Daliresp Experience (Page 6) (Top voted first)

I have been on Daliresp for one month. I have noticed significant improvement in my lungs. By that I mean the mucus is gone, wheezing is gone. My lungs seem to be getting clear and do not feel as heavy as they did before I started taking it. I have had my bouts of depression, I am never hungry, which is a problem because I am underweight as it is. Just wondering if anyone else has had success with this drug. I was hoping to get off oxygen at some point. Don't know if I can achieve that or not.

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Severe Copd And Scarring Of Lungs. Given Daliresp 500 MCG and I Have Nauseau All Day Until I Go To Bed & Sleep. Been On It About A Month & The Nauseau Is Driving Me Crazy. Do Not Feel Like Eating Or Doing Anything. Am On Oxygen W/#2 Setting.Dr Has Even Put Me On Zophran For Nauseau, But That doesn't Help Either. Feel I Should Stop Daliresp, But Really don't Know What To Do. Also Have Erosive Gastritis And On Carafate, But The Nauseau Is Big Problem! Help Anyone?

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Took 1pill After 2 Days & I Had Insomnia Which I Had Not Had Before & Severe Nausea At 2:00 A.m. (Which I Had Never Had Nausea At Night BeFore)....Have Not Attempted To Take Another Daliresp Since Fri Night. Just don't Know What Else To Try As I Did See Improvement But 20 Consecutive Days Of Nausea Really Did Me In.... Use To Take In Mornings And After A Wk, Negan Taking At NigHt To Avoid Nausea, But It didn't Work. Any Suggestions? What About 1/2 Pill In A.m. & Other 1/2 In P.m. Hope you Can Give Suggestions!!

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I am having trouble with the same thing.
I'm a COPD Patient as well. I have major depression since 1992. The drug dalirest has been helping me to breathe better. I to have a loss of appetite. Can't afford to lose weight myself.
The side effects have became worse than I expected. While the medicine was really helping, the side effects out way a lot of other things. No sleeping. Lil eating, constantly body shaking. Rapid heart beats. I'm so miserable. I have a Great
Lung Dr. The medication was absolutely working great. I'm so upset that I won't be able to take it anymore. Sincerely Bigmamawhite

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Amen & Amen. The. Medicare D program is a joke
It knocked out a lot of my medications ..

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Please just hang in there. I had the same symptoms when I first started taking the drug, however; they eventually subside. I lost 20 pounds and weighed less than 100 pounds when I started. But...it is worth it not to be in the hospital every month with pneumonia. I have not been in the hospital for 3 years. If you can't eat, drink milk shakes, ice cream. I eat a lot of nuts and peanut butter and lots of high calorie, high protein snacks. It is worth it. Also, when I first started, I took a pill every other day until my body got used to them

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Hi, Insee you posted a long time ago. Just wondering on your outcome with Daliresp as I have just started taking it. Or anyone else that wants to answer.

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Am on it and very scared of the side affects but now my panic attack are worse not sure I want this

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How old are you? What kind of surgery did you have in FL? Thank you.

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I had previously taken daliresp with no side effects. Went off it for four months and resumed three days ago. I am experiencing nausea and would like to know (1) how long this side effect lasts and (2) what can I do to relieve the nausea?

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Yes .Medicaid pays but you have to get medical approval first

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Re: Shan (# 98)

asked your doctor about vitamin e 200 or 400 mg about three times a week it is very good for leg cramps

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Re: Lynn (# 13)

Thank you for saying to stick to it, I am having insomnia, runny nose and back ache but worth it as you say

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Re: Judy (# 107)

Well, I told you in May I was trying it again, but just too many side effects while trying to get well from the other problems I stopped after a week. But, hope springs eternal and I will try it again when my only problem is COPD.

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Re: Ronny (# 109)

Using Pepto Bismol for symptoms is great and relieves nausea.

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Can I just stop taking daliresp or do I have to wean off it? I have been taking it for several years and my doctor said I should stop taking it.

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I have been taking this drug for about 6 months. I have had very good results. I have had no flare ups at all during this time. I do use oxygen at night and an inhaler in the day, but I have improved noticeably. Now I am having trouble getting Medicare to pay for it. We just went on Medicare and our group insurance was much easier. I'm thinking of tahing a trip to Mexico (I live in Texas) to purchase it. Any thoughts? I have lost weight but I have made an effort to lose.

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Re: frank (# 3)

If it is going to work for you, you will know right away. I knew within a week. There is no in between. It does or it doesn't. I understand it works well only in about 10% of the people. Thank goodness it did for me. Now to pay for it. My insurance paid but Medicare is balking.

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Lynn (# 71)

I just got my first order of daliresp from canada. Planet Drugs Direct 3 months for $260.00. Have been ordering other medicines from them for years and have been very satisfied. The only negative is it takes a while to get it. I have taken it for 4 days and have been coughing up a lot of mucus. Sure hope it helps.

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Gas, horrible gas. It does help a lot with my breathing, but I can't take the pain of the gas. It feels like labor pains. I was hoping that side effect would go away, but I gave it 2 weeks and just couldn't stand it any longer. I stopped it for 3 days, and I felt much better. Just to test it, I took a pill yesterday evening. This morning, I'm in pain again. It would be ok if I could get rid of the gas, but even GasX doesn't help. I can't get it out of me. I'd be willing to expell it anywhere and everywhere, but it's stuck inside and my intestines are very sore. That's the only symptom I've had.

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Re: JC (# 118)

AARP's United healthcare supplement pays for daliresp

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