Coming Off Invega Sustenna (Page 10) (Top voted first)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

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REPORT

I was on lithium and invega for 3 months from January to march 2017. Almost 8 months off. I read this article on psychiatric-drugs-risks stating that antipsychotics can cause brain damage, whereas some parts of the brain can slowly die & shrink. I'm scared. Will your daughter, I and other people who took these nasty drugs recover fully from them? Please someone show hope. It's scary.

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Re: Sandh (# 167)

Thank you do much she's slowly coming back to herself she's sleeping and the voices are just about all gone she's actually coherent and responsive and full of energy

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Re: Sandh (# 168)

She's doing much better the voices are just about gone she's finally coming back to herself and full of energy thank for listening to me I'm a very concerned parent of a 19 year old young lady who never deserved what she been through so thank you

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Guys, use of antipsychotic drugs shrink the brain & causes brain damage. Are we ever going to recover? Looks like we may be affected for a lifetime. This is so sad.

@jhonny - how are you doing? Any improvements?

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Ruth, I wish my parents were as caring as you are, she's lucky to have you and she will get through this. Your a one strong mom :)

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Re: Sandh (# 173)

I'm here if you ever need someone to talk to. Thanks. It is a lot to take on.

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Re: Ruth (# 169)

The 4000 mg is meant for the niacin you can start @250mg to start though

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You started her on niacin that's great, did it cause a flush, how is she doing on 250 mg ??

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Sandh,

Yes she did have a flush but that's normal. That just means the medicine is working. Plus it only lasts for a little while then it goes away.

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I will start niacin too. Hopefully, it reverses any brain shrinkage caused by invega. How much are you giving her? I read few people saying they are not the same person after the inj's... Antipsychotics changed them and their personalities. Do you think people can be permanently affected?

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Re: Sandh (# 180)

Hi sandh. I don't think it's permanent. I hope not anyway. I can mildly get drunk, still get brain fog sometimes, but getting better with time. It's a terrible drug. 376 days off now. I hope the dopamine receptors come back online soon. It's a slow process. Are you getting any better?

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Hi jhonny,

Not much improvements, yet I'm close to 8 months. I read few people saying they are not the same person anymore, it's sad. Get off mirtazapine, antidepressants cause brain damage!

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Re: Mima (# 59)

Hi mima. How did you know your son's dopamine was back? Can you get a blood test for it? How is your son now?

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Re: Edouard (# 183)

Did the medication change you or your personality, are you still the same person? Can a person recover in 1 year or does it take maybe a year and half? I only had 4 shots & I'm 8 months off. Thanks.

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How's everyone doing, tho I'm improving but it sucks I don't feel the same joy I used to feel when reading or doing activities

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Re: Sandh (# 180)

I wouldn't doubt it but I notice the niacin calm her down and put her in a better mood 250 mg is what she's on daily but sometimes twice a day just depends on how bad things are niacin is good for the nervous system and energy production plus it curves the schizophrenia but she does continue to talk to the voices but calmly and quietly sometimes she gets into this cleaning mode and wants to clean the whole house and then there's days where she wants to throw all her belongings and mine in the trash this last about 20/30 min before taking the niacin but overall she's always pasting around the house very Ansey can't sit still but overall does OK throughout the day just have to watch what she throws in the trash

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Re: Ruth (# 188)

Hi Ruth, I'm gonna start taking niacin, there's a book on niacin by dr abram hoffer you should read it.. that's good you only have her on 250 to 500 mg daily ... but with time increase it to cure schizophrenia
Dr abram hoffer recommended around 3000 daily.
I'm doing better but not too great, I loved dark chocolates and I used to get so happy after consuming chocolate preinvega. But now I don't get the same feeling, or get hyper
I'm trying to do the things I used to like, but I don't get the same joy
Jus getting through each day
Hope things change and I'm 100% soon

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Re: Sandh (# 189)

Thanks for the advice people like you give me hope thanks again ill do that

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Never lose hope :) just not a good time for us going through this but we will get through it, please don't put her back on meds
Stick with niacin and vitamin c
Around Christmas I will be 9 months off, 2017 wut a nightmare it was
I'm glad I'm away at home from the reach of these doctors, they inject people with these strong drugs like they are giving out candies to kids, I feel bad for people on these invega injections for years. There's probably thousands of them out there or even more

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Re: Sandh (# 177)

the niacin has been a life saver especially when she begins to get louder with the voice about 20-30 minutes after taking the niacin her mood goes from negative to positive

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