytime.
Hugs,
Angel

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1011

Hi guys, to the new one, I did the exact same thing. Every 3 days is to me 2 nights. Not the case I found out too the hard wAy. I still mess up sometimes. Angel, I wanted to call you the other night but it was really late 10:30 in Ca I may call. I went to happy hour last night the first time out since late July. There was a really nice older couple sitting near my friend and I and the sun from the wharf was glaring me in my eyes and I moved my chair just a bit and the husband said be careful and I thank Gid for that gentle reminder. I have to be soooo careful. One wrong move and I'm out. Why is everyone being so mean with us on pain medecine. Who ever is in charge must have never experienced anything close to what we feel and the injurys and illness we have all to well documented. Pics n all. This is so scary. I really wish ppl didn't have to experience first hand to have a clue as how difficult it is to breath Somedays.
Take Care All
Shannon

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1012

I forgot to mention that to the person with the adhesive allergy, my doctor told me that they have Loly pops that may work for you. But according to him they get you supper zonked. Probably not what you want every day for relief but if the pain is as severe as mine can get it might do the trick. I would love to try it once just to see but I can file that under "N" meaning never gonna happen. I wish you luck and the best weekend under these circumstances.
Most Sincerely;
Shannon

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1013

Shannon, I had used the lollipops of fentanyl only few times,, it tastes like sugar kinda and did help break thru pain but I would not use often cause it was 200 mcg .. My pain doctor told me to be careful with the patches so I was always afraid to take it.. Last two days did way to much for my back, cement work , now can't stand without hurting,, to add injury I stubbed my toe and think its either bruised badly or broken. Can't bend it swollen, of course did not tell my hubby when he came home. Hopefully that pain will go away soon I have to be able to wear a normal shoe for Sunday have a shower to go to.. Trying to see what shoe I can wear that wont hurt more😪😪

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1014

Hang in there Dundee Lady. I just came off of 75mcg in 12 days after being on it for 6 yrs. I have now been completely off since the 10/11 and can say the withdrawl has finally stopped. My back and Right leg are still achy, but tolerable unless I over do it.....still on Topamax 400mg/day. It's when I try to lay down to rest that my leg gives me fits. Fighting WC to go to another doc for some meds to quiet leg, hopefully will be taken care of soon.

I hope everyone else is doing well. I have been trying to keep busy.

Hugs,
'chelle

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1015

Darling Chelle,
When I said read the whole blog I was talking to Cervical. A new person.
Dundee Lady has not written on here since June or so.

How are you Chelle??

How's that swollen foot?

Shannon, call me tonight it's Sunday. I will call back after you give me your number on house line which has unlimited long distance on weekends.

Hey, Kentucky Lady, did your WC doc die and you are now free to get the meds you need?

True confession time: I was Hillary Rodham Clinton's campaign manager for my huge county back in 2007-2008. I met her, Pres. Bill Clinton, Chelsey and Ann Lewis. I am now working for Obama.

Yesterday, I sat at dinner next to Dr. Jill Biden, the VP wife. Made all networks so you might have seen my flaming red head next to hers. She talked to me for about 20 minutes so the reporters wanted an interview with me after. Wish I could attach the picture of us here.
If any of you want to know WHY TO VOTE OBAMA OR HAVE DOUBTS, I am the person to ask. I have concrete facts and real figures.

Write or call everyone!!
Hugs,
Angel

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1016

Angel I have 4 twenty one's o two. And way back in 99 I felt it as well. Gotta come to Santa Cruz CA when it warms I have lots of questions..

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1017

Oh boy just what I want to hear how wonderful Obama is, right what's the change more people out of work! Higher fuel that people can't fill their gas tanks.. Please let's keep this about pain and how we deal with it, not politics where there is a small group that runs our country and they all have favors that they have to then pay ack for giving money to campaigns..

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1018

Thanks Angel, I'm actually doing ok. Just waiting on WC to give me the ok to go see my Fam Doc. My back and right leg are achey but tolerable unless I over do it. It's when I go to lay down and rest that my leg is giving me fits. I get all these crazy sensations...crampy, stabbing, tingling, burning pains....to the point that I have to move it. So hoping to get into the Doctor soon.

I got booted out of the group for a few days for some reason....stopped recieving emails. Almost didn't find you guys again. Not sure what happened.

Hope every one is well!

Hugs,
'chelle

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