Coming Off Invega Sustenna (Page 3) (Top voted first)

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Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

358 Replies (18 Pages)

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3

I can't promise it will get better but I can say I'm right there with you. Today is 12/6 and my last and only shot was 10/30. I have the same effects - anhedonia, constant depression, restlessness (has worn away now), no pleasure or interest in anything. I'm glad to find I'm not alone but it's only been like a month for me and I only had one shot. I was never like this before so I'm pretty sure it's the drug

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6

I'm on invega sustenna now but I'm stopping it doctor has me on a few other meds I'm hoping I'll be fine with just the other meds I have a lot of restlessness and nightmares every night from shot I'm up half the night and when I'm awake I can't sit still I've lost interest in everything but I still get pleasure from some small things like going for coffee with my friend and meditating which both help I was on the shot for sometime I was able to quit cannibus and alcohol and have relative success with progress but its to the point where I need off it and the doctor was going to ween me off it but I can't take another shot I can't Stan it anymore I don't want to wait six months to a year to see improvement plus I'm worried about the fatal side effects of the drug as my family genetic are pron to strokes. Its has been hard dealing with the effects of the drug but I have had some good days due to meditation also I've noticed that whenever I get progress with meditation my voices become more bareable and nicer but the restlessness is hiddering any further progress with the mwditation. But the one most important thing I did with surviving the mental illness was taking a warrior mind state not aggression toward people but the will to see it through till the end and see and meet each daily challenge as it comes and I've had so pretty bad days that I'm surprised I got through my mom and dad help me when they could which helped a lot they helped more with financial things though and making sure I was on my meds with talking to the doctors with me the last time I went off invega I was hospitalized because I didn't have the right pills as a back up not that I was taking them too so this time I'm going to keep taking my pills and I have two antiphycotics in pill form so I should be alright and I'm a lot more experienced with dealing with symptoms I'm hoping the doctor will accept this and work with me to keep Me afloat

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12

Hi. Its 2016. Do you feel better? My last shot was march 25 2016.... Did you get better?

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13

Hi I took invega sustenna. Are you feeling better after a year? I can't run more than a mile no more and I used to do 8.

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16

How many miles are you able to run? Also, when you say libido, do you mean your sex life...? How is your sex life? Is it back to normal? Are you able to get naturally aroused when you think of beautiful women without having to touch your genitals? I still have sexual issues and can't run.... Do you know why there have been some people who never recovered? I know a guy who got 1 year of inj's. and is not normal after 11 years.

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20

This is most horroble medication after benzos invented strait from the nazi death camps I have been off sustaona for 3 months and just starting to feel a bit better I was given it for benzo withdrawal by a useless non listening phychiatrist anyway looking forward to it gets out of my system it has been purr hell

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24

Thanx eduord, im like you. I was forced this poison on me by mental health nz while I was withdrawing off zopiclone sleeping pills. Im not psychotic. I had 5 shots of invega before they realized that no libido, no buzz of nicotine, alcohol, cannabis or anything. Does the recovery slowly come on or fast? I had my last shot 3 months ago. I dont know how they can market such s***. Any way thanx again.

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25

Hi all. My question is, has anyone lost weight while on or after quitting this drug? My experience was not horrible on this drug but i was worrying after reading some cases (i don't know if it's fake or not) that some people have not healed even after quitting this drug. I took 100mg for one year and at 100mg i used to have anhedonia, sexual dysfunction and weight gain. But after my dosage decreased to 50mg all anhedonia effects and sexual dysfunctions went away. I'm a really happy and healthy person now, but i couldn't lose any weight since it was decreased to 50 mg.

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26

How long until you get your emotions back?

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27

Joey. Did you recover? Did your libido come back?

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28

Did your period return. Are you menstruating? Do you feel back to normal now!

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29

Invega zombie or any other females who have taken invega sustenna, did you get your period back? I lost my period, have anhedonia no interest in anything! I had two shots, that is the initial dose and stopped taking any meds. It's been 5 months now since I stopped invega. If anyone has experienced similar effects please posts with updates.

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30

How are you doing now? My son just had the same inj.

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32

You mentioned running and that just gave me so much hope. 5 more months left!

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33

Hi guys, so happy I found this thread. I was treated for psychosis/schizophrenia for 14 years, and took an invega shot maybe about 8 times until March this year, i.e. month 4 of withdrawal for me. Feeling optimistic but often feel cold, lonely, flat mood. Didn't quit tobacco yet but that's imminent. Back for a shrink chat next August, looking forward to becoming sociable again, moving on. Had to drop almost everyone from my life these years but I am worth it and I wish them well. Alcohol and music help this week but solo boozing should leave. Feel so lucky to have my eyes opened like this, my fears are baseless. My problems are petty, details like finances and survivor guilt. Freedom or death :)

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34

Have you been able to loose weight now your off the drug

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35

They told me 4 to 5 half lives i feel way better than before but 6 to 8 thats a little steep

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36

Hello! I gained twenty pounds when I went on Invega Sustenna! I got to a point that I could not stand myself and so I took extreme measures and started on a restricted 1000 calorie diet. I walked for two hours five days a week. In 3 months, I lost 18.4 lbs! It is possible to lose weight. Now I am going off of the drug altogether. It has been one month since my last shot. Looking forward to getting my life back!

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38

It has been three years since your last inj. How are you doing? Did you have any withdrawal symptoms when you went off the inj.? How is life now? Did you get your period back? Do you have a passion for life again? Did you come back to yourself again? Would really appreciate your feedback!

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39

Did your prolactin levels normalised? I want to know as I'm trying diets but nothing works due to the high levels of prolactin in my bloodstream.

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