Amprya Stopped Working (Page 2)
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I am amazed to see the comments here in regard to ampyra...I was fraught with disappointment when i realized my expectations were way too high. I have been on ampyra for 4 months... similarly as others i saw an an improvement right away, as did my bf,,,,needless to say we were so excited....then 2/3 weeks later i started feeling nausea during day & evening... dizziness as well... my balance was already affected my ms...now became worse....I was weaker than usual......take gabapentin (antispasciity) and helps me sleep....now i insomnia ...I hate ampyra i was so excited to start this...i have had negative effects of all 3. copaxen ribif avonex......now this...the only one that i liked was steroids (solumedrol) when i had a relapse...: ) i have a weak left leg gait and balance problems...numbness in hands...,, I decided today I am off ampyra. No more false hopes, I am so sick of ms....

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Gosh...reading the 2 posts really hit me. I am a RRMSer for about 4yrs on Rebif and Ampyra for approx 2 months. I thought I saw improvement but as of late I have been much much worse but I have been thinking that it was due to the Mississippi heat of 100+ but you two made me realize that I could be having the side effects of the drug. Hmmm. Something to think about. MS stinks bad and I wish you all the best and God Bless!!!

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I am on Avonex now, 2 years going, I have progressive with no relapsing,I am or was excited about Ampyra, in fact tuesday I am going to get on it, now i'm scared,I just took some Gabapen 800 an hour ago,I FEEL FINE....been on Pyclobenzaorine, Amantadine,you name it, i'll come back here and post after I see what happens
Mike.

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When I was reading your post I was amazed that someone else had the exact same experience with Ampyra that I had. I've had ms for 17 yrs., also been on all of the drugs, now on rebif, and hoped that I found something to help me. I've been on Ampryrs for about a month and like you, I had very high hopes, too high as I have come to find out. In the beginning, it was great. I felt like I was walking normally again. My limp seemed to go away and my balance was much better. On the third day, other people even noticed the improvement. I was excited because I almost stopped taking it after the dizziness and nausea the first two days. Well, like you, my improvement was short-lived and now I think I am even worse than before. I continue to have occasional dizziness and nausea, my limp is back and even more pronounce than before, I am more tired during the day yet have insomnia at night. Oh, and in addition, I am now also being treated for a UTI. I've read other posts where people have said it worked great, then stopped, but then started again. I'm now debating if I should stop taking Ampyra or give it a little more time. As hopeful and optimistic that as I try to be, also hate ms...I it sucks.

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