Desperate For Help, Only 21, Much Appreciated If I Had Any Advice From Anyone. (Top voted first)

I have a chronic eye disease called Uveitis.. My eye doctor wants to put me on a drug called CellCept.. He says he hopes to use CellCept to keep my eye stable.

The problem and fear that I have is that I am a Benzodiazepine and anti-depressant addict, I take them to go to sleep.. 10mg Diazepam and 30mg of Mirtazepine.
When they put me on Predisolone they said there wouldn't be any interaction, and there was. I was a total mess on Preds, maybe due to the combination. Couldn't function, couldn't walk, just a mess! Since coming off Preds my health has improved. I'm very worried about starting CellCept.. I'm worried about getting PML (Progressive multifocal leukoencephalopathy). I'm very fearful that maybe due to the fact I'm taking Diazepam and Mirtazepine that by taking CellCept I may end up dead. If anyone has any advice or know of anyone who has taking CellCept and sleep medication together with no problems it would be much appreciated with some in-sight. Thanks.

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Hello, i'm not sure if you will read this because you originally posted a couple of years ago. I am 28 and was diagnosed with Uveitis as well in both eyes 4 years ago. I have had two different injections, on methotrexate now and am switching to cellcept this week. I was wondering how it worked for you.
and putting out there that you are not alone, i think there are more of us out there than we know, even though the doctors always seem to say how 'rare' it is is somebody so young. I have a co-worker that has the same condition, in her 20's.
i am somewhat stable with combination i have now, however, the 'metho-fog' is too much after a year or so. I hope everything is going well.

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I was supposed to be part of a clinical trial for CellCept back in 2006. I had a complete workup at the NEI (National Eye Institute) in Bethesda. I came back to Houston and filled my Cellcept prescription. After taking ONE pill I broke out in hives. The NEI doctors told me not to take any more and sent me to a Retina Specialist in Houston, Texas. I have been with her for 10 years now. You have to at least TRY the cellcept. If it doesn't work you don't have to take it forever. It is also used for kidney transplant patients to prevent rejection. I have taken immuran, methotrexate injections, lots of steroids. You have to try different things until you find the right treatment for you. Your eyesight is precious and worth saving.

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