Accutane Long Term Side Effects (Page 47)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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i took it when i was about 17 i am now 21 years old and i have terrible stomach problems now i feel like my stomach is digesting itself and pass bowels at least 3 times a day, i usually vomit every morning the doctors also act like its a mystery to me!

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Its nothing but a lie, i took accutane for 9 months and it did clear up my acne i took it when i was 17, i am now 21 and i get acne still just like i used to but only now i have severe stomach problems and problems with my bowels. i wish to God i would have never taken this accutane crap. its nothing but a lie it destroyed my life im no longer a healthy person, dont take it!

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I used Accutane, 9 years ago, for 7 months. I had bloody noses, cracked cheeks, chin, and lips, no sex drive, and was tired all of the time. Now, for the last 7 years, I have been in horrible pain and discomfort. I showed no real side affects directly affect, my doctor said I was good to know. Well, being in and out of the hospital, at least 1-3 times a month for the 6 of the last 7 years, with no insurance was tough. I finally got some insurance a little over a year ago, and started seeing an internal specialist. I officially, have been diagnosed with diverticulosis and Ulcerative Colitis, there is also something very wrong with my nerves, as well as having to stay home and close to a stupid bathroom at all the time! I am a 25 year old mother of a 2 1/2 year old, and I just had to file for disability. That s not right. I sooo wish I could go to work making coffee again, but unfortunately, even just the smell, makes my stomach hurt. I am at a total loss, on what to do. My medical bills are stacking up and I can't really work. I really want to sue accutane for my pain and suffering, but since it has been more than 2 years since I took it, there is a statute of limitations. I didn't even know what was wrong with me until this last year! I guess for some people they may say it works, but I did to right after I took it. People were no longer gonna call me pizza face! Yeah right! my acne came back about 2 years later and I started feeling a whole lot of pain. AFTERWARDS: I can't eat 99% of food, I have constant stomach pains, constant diarrhea, powdered ear wax, HORRIBLE gas pains every day, had to have my gall bladder removed, Bloody bathroom visits, Constant kidney pains, nerve pains, numb hands, 6 colonoscopies and 2 endoscopies in 1 year, I am seriously depressed and have no sex drive. DO NOT TAKE IT! No matter how much you want your skin to be cleared, it is not worth the possibility of condemning yourself to forever pain and possibly shortening your life. I know you have probably tried a bazillion over-the-counter acne products, but trust me just try a bazillion and 1 instead.

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Kelso,
I am very sorry to hear of your health situation. Hopefully with medicare, you may get some health insurance that can help you in the future. There are other story's on here of your medical condition. Please stay strong and know that others care about you.

From the heart,
Scott

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I know it may sound horrible, but have a colonoscopy as soon as you can! I cannot stress this enough! The sooner they can find your problems, the better chance you have of getting them under control. I fully agree and believe accutane was created by the devil! My life is ruined and I am so depressed I do not know what to do. Also, start a lawsuit now!!!!!

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Bro needs help,
I am a 25 year old female, who took it, but I gave birth to an autistic son. And with no energy and being severly depressed all of the time, I have a really hard time keeping up with him. I am wondering if my use of accutane did this to him?

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@kelso, that is very unfortunate, but always remember that you need to keep strong. Where are you located? If you are located in the USA, I am sure there are people or places that are capable of helping you take care of your child. I am not saying that you give her up, please dont get me wrong. But I am saying maybe you need to find advice from places that can help you deal with taking care of your child. You may not realize it now but since you yourself feel tired and don't know what to do maybe you can read or inquire about how to better help your child. It is not just yourself you need to take care of but also maybe your childs future. Your child would need to learn to take care of themselves also God forbid something happens to you. Sorry for sounding like a pessimist but I just know that we need to be strong and think of worse case scenario and learn to deal with whatever is in front of us. STAY POSITIVE. Im sure there is light at the end of the rainbow.

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@ kelso. sorry oops i meant light at the end of the tunnel.

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I think I've commented here before.
22 years old, male.
Took the drug when I was 15.

I do YouTube videos, mostly surrounding my side effects from this drug.
Youtube.com/FireYourDoctor is where to go if you're interested.

I want to encourage people to pick up a video camera/webcam and do a video response to my video 'Why Accutane needs to be banned'.

We're screwed it seems.
Maybe our only purpose is to protect other people from a similar fate.

Please make a video and help me spread the word.

For those in the UK, a documentary will air in November this year on BBC3.

I'm in it, and it focuses mainly on Accutane, as well as acne.

I hope to God (who I find it hard to believe in now) that the documentary gets as much attention as possible.

I can't put up with this for much longer.
This is just not right.

I wish I could make those responsible feel even half of the terror I've felt. I would punish them all, nice and slowly if given half a chance.

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SAME PROBLEM FACED BY ME .I LIST 10 KGS ALL FATS BUT IT HASNT STOPPED EVEN I STOPPED ACCUTANE 3 MONTHS BACK.I M STILL LOOSING WEIGHT ,HYPERTHYRODISM & FREQENT BOWEL MOVEMENTS.PLS SHARE THE REMEDY DONE. I M IN DESPERATE NEED OF HELP.PLS HELP

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Avinash,
Just read your post. You came to the right place for others to share their experiences with post Accutane side effects. Can you tell us a little more about your symptoms? We understand some side effects of this medication can be hard on one's nerves. Please know you can post anything you want and someone will try to help you with what has worked for them. Please relax, from my own experience, the more information I find out and talk to others, the more I understand that I am not alone. If you are overwhelmed with emotional or physical pain, always remember you can go to the ER at your local hospital or make an appointment with your doctor and let them know your symptoms. Have you read about the Candida diet? It helps some. Please leave a post back with more info on your condition and what any Doctors may be telling you. Thanks
Hope your feeling better today,
Scott

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I took accutane going into high school before the findings about the stomach problems were published. While on it, I developed Raynaud's Syndrome and was diagnosed with Mixed connective tissue disease. While one member in my family has Raynaud's and another has Fibromyalgia, they are extended family so I wonder if accutane is linked to the development of my condition. I went from being a swimmer competing in junior olympics to a tired overweight coed. During my sophomore year of high school I developed severe stomach problems. I basically went to school everyday feeling extremely nauseas and I would get really bad gas that caused it to feel like my intestines were inside twisting around. I had to leave school on several occasions. I also had gi issues. It came and went so there were times when I was okay and times when I wasn't. I couldn't eat anything sugary for the longest time or I would be bedridden with severe nausea and stomach pain. I tested negative for celiac and have had two endoscopies, a swallow test (they took x-rays while I swallowed food), and a test involving swallowing a radioactive hard boiled egg and laying under a machine for an hour and a half while the machine recorded me digesting it. I went through a period of remission and now it is back in full force. Some days I have a bowel movement up to three or four times and if I don't go right away I get severe stomach pain and feel nauseas. I took two sips of beer the other night and my stomach started hurting severely and I almost passed out. Some days it feels like my entire system is backed up and I can't eat because it will trigger my gag reflex. I'm supposed to be enjoying college but I can't and its affecting my grades. I keep having to repeat classes because I spend most of my time focusing on not having to run to the bathroom or yak up my last meal. There's a chance I may not even be able to go to vet school if I can't get my grades up. I'm seeing a gi doctor soon and once I get a definitive diagnosis I plan to sue for pain and suffering and wasted tuition money.

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I forgot to add that I later on asked my dermatologist if accutane could have caused my autoimmune disease and stomach problems and she essentially told me that was bs and proceeded to try and get me to take it two more times. The next time it was time for me to supposedly go on it, I was given a packet that mentioned the stomach problems...something that was not mentioned in the original packet I received the first time I took it! I refused and switched dermatologists.

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Fed up Coed,
Sorry to hear of your health problems. If you have time, please read some post on here. Your symptoms sound so familiar with so many others. There are some good ideas for dieting that claims to help out with stomach issues. I wish I could help more......stay strong!
Wishing you the best

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Thanks Scott! I've been looking through past posts and am going to try some of the tips people have given. I did notice a ton of other people here have the same symptoms and its so wrong that we weren't properly warned about the stomach problems til after we had taken the drug.

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i took accutang and suffered from many of the same side effects as everyone else and still am.. unless you are dyeing no one cares..Good luck!!!

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I took acutane the summer between 8th and 9th grade. It made my skin very dry, especially my face. I kept chapstick and eye drops always on hand. It completely cleared my acne. I was able to play baseball through college without joint side effects from acne or any type of problems with my musculoskeletal system (other than injuries from baseball). I'm 26 now and my hips, knees, and neck ache from time to time. These problems as well as others posted may be from accutane or they may be just side effects from being older than I was in high school. I'm happy I took the drug.

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Hi scott, yes after taking accutane I developed auto immune problems.my bowel nn digestive system has changed.right from day one on accutane I observed frequent bowel movements still I conti as my acne was severe.but after 6 months on drug I lost 10 kg, now still having abnormal frequent biwel movements, diagnosed with thyroid problem problem in joints I m not able to play cricket.I m going to one of the best doctors in india.but still they r not fully agreed that it is due to accutane.its three months after I stopped the drug but no change in body.it is very bad n life thretning drug.should be banned.I believe more side effects observed in US n canada but in india it don't.hence pls share the remediea asap.I need help as I m loosing nutrients,cpnfidence n life.pls help by replying directly. india do not have good laws like FDA. We have to do it by own money

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I am 1 month post accutane and every time i eat most foods I would have severe pain in the stomach. Iv also had an increase in vellus hair all over my body and very bad depression.

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Dear Elise,
Thanks for your reply. Sorry to hear about your stomach pains. Seems this drug can create many bowel problems. If you haven't please follow up with your Primary Care Physician if possible. Maybe he can run some test and help your mood some. Hope your feeling better !
Scott

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