Daliresp Experience (Page 7)
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I have been on Daliresp for one month. I have noticed significant improvement in my lungs. By that I mean the mucus is gone, wheezing is gone. My lungs seem to be getting clear and do not feel as heavy as they did before I started taking it. I have had my bouts of depression, I am never hungry, which is a problem because I am underweight as it is. Just wondering if anyone else has had success with this drug. I was hoping to get off oxygen at some point. Don't know if I can achieve that or not.
Yes, I have discussed it with my doctor and as a result, we are monitoring my weight closely. So far, the good is outweighing the bad. It isn't too bad to be able to eat all that food and still maintain a constant weight. Although, I am trying to gain. Not good to eat alot of carbs though because they take more 02 to process, I guess. Guess we will just have to wait and see. Wish the insurance would pay for this drug. Very expensive!!
Thanks,
I don't have a lot of information on this medication, since it is very new to the U.S. market and we haven't had a lot of posts about it, either, for the same reason.
Have you tried discussing this with your doctor? They may have some ideas on how to safely increase your appetite and on whether or not your ever getting off of Oxygen is a possibility.
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