Ampyra's Working... Oh No, It Stopped =(

My level in this MS journey is - very weak and stiff on my left side of my body. I use a walker and wheelchair when going places. I started Ampyra about 3 months ago. Within 2 days I really started to feel it! I was able to turn over @ night in bed (I usually can't), I had more strength when I'd get up from a chair or sofa. Then about 3 weeks or so into starting Ampyra I had so many stressful situations happen in my life. Then I lost every good symptom relief I had. I know, I know... the drug works for some better than others.. blah, blah, blah. I just wanted to know if anyone out there can relate and if so, what was your outcome. Thanks =)

REPLY

REPORT

Ampyra is a very new medication, just recently approved by thee FDA, it contains the active ingredient Dalframpridine. It is most commonly used to help treat MS symptoms.

That said, yes, headaches are a common side effect, which should wear off as your body adjusts to the medication. If they don't or become severe, you should speak to your doctor.

Other side effects may include: nausea, insomnia, dizziness and back pain.

Read more here:

https:/­/­rxchat.com/­wiki/­Ampyra/­


As with any medication, it is successfully helping some people and not others.

There are several other posts on it, here are some links:

http:/­/­www.PrescriptionDrug-Info.com/­threads/­After-2-months-neurologist-takes-me-off-Ampyra-D77328.htm

http:/­/­www.PrescriptionDrug-Info.com/­threads/­Ampyra-and-balance-D77138.htm

Are there any other questions?

REPLY

Was this helpful? 0

I started taking Ampyra in May and had great results for about a month or so. Now it's Nov and I am wondering if I should stop for a few days and start again. The summer was very stressful, so I am wondering if that had anything to do with it.

REPLY

Was this helpful? 0

Oh I can relate to you. I am also extremely weak and stiff on my left side. Use a walker and a scooter when I go out. I have been on Ampyra for about 6 months and am ready to quit taking it. Do you know if it safe to just stop taking it cold turkey? I need to call the pharmacist. My Dr. wants me to be evaluated for a baclofen pump? I take oral Baclofen, but I think I need to take a larger dose to see a difference. The pump is not supposed to give you the side effects as the oral does. I have a young son so I don't want to have that tired feeling all the time either. Who knows??? MS is such a tough disease, bless you and good luck.

REPLY

Was this helpful? 0

I never had benefits for walking but I did with my energy level. I started on 5/1/10. However, after several months I noticed my walking got WORSE.I stayed on Ampyra because it helped me so much with fatigue, but that stopped a couple of months ago so I stopped totally 2 weeks ago. I'm having a tough time walking now. Before I stopped I wasn't using a cane - now I need it all the time. I think Ampyra made my walking much worse.

REPLY

Was this helpful? 0

Hi I felt the effect was less (or reduced) than when i started. I have Tysabari tomorrow so will see if that help in a combination.

REPLY

Was this helpful? 0

I took Cymbalta for about 10 years, and it seemed to help with a lot of my depression symptoms. I had to increase the do...

2 REPLIES

I was taking doxeo in for month now it has stop working why. ## Hello, Jean! How are you? Did you mean the antidepressan...

1 REPLY

I've been taking Saphris and it's been significantly helpful, but lately it seems like it's stopped working,...

1 REPLY

Hello, My husband has been depressed for almost 4 years. He can't sleep and and is angry all the time. He's had ...

1 REPLY

I am amazed to see the comments here in regard to ampyra...I was fraught with disappointment when i realized my expectat...

23 REPLIES

I started taking Toviaz to help with my frequent urination. It worked great for about 4 weeks but then it lost its effec...

2 REPLIES

I have been on the 145 dose of Linzess for several years now, and it was like a miracle drug. No side effects, and for t...

32 REPLIES

Been on this for 2 years and was doing fine but now depressive symptoms back I can function at work but then spend weeke...

4 REPLIES

3.5 months ago I was having serious anxiety issues and depression. I was prescribed 5mg of lexapro and honestly saw resu...

3 REPLIES

I am finishing up my fourth week on contrave. The first two weeks were pretty brutal with all of the terrible side effec...

3 REPLIES