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Dilantin Level Is To High(34) Should Be (10-20).

Updated January 26, 2024
Gina Says:
Thu, January 19, 2017

I've been on Dilantin for many yrs. Started out taking 300mgs daily. As Dilantin was helping to prevent a seizure. My life has been put on hold. Tried Tegartol, lamictol(put me in a Grandmal Seizure). Had to go back to Dilantin. Was given generic Dilantin. Life seemed to be fine until I was so weak in the hospital with no Dilantin in my blood stream. Also, my potassium and calcium very low. Now it's medically necessary I take brand naned Dilantin300mg also Keppra(1000mg)/ Dilantin400mg w/Keppra1000mg. Alternating days
I'm taking med's as needed but, it's been a prob with levels to low or levels to high.
I am back to just 300mg Dilantin w/1000mg Keppra. Have to get levels repeated in a week. Is it me, the med's and or both? Having a seizure 1st started in a foster home . After having a seizure in state care I was in the hospital for 1-week. Nothing was found. I was quickly shifted out of state care. Been taking medicine since. Probably destroying my insides. "Never" have been able to fulfill my life dreams.

1 Reply

1
VerFree Says:
Fri, January 26, 2024

This is very common with some anti-seizure medications, and it is necessary for everyone taking them to have their levels checked regularly, and to have their dosage adjusted, as necessary. We are all different, and sometimes our bodies process medications at different rates.

The FDA does warn that Dilantin may cause side effects, such as nausea, dizziness, dry mouth, headache, and fatigue.

Ref: Dilantin Information

As to fulfilling your life's dreams, we are never too old, and you can still do so.

Are you on any other medications?

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