Considering Withdrawal Because Of Difficulty Getting Medications

I am a RSD patient that felt fortunate I only took 3 1/2 years to be diagnosed. For the last 8 years , in East Tn,I have been taking oxycontin and oxycodone, now some new law is passed and I can no longer get my Rx from my pain Dr, because they don't have the license required to be able to write Rx as large as my past (which I have become very use to & are working less than in pass) so I am sent to a clinic with this license. All if a sudden I am being treated like a hard core criminal trying to scam them, with my current MRI's and nerve diagnostics! I was photographed and then filmed after the ua stating my name and date of birth as I put urine in bag to be sent off to San Diego for a 16 panel analysis that cost $1,137, for the ua! The P.A. who I was assigned to, I couldn't tell you the color of her eyes as she never looked up from pharmacy monitor the entire time I was there. She said, "let me take a look at your surgery scars." and promptly flung my dress over my head! The result if UA came back correct, but decided to cut my oxycodone from 120mg to 45mg. I wake up drenched in sweat because I am starting to go through withdrawals. We went to pharmacy, they had to order 80mg and only had 30 oxyCodone. Ask if we could return Rx for smaller amt of 30's (these are not time released) refused. Told us to. "Keep in shopping." I am in real pain, but I don't even Dr and my husband is taking off of work to drive all over town to get a Rx! I feel like I should try to get off the meds for everyone else's benefit and attempt to find anything else that will help. I cannot image what I have had OT/PT, message therapy, tens units, swimming pool therapy, patches, and nerve blocks. Any suggestions? I am in East TN. I hate being treated this way and I hate the 6-10 days it takes to get my prescription filled, I really an at the end of my rope(no I don't want to kill myself, but there are others That come to mind, don't worry, I never would) this is a big ordeal and I never know I when or if I will get my pills filled. I got my 15 filled at a pharmacy as a "one time deal." Has anybody filled Rx's at a hospital? Any help would be appreciated!!

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That would be my suggestion, check which large hospitals in your area have a pharmacy, they will usually stock more of these types of medications than most smaller pharmacies.

This is a narcotic analgesic, so it has the potential to be habit forming and may cause side effects, such as nausea, dizziness, drowsiness, dry mouth and constipation.

Is there anything else I can help with?

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I was diognosed that I have PD in May 2011 and since then I have been on sinemet 100-25 initially three a day but since my PD is advancing I have moved to 6 a day about a year ago. Although I have been prescribed 6 a day I refused to take 6 and most days I am taking 5 a day or if my activities is going to be less I cut down further to 4. My experience with azilect and pexola were not good which I discontinued after taking just for about. 2 weeks each. Pixola affected my memory and azilect made me confused for most part of the day. So my current intake Of all the doses are 4 to 5 sinemet and 1 sinemet CR at bed time.: I gave up all the vitamin supplement. What I am observing I is I am maintaining a strict dietary and exercise regime (yoga for half our in the morning) strengthened further by meditation.

I have become a defacto vegetarian since the consumption of non veg with high protein nullifies the effect of sinemet. So that is my story. I am 72 years

This is not to say that I am getting but I am fighting the PD and slowing its advances. If one keep on increases the doses you are likely to hit a Road block sooner.

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Ihate8this --

I truly understand. I’ve been noticing that a lot of people are having problems with refills, a big decrease on meds. My pm upped me to 130 mg a day. That’s two 30 mg oxycontin and 5 10/325 oxycodone. She switch me over to a doctors asst. I’m in california. Then the asst tells me that I have to go down because of the new rules. I asked who’s rules? He replied, the insurance, cdc, the doctor in charge of the clinic. So I said how about one oxycontin in the morning with one oxycodone and the rest as needed? He was astounded that I would go so low, now 130 to 60 mg. Cdc says 90 mme for non cancer patients. Then I died 3 times at the clinic, dead for 17 minutes. As to being here writing this, they broke 3 ribs, I now have a pace/difibulator and throughout this I had to go on oxygen at night for 6 hrs. Everyone was on board, lung, heart, kidney, and my pcp said I was ok but the problem is nobody told the doctor that the clinic is under. So they get rid of the doctors asst and she discharged me from the pm program after 5 yrs of month to month, passed every u/a, never missed an appointment, never asked for early refills or anything to do with that other than what I’m suppose to do. Now they sent me to another pm, but I couldn’t find her in the physician's search which worried me. I checked across the usa. I finally asked a police friend of mine to find out who this was. Come to find out she’s a nurses practitioner working under a license of a doctor in another area of san diego.

The point of this is, the epidemic is due to quick turn over and now the pharmacist has the supposed authority of how and when they're going to give your medication, not what the doctor writes, and as for suicide, is another reason I started to see a physiotherapist because the pain is sometimes too much. They give me one norco 5/325, so at 1:30 pm I asked to change 60 me and now the nurse practitioner says 5 a day and still fighting. Only problem is election year, cdc has made it clear what are the norms of the guidelines. Oxycontin helped me for years. Never went up and now with dean having a 20% variance even if the pharmacist says no, it’s printed. Who’s the liar? Every day I wake up I read about another person having problems with medication. I’m sorry about your circumstances. I wish I could help and if in any way I can help I will. I know right now immigration is a hot topic but we shouldn’t lose sight of this. I’m not a drug addict or seeker, or seller, just a person that wants quality of life. I’m 60 with the diseases I have, not cancer, but after having 3 heart attacks and the fact that I was dead I believe a little quality of life is not bad. The last thing I’ve noticed is a lot of problems come from that area of tennessee, ohio and the midwest. Everything is about $$$$. My question is, what are our lives worth? It’s not healthcare, it’s about a doctor taking time to know the patient, keep files updated and communication with insurance and the pharmacy and believe in that thing they swore by before they became a doctor. I hope to hear from you or I’ll follow how you’re doing.

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