Coming Off Invega Sustenna (Page 7) (Top voted first)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

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Hi Carly. I was reading that invega changes your cortisol levels when it's high you have more prolactin which puts the weight on or only get a cortisol test ? It's a slow recovery, 300 days tomorrow, and still not right, but better than when I was on it. {edited for privacy}

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Hi Johnny
Are you saying you are off it 300 days tomorrow. And your still no better? I'll have my cortisol checked. I know that my prolactin is sky high. This has gotta be the worst. I want answers as to what warranted this under the mental health act. They never told me it was going to be this bad. This has gotta be the worst ever feeling. I can't even loose weight and I'm trying. Hormones are stuffed up. They have a lot to answer for.

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I'd rather be ill with something else than these side effects. They are just wrong.

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Carly, I honestly gained 5 lbs the month after discontinuing it on March 7 and have stayed the same weight since. But its so annoying cas I have cellulite on my ribs that I never had before, and man boobs too. I hope once the drug is out of our systems we can loose the weight. Are you still on Invega?

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4xdrew
I discontinued Invega in May I have put on 8kg and I need to loose it bad. I've recently lost about 2kg but it's hard loosing the rest of the weight about 6kg. It's the worst torturous medication I can't believe what it's done to me at all. I want it all to go away

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Carly,
Oh wow well atleast you've started loosing some weight. Did you take the injection or pill form?

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4xdrew. I took the injection and lost all feelings. For example, I had a bottle of wine tonight and I can't get drunk. The medication has numbed me that much.

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Carly,

Wow. Yeah when I drink I dont get drunk either. Its weird because I look s*** faced but my mind is sober. I even get hung over the next day!

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Re: Carly (# 116)

Hiya Carly. Are you feeling any better, lost any weight yet and did you get a cortisol test? I feel a bit better but I reckon recovery will take a year at least.

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Re: Johnny (# 117)

Hi Johnny no I'm not feeling any better. I feel hopeless. I'm down only 3kg I have another 6kg to go. It's really getting me down this weight thing.

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Re: Carly (# 118)

Hey but you're loosing weight atleast. I still haven't lost any. I dont know why. I have 3 months to go for the drug to be out of my system. Hopefully then I start loosing some fat.

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Re: Andrew (# 119)

Have you got three months until it's a year? Doesn't it take one year until it's out of your system? Try a low carb diet. Eggs and Bacon no bread no potatoes no carbohydrate. It's pretty much what I try to do. I can just fit my old jeans although I'd like to fit them better than now. I still have 6kg to go....until I'm my pre size. This drug has absolutely ruined my body.

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These drugs are a damn nightmare! They have taken me down and I'm over the side effects. Has anyone actually lost their weight after coming off Invega? If anyone has been successful I'd love to hear from you. I am finding my hormones have been stuffed up so much that moving this last 5kg is really hard.

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Re: Carly (# 120)

I have 3 months until its been 300 days. And I've just been watching my calories making sure I dont over eat.

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Re: Andrew (# 122)

300 days is a long time for it to be out of our system what are they thinking giving us this medication!!!! 300 days until it's out of my system has gotta be the worst of the worst. It's not fair!! Not fair at ALL I bet its not even out of our system in 300 days I bet its just caused permanent damage.

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Yeah seriously it is a long time but so far its been going by pretty fast for me. I can wait 3 more months. I look foward to actually getting drunk for Christmas!

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Re: Andrew (# 124)

Can u get drunk Andrew? I can't even get drunk and it's been four months since my last shot. I can drink two bottles of wine and not even get tipsy. I'm picking it's from the meds I can't wait till I can feel some relaxation from alcohol again.

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Re: Carly (# 125)

As of now I can not get drunk but I look forward to being able to by Christmas.

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Re: Andrew (# 126)

Christmas would be your 300 days but what if it's caused permanent damage in that area. I reckon it has caused permanent damage. I don't think it go's away. It just sits in your system. Let me know if you can actually get drunk at Xmas. My bet is you still won't be able to. If you still can't now. My 300 days isn't until May next year.

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Narshe81

It was 2013 you posted this are u feeling any better? It's been a few years now just wondering if you got thru this

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