Coming Off Invega Sustenna (Page 16) (Top voted first)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

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Re: Sandh (# 292)

I had invega for 6months its been 9 months since coming off it and i have no dopamine and seretonin i am chronically and dangerously depressed. Very much so that i cant function anymore and very suicidal. This drug is killing me

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Re: a concern parent (# 294)

Hey Ruth, lovely to hear that she’s slowly getting better. Right, what matters is that she’s off the anti-psychotic meds, you've done really well :)

I have turmeric at home, Indians have it in their tea, I will give it a go. I need to start taking my supplements. These days I sleep around 10 hours a night and I’m not taking anything to fall asleep, my sleep has improved.

Thank you for all that you recommend, with this thread and your support I have thankfully made it to almost a year off.

Hope that you’re well :)

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Re: Carly (# 295)

Hey Carly, listen you will get better .. I’m reading a lot of people getting better and nearly recovering around 2 Years off. Look your almost close to a year off and you have one more year to go and then you can leave this experience behind.
Don’t lose hope, you’re not alone hun

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Johnny (# 267) --

Hi jhonny, how are you doing? Do you think you’ll recover 100% around 2 years off this crap. I’m at 10 months off and I can function but I’m in bed day in & day out. In other words a zombie. I don’t see s*** improving; even around a year and a half off no improvement with my memory. I don’t remember who I was before the inj's. I’ll be extremely happy if I recover at 2 years off.

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I’m only 10 months off injections not a year and half *

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Re: Sandh (# 298)

Hiya sandh. I'm 15 months off the poison and my memory is good, prolactin is normal, depression is getting less, still not much effect from alcohol or cannabis. Hopefully I will be better at month 18. My emotions are slowly coming back. No zombiness now anyway. I hope we all heal from this terrible drug.

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Re: Johnny (# 300)

Hey jhonny, the drugs make the brain work slow. That’s why people have less thoughts, no imagination, and their mind draws a blank... Is there any improvement in regards to that? Do you still feel slow or is your brain starting to pick up the pace? What a horrible drug. I will be a year off in a month and a half.

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Invega has cost me so much in such a short period of time. My last shot was in October '17. I've experienced severe anhedonia, loss of libido, cognitive impairment, and insomnia. I really think we all should get together and file for litigation against the makers of this medicine and the doctors who recommended us to take it.

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I’m a year off next month, no hope. I feel I have some sort of brain damage. I don’t feel I will be recovered in another year, the drug permanently alters your brain. I’m screwed for life, the doctors, health care system and my parents ruined my life, these people deserve to be behind the bars.

I’m not reading any success stories from this nightmare.

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Re: Sandh (# 304)

My parents ruined my life putting me in the hospital. They detained me for three months all because i thought my email and facebook had been hacked. They called it a delusional disorder. I wasn't a threat to myself or others. They drugged me with invega immediately. They detained me for so long i lost my 7 year job with a company car. It's been a year since this and i cant get out of bed....the drugs have made me overweight and i cant fit my clothes.... I am now unemployed and live under a thumb at my mums and im 38. I never had mental health issues before all this and now my life is screwed from hospitalization. It's wrong. They have devastated me and i have thought since these injections of ending my life. I dont have one anymore. I am now severely depressed and in poverty. This is all started from one panic attack.

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Get yourself winged off this medicine and give Dr. Opachich at Opachich Wellness Center a call at 904-387-4151. He's an all natural Dr. who works with all vitamins and he knows his stuff. He's excellent and he's here in jacksonville, FL at 1610 blanding blvd #2.

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Re: Carly (# 305)

Hey Carly I read the drug takes around two years to eliminate.. you’ll be better around 2 and half years off

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Re: Narshe81 (# 2)

Hi Narshe. I know exactly what you're going through. My 19 year old daughter is dealing with coming off invega cold turkey from 256 mg to 117 mg, Now she's completely off the Invega Sustenna. I research a whole lot about different medicine that i thought would help and finally i gave up and let a natural medicine Dr. take over. He is a herbalist and he knows his stuff, he's now got my daughter on an all natural vitamin regimen detoxing her internally at the same time. He hasn't got to her brain yet but she's slowly coming around even though she still talks to the voices at times but any way here's what she's taking: the brand name Standard Process is the vitamins she's on - they also have their own website where you can purchase these same exact vitamins online. She takes Vista 1 {2 per day} white in the am and black in the pm. They're in the same bottle. There's an energy one but this made my daughter flip out so I don't recommend this one or the beta food. These kinds of energy tablets are not good in her case. Then there's Prosynbiotic [3 per day] and then vista 2 [2 droppers per day] and when i see her having a hard time with her racing thoughts i give her 2 St. Johns Wort and sometimes a 5-htp which some people claim the 5-htp makes them aggressive but everybody's different.

For her, the St. Jonn's Wort puts my daughter in a happy calm state of mind to where her mind's not all over the place. I did experiment with B-6/B-12 but it was too much for her probably because the st john's wort calms her and the the b-6, and b-12 is an excitatory vitamin which gives you energy instantaneously. I guess that's not good when taking a calming vitamin like St johns wort. Also, Vitamin D-3 and Vitamin C are excellent, but you want to make sure your vitamins are not synthetic but all natural which the brand Standard Process or First Chapter usually are and there's others out there. There's also protein powders out there with all natural stuff in it like kale, beets, spinach, etc... Just read your labels and ingredients, plus no caffeine or sugar as this worsens things. Nuts and seeds are good and fruit. Try organic foods, not processed foods, exercise helps and watching inspirational shows on Tv even funny cartoons and music. Anyway, I just wanted to share this with you. One thing i do know for certain is we have to wing ourselves off these psychotic drugs they're distributing out to us. They're not good and they love keeping us blind to the real reality of these drugs. I know this much for certain so be aware. I love my daughter and it's been a living hell dealing with all the meds and side effects from these drugs. They really messed my daughter's head up. I just pray that she will continue to get better in about 6 more months or less with this new Dr's help.

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Re: Floyd (# 309)

Hey, thanks for writing. How many shots did you have? Are you taking any other meds? I've been a year off and had 4 shots of paliperidone. Have you taken antipsychotics long term or short term?

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Re: Sandh (# 310)

I had two shots. I am not on any medication anymore.

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Re: Floyd (# 311)

Thanks for reassuring the other sufferers. Is your memory still a blur? Did you get your imagination and thought process back? Can you live on your own now? What makes you say you have recovered, are you completely like before? I want to live on my own once this nightmare is over. Can people lead a normal life after these drugs? The drugs cause brain damage.

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Re: Sandh (# 301)

I dont feel slow but just a misetable unhappy feeling but getting better slowly its a fkd up drug alright how it got relised on the market ill never knowit just makes people worse not better the fda should be ashamed of themselves for giving janssens th ok arseholes maybe a lot of money involved id say anyway hope we all heal and get well again from this vile drug

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Re: Sandh (# 312)

Everything is back as it used to be. At least I think so. Don't worry. :)

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Re: Johnny (# 313)

I'm 13 months off .. the antipsychotic drugs make you depressed cause they deprive your dopamine and serotonin

My friend who's a pharmacist said I need to go on anti depressants or I'll forever be like this
I'm messed up cause of invega and there's no way I will take more drugs

Will things change can we for real recover.. will things go back to normal

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Re: Floyd (# 314)

Hey Floyd, did you get your imagination and memory back ? How do you spend your days . Thank you so much

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