Coming Off Xarelto

Hello there. In Feb this year I developed shortness of breath and chest pains for 2 days, before I could travel to the city for medical help (I was on a project in a remote part of Kenya) The doctors said I had what was then diagnosed as Pulmonary Embolism, though no clots were seen after all scans. I was also diagnosed with Acute Pneumonia as well. I was admitted for 8 days and then put on 20mg Xarelto for 6 months. I am due to come off the medication in August. I was back running (5 km every morning) and to the gym from May, and apart from acne on my face I really have had no side effects. My Cardiologist says it is likely bacterial infection from Pneumonia is what triggered my condition, and we will really never know if there were clots in the first place, or if they got dissolved by the aggressive anti-coagulation treatment (Clexane) I was put on on admission to HDU. They did the scans in 24 hours after stabilizing me. I am looking forward to life without anti coagulant medication, though talk of risk of Stroke is quite unsettling (My Doctor has told me I shouldn't live my life looking over my shoulder for a stroke that will probably never manifest). I can only say my experience with Xarelto was pleasant (pardon the irony), and really hope they can develop an antidote soon, as the most scary reality about it is knowing at the back of your mind that you could seriously bleed if something happened.

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I am so very glad that you had a good experience with this medication and are doing so well. Has there been any change?

The NIH lists its typical side effects as possibly including nausea, dizziness, headache, increased risk of bleeding, and stomach irritation.

I also thank you for sharing your experience with others.

Your doctor is correct, the risk of such things is so small that it is not worth spending every waking minute worrying about the possibility.

Life is life, it is short for all of us, best to enjoy it and live it as fully as possible.

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