Do Steroid Spinal Epidurals Make You Worse Or Better?
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Hi, I wanted to ask if any of you have had any success or made worse having steroid epidural shots? I had one 8 weeks ago for the first time. I don't have major spine problems but did get thrown out of a car in a wreck. My dx is lupus, hernia, lymphadenopathy with B symptoms, and my foot is numb. Lupus has an entire list of symptoms so I won't engage on that. I'm trying to explain the best of my ability how I feel after my first inj. I have pain at times like it's heart attack symptoms, I have fluid retention, it hurts to move my neck, it hurts to walk and I've currently been unable to run our company in the last 3 weeks. I am so much more weaker too. I know this was to help joint pain but I feel it's set off more problems than I bargained for. Also prior to the epidural, I was running a fever and I run a fever a lot with lupus with a low white blood cell count. I tried explaining this but the drs office stated I couldn't have the one pain medicine I get if I didn't have that shot. Never in my life have I seen how a dr's office can hold you hostage for one medicine. I can't take any of the better pain meds and went through several until I could find one to work so I didn't want to lose that. I'm also wondering how can so many patients be taken off an FDA approved medication and be given an expensive non FDA approved inj.? That's backwards! I would love to hear some of your experiences with this type of procedure & what your condition is. Thank you!

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Re: Kelly (# 4)

My old doctor gave me 2 back tractions. Doesn't work. I had back and hip shots with a skin infection from wounds that wont heal from an allergy to hardware in my broken ankle and I got hit by a van as a pedestrian. I got facial cellulitus, rashes and a swollen face. It did help, but I'm weary of side effects as I have lichen planus and hashimotos. No one I know feels better after back surgery or spinal electric nerve stimulation placement. Sauna, relaxing, turmeric, taking it easy. Opioids made me over do it and I was prone to muscle spasms. If a person gets an infection your brain might not know what is going on and doctors tend to not want to diagnose you and list you as crazy and it is just your opioids. They are the first to ditch you when you get a new medical problem, just like hard core drug dealers. Opiods in the long term will eventually kill you. I call it the silent mass killer with no discrimination. Did you donate your body parts? I did not.

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Re: Kelly (# 4)

I am trying to get my nerves burned in my back. I did it three years ago and it did very well for me. The reason I haven't repeated it sooner is I had a triple bypass last year. Now I am faced with my cardio Dr. Agreeing with my pain Dr. I need to be off plavix, blood thinner, for seven days and my cardio Dr. Says he can only approve five days off. My pain Dr. who does the procedure says he will not do the procedure with me only off five days. I don't know what to do now. There has to be a signed release before it can be done. I haven't given up yet and will talk with my cardio next week. My pain is getting worse every day. I can't have surgery so this is all I have other than doping myself up. Any thoughts anyone?

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Re: Margonot (# 19)

You are so correct! I had spinal surgery 5 years ago and just this year, recently, I am having pains and all the same symptoms I had five years ago. My surgeon says I have a massive herniated disc in the area above my surgery. Beginning to feel like a future Tin Man/Woman thinking surgery is a very slippery slope and that's why so many have several spinal surgeries. I read a book by Tom Griner who practices neuro-soma, dealing with muscles, not skeletal structure. In fact, he won't even look at MRI results. Says all our pains that surgeons operate for are mostly curable with his body work. It may take a year of body work and is very expensive but a friend swears by Griner and says he saved him from having fusion on lower vertebra. I had fusion, regretfully, and felt GREAT until now...I am desperately trying to avoid surgery because I truly believe it is not a cure but a mere postponement for future issues. Everyone, even if you reject his thinking, just go to AMAZON and look up Thomas Griner and get a used copy of his book. He was a NASA engineer and then chiro who came to believe surgery and altering the spinal bones was not the answer. That everything else gets thrown out of whack and causes pain by compensating. There is no MRI program for muscle - he's trying to get funding but not much interest. Just Google "neuro-soma" and read about it. It truly makes sense to me - more so after having surgery.

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Sorry to hear you're suffering so badly. I have been receiving steroid epidural injections for at least 10 years. I sometimes get L-4-5 injection, C-3, and also my SI joint. I also recently had cervical injections as I also have chronic neck pain. If this was your first epidural, your doctor should have scheduled another one two weeks later. My first was a set of 3 consecutive injections, 2 weeks apart. That is most likely why it didn't work. The only other reason would be, he was not in the right area. I hope this was some help. Good luck with everything.

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Re: Me (# 23)

I'm in RI, but my doctor's group is New England Orthopedics in Natick, MA.

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Re: Elgee (# 12)

Min does too! My old Neurosurgeon also did surgeries on our local professional players. Where do you live?

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I had the injection for sciatica pain. It was miraculous for me. No more pain.

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Re: Margonot (# 19)

That's an interesting post! I will try that as well. I know I'm willing to give anything a try that makes one's body feel better. I think the neck is setting off a lot of my headaches & I just started getting migraines this year. I do know one thing I found for my headaches that honestly worked a few times & that's lavender oil! Some of you might want to give it a try! I know there's so much stuff that can help us in conjunction with other treatments. I'm learning everyday on these forums! So again, thank you all for replying & opening up about your symptoms & other stuff. It's a big help!

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Re: Margonot (# 19)

Thank you so much for your detailed response. I appreciate the time you spent on it

I'm hoping to find "the" answer to my situation. Am currently bouncing around a bit between orthopedic specialists, my chiropractor, etc. I'm willing to listen to and explore any informed options at this point. In fact, it was my chiropractor who recommended I see an acupuncturist.

It's forum boards like this that often give the one piece of information one needs to resolve their situation. I found the clue to interstitial cystitis on a similar board after being misdiagnosed for many years.

Again, thanks for your help!

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Re: Elgee (# 12)

Acupuncture is effective for neck pain but not the rest of the back. The reason is, there is a high concentration of nerves in the neck versus the lower back. Usually, it is nerve compression which brings on the pain. Nerve compression results in swelling which acupuncture resolves.

As a sufferer of intermittent back pain, I find back exercise as prescribed by Worksafe, British Columbia most effective. This shouldn't surprise anyone as muscle strengthening can replace joint problems. We see this especially in the knee when a damaged knee can be resuscitated to normal function just by exercise. An 82 year old woman, still competing in figure skating fractured her hip and tore her anterior cruciate ligament in her knee recovered fully without surgery just by muscle strengthening exercise. Of course she had open surgery on her hip.

The spinal column functions as one unit. Treatment by specialists focus on one point, the location of the cause of the pain, usually the pressure on a nerve. Relief by removing that pressure will fail because when the offending bone is removed, usually by laminectomy, although there is immediate relief causes the pressure to move to a different location. Almost without exception, after the surgery, the patient says he is pain-free but 2 or more years later is worse off than before. I am a retired FD and have only seen one recovery from all my referrals, where I treated the woman with acupuncture with relief of pain. However she still had objective signs of nerve compression so I sent her for surgery. The surgeon did not operate but inj. the prolapse of the disc with chymopapain.

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Re: tim111 (# 10)

Wow you been through a lot to! Yes I agree we live in some very difficult times & its uncalled for. Oh the price of my procedure was almost 5k! My insurance covered it all but 500. I couldn't believe how expensive and I think I need to go back to make sure I wasn't charged for being sedated because I refused to be relaxed or sedated, big mistake! And it seems to be divided on relief but I do know it damages bones if to many steroids are given. I don't have many back problems except when I was thrown from a car and whenever my horse ran over me. I think MRI showed herniated disc and something else I forget Bc the lupus alone has completely thrown me for a big surprise & everything else they seem to find. My 30s and soon 40 just hasn't been a lot of fun! You go from active and I could do gymnastics and I farm which is hard but it's a poultry and cattle company we own so I don't exactly get sick days! Then all of sudden your stopped! I still try to go but only 1 pain medicine I can take and everyone else can't take Bc they say it doesn't work but for me it helps some and then they took me off all NSAIDs and steroids oral because it made my stomach bleed. So yeah I'm ranting lol! I do wish that shot worked! I know the cold stuff felt wonderful!! Thanks for your reply and good luck to you!

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Re: Me (# 13)

Oh wow your poor back has had it !!! Yeah my leg hurt very bad & it was the leg I thought was good . I don't have a lot of back problems it's mostly the lupus which led to a number of things that's miserable ! Then I was just dx with a type of lymphoma which was just lympnopathy with B symptoms but today my blood work off or something & the lymphnodes are all swollen up but I will know more about that Thursday . I'm so glad you got some good results out of your injection !! That's great !! And yes everyone responds differently to things and unfortunately I didn't have a good experience! But maybe a lot of mine is having other things so I honestly don't know anymore but thank you for your positive input ! I hope you continue to progress under such terrible circumstances!!

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I would love to see somebody sued for making a lumbar steroid shot protocol before giving a prescription for pain medication. I’m sorry this happened to you. Don’t repeat the shot! I encourage you to call the doctor who gave the shot to let them know it didn’t work and now, you’d like your pain medication.

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Get thee to a great teaching hospital then get its top rheumatologist. I mean Hopkins, or Mass General, or Mayo Clinic or Cleveland Clinic or NYUMedical and the like. Don’t fool around with some local yokel.
The top two suggestions for lupus as generalities go: always get enough sleep(8 hours) and stay out of the sun, I.e. no sun bathing, cover up arms, legs, etc., wear sunblock and a hat when in the sun. Those are basic.

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Margonot (# 10) --

I've heard about that treatment . Unfortunately, with lupus it seems to have a mind of its own . It's like 6 different types of pain and odd sensations but knocking out one is a relief ! Especially whenever opiate therapy is being hammered and I found low dose opiate therapy (I can only tolerate one ) still works excellent for me but if increased it don't . So it's weird but you have to take a couple weeks then stop on days that's not bad and retake . I'm probably just different !! The stomach doesn't bleed as it did with all NSAIDs they gave me but I do stay active as much As my body will allow me and I have no choice because we have our own company to run and I don't get sick days !!! Thank you for the tip ! I'm sure others will find that useful too ! I have got good results with some oils like tea tree and massages . I set in jacuzzi at times for the heat . That's about all I know that works with lupus , and other things caused by it . Hopefully one day there will be a cure !

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Wow, what differences. I couldn't wait to see my doctor. I watched everything on the monitor. The only time it was uncomfortable was administering the meds..my leg hurt, showing he hit the right spot. My legs were numb for a few hours, like going to the dentist, and was sore the next morning. I also have DDD, spinal stenosis, Facet Disease, OA, "failed back syndrome" and had 1 surgery at l5, s1 and 6 spinal surgeries from s1-L2-3 cracked coxix and bottom vertebrae.

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I've had two, about 6 weeks apart. Neither one gave me any relief for my spinal stenosis/arthritis lower back pain. In fact, they had absolutely no effect, good or bad. My doctor is one of the best...he's even the orthopedic doctor for all the major sports teams in the nearby city, so great credentials. The shots just didn't work in my case.

Now I'm looking to give acupuncture a try. If that doesn't work after a fair trial, it'll be on to surgery, which is a last resort for me.

Sorry to hear you're having so many difficulties with your experience.

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I aways tell people with neck pain. Try acupuncture. Needling in the hand or back of the neck in 1-2 points is always effective. This sometimes relieves pain in other areas of the back where it can also be the cause. Needling on the inside, just above the ankle is effective. Results should be immediate within 30 minutes.

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Welcome to the dollars & cents of chronic pain suffers. I broke my back in 1990 and due to a screwed up surgeon that removed the wrong things out of me and just the nature of my injury I have had cp for many years. It took maybe 10 years to find the correct meds that gives me some comfort. Not many dr's want to write my script due to its long action and possibility of od. I have had several drs. retire, move, whatever. What I find is they ALL want to start you with those shots, last time I looked they cost more than 1200.00 per shot and most want to give you 3. So 3600.00 is a bit more than an office visit and a few pieces of paper. I had 11 and none of them helped. I had terrible reactions to them & I believe they made it worse for a few months. I never met anyone that benefited from them EXCEPT the dr. My experience is dr's are overly careful & rightfully so with the abuse and such. I would search for another dr. IF I were you, as it will only become worse and one day he will tell you he will not see you anymore for anyone of the hundreds of reasons they give. I've had GREAT doctors, so/so doctors, and a couple that made the visit feel like a drug deal. It's a very sad state we live in these days as the junkies have ruined a noble profession. It disgusts me to think someone spends all those years and money then has his or hers life destroyed because they tried to help someone's suffering. May our Lord bless you.

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I have had plenty of those injections. Mine came in sets of 3, once a week for 3 weeks. I had probably 5 sets of them. They helped me on the day of the injection, but after that I got no relief at all. And I found them so painful. The doctor wanted to do more, but I'm on worker's comp. and they wouldn't agree to it since they weren't of much help. But that's just me, maybe some one else had better luck. I wish you the best.

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