Dystonia Rare Muscle Disorder
UpdatedReaders, I an 69 years old and drew the black bean for a rare neurological disorder called Dystonia (you may want to Google the word to find more information how it affects maybe 3 out of 10,000 people. Anyway, it is specifically targets the neck, eyes, jaw, tongue or other body parts.
My case is the Cervical that targets neck muscles to spasm(tighten) on their own. Imagine a permanent "crick" in your neck. Hard to turn pulls in different directions. Some cases disfigure and others are mild.
My main reason for the background information is to report a tremendous worsening of the spasms and pulling head in different directions after receiving the Prolia injections. I read where muscles spasms, twitches is one of the many side effects. Because I already have a serious muscle problem would make sense to avoid any of these osteroporous drugs. My doctor says I have no choice if I want to avoid a serious fracture which he says my scans show great risk.
I just want to "put my reaction out there" in case anyone knows of another person who has had similar problems with similar diagnosed muscle problems.
Thanks for reading my message.
1 Reply
Have you reported your problem to the FDA's MedWatch line?
They do take reports like these, so they can be used, if needed, to update drug information warnings in the future.
You can call them to find out how to do so at 888-INFO-FDA.
https://rxchat.com/wiki/Prolia/
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