Fentanyl Withdrawal Symptoms (Page 54)

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I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

1672 Replies (84 Pages)

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1061

Lilred4,
Have not heard from you since storm started!!!

ASAP send us news you are okay.

Have been praying for God's mercy for my friends.

R u okay?

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1062

Angel, this been done aad worked quite a few times. I have never but friends have and just address it to nutty. I get mail in that name all the time......But if you don't want to, then by all means don't....

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1063

Hey Babes, I'm still here. I'm sorry to see some of you are in serious pain still, I think about you guys alot. I only deal with pain resulting from two lower discs, lowest one is gone and the next one up is 60% gone, at least that is what the surgeons say, and the MRI does look bad. This is hell no doubt about it, and it is good to talk about it. I know it feels like there is a lot of complaining, but we all understand each other and talking about the pain can be a help, because many friends and family around us DON'T understand. Please be careful with the mailing I don't recommend this, it could result in this site getting shut down and other getting hurt. One more thing, the person who mentioned banning these patches, NOT A GOOD IDEA. Fentanyl gave me my life back, there is a very high potential for abuse, but that needs to be dealt with at a personal level. Withdrawal is very hard and painful to deal with, I know, but I still would not give it up. Without Fentanyl my life would be a disaster, and yes Fentanyl was my last option I tried tons of things before I went to these patches. I still deal with pain, but I can get through it now, before I couldn't even stand up. To everyone, keep working through your pain the best way you can, I still believe things happen for a reason, although this is a horrid thing to happen to us. We will survive this.

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1064

To Everyone,
Nanna and I talked on the phone. We both agreed my plan was impulsive and too dangerous. Right, Nanna?
I love you all so much but breaking the law, I will not do and Nanna will cope because she doesn't want to kill her Angel. Forget I said it. I was stupid.

It's so good to hear from you! Here we can be free to talk at what is truly happening with our bodies. People UNDERSTAND THE EFFECTS OF LONG TERM CHRONIC SEVERE PAIN. All we are trying to do is live as normal as possible.

I went back to my 75mcq/hr patch because my husband asked me why I was messing with something that worked.

I was momentarily speachless because he had a great point. It was the Pristiq that made me sluggish. And that was horrid to withdraw from, believe you me. It took over a month but I got the stuff out of my system. Sometimes it's not the Fentanyl.

Shannon, where are you??

Higs,
Your Angel

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1065

Angel, i have decided that this is not a good ideal, don't do this. I don't want to lose anyone or this site. It helps to talk about what is going on in my life. My pain has been my pain for years so it's not going anywhere. Maybe one day there will be something that will help us all that won't hurt us when we have to come off it, or can't afford it. I have made up my mind that no matter what kind of pain I'm in, I will do something nice for someone every day. Try with a smile on my face too. Hope everyone had a happy and safe Holloween. Hugs and kisses to all.

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1066

JYou guys are all certainly messed up.Sounds like a bunch of whiny babies who cannt take control of their own bodies.If you want off this stuff take control of your minds first. Meditate. Then execise......walk .Meditate....walk. That stuff in your bodies is juste creating another problem besides the painpain.

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1067

Chrissy, you must have never been in any kind of pain. Have you had cancer? Have you had your disc in you back proferated? Have you any kind of diseases that can cause pain? Until you have and can relate than you need to find a site that you can relate to. This one is for the ones that have pain, pain from withdrawals and pain from diseases. If you have no sympathy, then you need to sincerily stay the f*#%@ off of our site. Find one that don't have a bunch of "winey babies" as you call us. Sorry friends for someone that is so hardhearted and cold and must have never been where we have been. I hate someone who judges, I think that is left up to God and God only........sincerily nuttynanny....(excuse me if I spelled something wrong, I've been up most of the night with an acheing back and hip)

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1068

How did everyone fair holloween? How are the ones that went through the storm? I hope and pray things will get better for you and that this storm did not cause much damage. Chrissy, I'm sorry for being such a butt a few minutes ago. But to wake up to someone slamming us that are in pain just gripped my soul. Esp. since I had been up most of the night withering in pain and not being able to get in a comfortable position so that I might get a couple hours sleep. Then I looked out and saw what a mess my yard is in after my grandkids got through with it. I won't have to buy toliet tissue for a year.....lol They are so much fun......love all ya'll and have a nice day.......

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1069

Chrissy,
I studied Transendental Meditation with a Master for ten years. I rose through the politics. Taught classes myself. I meditate every day.

I have been a vegan for decades. I believe in consuming less calories than you need to extend life and limit disease.

I was a marathon runner, then walker. Now I swim. I have never put a cigarette to my lips. I drink rarely.
I do not live near pollution.

I took a " How Long Will you Live Test"?

It said I will live to 100.

I have an IQ of 162.
I hold yours in doubt.

I think and care for others.
YOU HAVE NOT ASCENDED!

BEGONE, SATAN.
I AM ANGEL

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1070

Sorry.
I am going through some withdrawal from the patch.

Makes me irritable.

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1071

Crissy,
What kind of cancer surgery did you have?

Are you going for radiation.

I have been off the patch also. I went back because it works for me. Little by little I get rid of the meds the doctors have me on.

In 5 years I have stopped taking 11 other meds. Imagine!
I now only take 4 plus vitamins and high end nutrients.

Be well.

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1072

I must admit I have been a lurker for quite some time now. I just wanted to say I have quite enjoyed the candidness expressed by most of those on this site that have been here for awhile. It has really helped me to know that I am not alone when it comes to pain and the experiences involved that come with the long term use of narcotic pain medications. I can certainly commiserate with almost everyone here.

I really hate it when someone leaves a message intended to tear someone down instead of building them up. I honestly believe when someone does something like that is because they have never honestly dealt with chronic long term pain. If they do have chronic debilitating pain they would not make those types of judge mental statements.

I wanted to say thank you all for sharing all of your stories.

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1073

Well, I have had a very trying day, today. My daughter that just had her gall-bladder taken out, strained herself and tore some of her cuts loose, and had to take her to the ER. She was suppose to be at the dr. today for her follow-up visit, and he told her not to pick up anything for 6 weeks that weighed more than 5lbs. But, she is stubborn as her mom and thought she could do some things. She knows better now though....How was everyone else doing today?? @Nurseaudrea, please don't be hard on yourself. I lived with the guilt of everyone labeling me without walking in my shoes. Now that some have been where I have been, they understand. My mom just went through breast cancer, but did not have to have a radical mastectomy like I did, or the nine surgeries that I had to go through the five years that I was fighting this. She now has a new respect for my feelings and said at one time that she thought God allowed her to experiance just a little of what I went through to make her understand. I don't know about that, but she is my rock. She is 85 and still can run rings around me. She is a great lady. It is good that you can now talk about the issues that you were having when you were in so much pain. I hope you are not in so much pain now. If there is anything I can help you with, you just ask. I will help you in any way I can. Hugs and kisses to all and to all a good night...this old lady is hitting the sack....

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1074

Dear Nurse Audrea,
You can visit is anytime!

But if I don't hear from everyone else fairly soon, I will go away.

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1075

Hey everyone, just checking in. I'm doing ok. My oldest son had a band concert tonight at school. They did such a good job. Makes me miss playing the violin. Maybe I should pick mine up again....LOL.

Only slept maybe an hour today....sucks, because I know I will be getting Manic by tomorrow which will make it even harder to sleep. Thankfully I'm off work tomorrow night, but only because we have to be at my son's school by 6am on Sat morning ready to leave for OH. It's a 3hr drive, going to his last Marching Band compitition. There are 23 bands playing so we will be there all day...gonna be cold too....Yuck!

I hope everyone is staying safe and warm.

Angel i sent you an email, did you get it? If not let me know and I'll text you I would like us to have a way to contact each other.

Hugs everyone,
'chelle

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1076

All of the people in Sandy's wake include:
Shannon. CA
Lilred4. Long or Rhode Island
Gil. Florida
Weeler. ?

Please, check in ASAP so we know you are okay !

Today I worked on my nieces baby's bed set. The quilt is called "Sails". The base is 4 squares by 6. Each square is made of two triangles: the top light, bottom dark. When arranged it does look light open sails on the lake. Get this! Holly's brother, my nephew, Fred was in Guinea in the Peace Corps. He has convinced her that
YELLOW DRIVES BABIES CRAZY. Have you ever!!

Then I am making both flannel and cotton sheet for the mattress. Blankets and one curtain, also. The bumper pad around the mattress will have clear plastic pockets. Every day you put new pictures in it to stimulate the baby's mind. Baby's don't use pillows do they?

By Saturday , I will be working 16 hours per day for Obama. So you might not hear from me.

You know pain shared is half the burden.

I so rely on you all.

Chelle, I will check.

Hugs and a Very Good Tomorrow to You All,
Angel

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1077

Dear Chelle,
No email as of 2 am Friday.
Here is email again:
xxxx@xxxxx {edited for privacy}
Cell phone for texting: xxxxxxxxx {edited for privacy}

Would love to talk! Tomorrow is my only open day. Then Obama campaigning night and day til the end.

Hugs,
Angel

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1078

Hey all, and my Angel, chelle, Shannon, lilred, and everyone. I just wanted to ramble like old ladies do at 3:26am in the morn. I can't sleep and can't get comfortable. I am hurting so bad right now. It feels like I am having a baby. Not cramping but like my hip bones are separating apart and a knife is stuck, twisting, at the beginning of my butt crack. Sorry, did't know how to discribe it but just as it feels. I guess this does not help a man, they don't know the pains of labor. Enough about my pain, how is everyone tonight? Sleeping I guess. Thank God we are not all living together, I would be a very aggravating person that is up all hours of the night. That would suck. Has anyone gone through not being able to sleep because of the fear of dying in there sleep? This is part of what I am going through now. Where does this come from? I have never had this fear before. I don't know if it started when I started reading the side effects of my different kinds of medicine and all of them saying "may slow heart and breathing down" and me thinking I have took too much medicine together and the combo will make me stop breathing in my sleep. I think I need to go talk to someone about this fear. I will be nearly out of it and make my eyes open and take deep breaths. I just got out of the hospital where they checked out my heart and told me that I was good to go for another five years at least. I get so mad at myself for doing this. It has made my life a living terror. I will do this for days and then be so tired that I will sleep six to seven hours, but then the next night it will start all over again. Maybe it's time to make some changes in my life and with all the medicine I take. It is wearing thin. And I have always been a firm believer that you will go when it is your time and not before. But I guess there is such a thing as pushing it along....lol....Well, I am going to watch a movie and leave ya'll alone for the rest of the night. Hugs and kisses to all.....

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1079

Hey all,
Just ck'd in. How did Lil weather the storm? Angle I waited almost 2 months to be quickly dismissed by a pain doc in the same office as the surgen that messed me up. I guess it might be blood in my spine and brain. She swore it wasn't csf. Said I need a neuro surgen made me feel stupid. She's just covering for the doc. And no atty will take the case. I can't find one. Probably cuz I collected from every corrupt one in Los Angeles when I represented a major medical foundation. 100's kept the settlement money and never paid the medical bills. It was an easy job because none if them wanted dislipanary actions with the bar or loose their licence. I don't know what to do. I wasn't referred to a brain surgen so I guess I will have to wait till I am forced to go to the emergency room. I had One day that I wasn't all dizzy and blurry. Oh well. I pray Gid will be kind and take me in my sleep, but it appears with the way everything has been going I will probably end up paralyzed and in a coma but still screaming on the inside and not look like I'm awake.
LIl, let me know how you weathered the storm. Nanny I hope you feel better :( Call me angle. Weeler!!!! Nice to see you stopped in. Your missed.

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1080

Shannon and Nanna,
Shannon why would you think a doc in the same practice would help? Have you thought of going to either one of these: an ENT (ear,nose and throat) doctor for your dizziness OR a opthamologist for your blurred vision?
Nanna, listen. Do you have problems breathing on the Fentanyl patch when you are not asleep? Have you passed over when you finally slept?

I too worried. But BY NOW OUR BODIES ARE USED TO THIS DRUG. This is normal and what would kill A NEW PERSON ON DAY ONE is who the warning is for.

Now, I am not saying if you drink, do illegal drugs or other very NEW heavy narcotics, all warning bells will not go off. You are smart enough to not do that.

I have even had the doctors put 2 75s on me for 3 weeks after my hip replacement AND I was taking strong pills too. It helped the pain but

I AM STILL HERE, NANNA.

CHELLE , look behind. Try small i.

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