Amprya Stopped Working (Page 2)

I am amazed to see the comments here in regard to ampyra...I was fraught with disappointment when i realized my expectations were way too high. I have been on ampyra for 4 months... similarly as others i saw an an improvement right away, as did my bf,,,,needless to say we were so excited....then 2/3 weeks later i started feeling nausea during day & evening... dizziness as well... my balance was already affected my ms...now became worse....I was weaker than usual......take gabapentin (antispasciity) and helps me sleep....now i insomnia ...I hate ampyra i was so excited to start this...i have had negative effects of all 3. copaxen ribif avonex......now this...the only one that i liked was steroids (solumedrol) when i had a relapse...: ) i have a weak left leg gait and balance problems...numbness in hands...,, I decided today I am off ampyra. No more false hopes, I am so sick of ms....

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I just started taking Amprya & have noticed a little more problems with balance. Will this side effect go away or will my balance keep getting worse? otherwise I have no side effects.

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Are you still taking Amprya? It is now August 2011 and am thinking about starting it but after reading many blogs, am getting nervous. Please let me know how you are doing.

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hang in there "daddy's girl". I am sorry you arer struggling, and that your hopes for ampyra seem to be dashed. I too have trouble w/ my gait- right leg, also drop-foot w/ right foot, and trouble writing and typing- right hand. oveer these 15 years w/ ms, I have had so many struggles, from my side of my face palsying, to numbness, deafness in one ear, optic neuritis 3 times (including double optic neuritis). I stopped ampyra b/c it was only the second alopathic medication I had ever taken (b/f that I had done much acupuncture, taken homeopathy (which I still do), even have been going to healer: John M. Carroll, and to tell you the truth, I was not at all comfortable taking it- w/ the side-effects I've read about and the experiences people have had w/ it becoming uneffective. I am still on LDN (low dose naltraxone) which I started 1/1/11, and I haven't had anything new since starting (thank God!) so I am sticking w/ it. it doesn't have the fear factor for me, and no relapses. you might want to look into LDN, seeing as other disease modifying meds are ineffective or not tolerated. best of luck to you- and to all of us challenged on this difficult journey. -Y

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