Accutane Long Term Side Effects (Page 31) (Top voted first)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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REPORT

Queenie and " This drug should never be approved", Thank you for your coments. Please know that you have educated others that may possibly want to take this drug.

To all,
Please keep your comments coming. Remember there are people on this post that will gladly reply to your comments, if need be. We are here for you !

Thanks !
Scott

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I'm a 27 y/o male and took accutane when I was 13. About 3 years ago I started to experience very odd and unexplainable upper respiratory problems myself. I've been looking for a cure or just a simple understanding of the chronic sinus and throat problems I've been having and not a single doctor or specialist has any idea what it could be. I've done every test known to man and still nothing. You're literally the first person I've heard list "Upper Respiratory Infections" as a major issues in the wake of taking accutane. Can you please tell me more about your situation and symptoms?

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Organic Virgin Coconut Oil is doing wonders. Also Jojoba too. There is too many natural things out there to help the skin so please don't use drugs like Accutane etc..that only does more damage even after it's use. I know first hand. I have so many health problems from using Accutane. I too had to have a total hysterectomy from the damage this drug caused. There isn't one organ in my body that haven't been affected by it. Some one told me to try this.... http://www.clayremedies.com/Clay_Therapy_Resources.html

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My daughter took the generic of Accutane for 5 months when she was 12 1/2. The dermatologist thought it was the perfect drug for her acne. He had prescribed it for many, many years to many people including his nurses. He thought the drug was quite safe. I read several blogs about the drug that told of the symptoms that only lasted while taking the drug. Your blog had not started.
It seemed it was as safe as any other treatment. Now my daughter is 14. She was just in the hospital for severe abdominal pain. She has had several scans and blood tests. For the last three weeks, she has spent the majority of the day sleeping because “it hurts less.†The doctors are unable to determine what is wrong. Next week she will have the colonoscopy and endoscopy. I am sitting here crying and wondering how this could happen. I found your site. If the pain ends up being from Accutane, how have some of you managed it.
The gastroenterologist did not think it was from Accutane. Is there some reading material I can give him so he can read up on the issues (even though he should know them)?
Thanks

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Thank you! My parents did the same for me! I have a lot of the side effects and it sucks!! But my face looks amazing and I would do it again in a heart beat! Thank you for posting this..it NEEDED to be said!

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Is your daughter in the U.S.? I am mad they would think such a dangerous drug was okay for a 12yr old. (Though this drug should be off the market for anyone)

Many have developed gastro problems w/ no answer, only to be told they have IBS. Have you tried changing her diet? Many have become intolerant to many foods after taking Accutane. Such as gluten intolerance, Lactose intolerance etc... Many have developed ulcers thoart issues.

As for literature there is a lot out there and It doesn't suprise me that the docs deny its accutane, though it clearly states in the prescrption information.

http:/­/­www.gene.com/­gene/­products/­information/­accutane/­pdf/­pi.pdf

I will post some links to studies if I can find them, is there anyother testing she has had?

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jan2,
I am sorry to hear what you and your daughter are going through. Have been were you are at. Please have faith, my prayers are with you. There is allot of information on here. It is easy to be overwhelmed. There is a 65 page report, I believe the line is around number 25 post on here from a "Ncc". It was wrote by a very intelligent person that also took Accutane and fell ill to some side effects. I thought I had a link, but I can't find it. I have taken all 65 pages of this report and handed directly to my doctors including the Cleveland Clinic. I am very surprised that Accutane was giving to your daughter at only 12 years old. Did you sign a form in the doctors office called " The Pledge ". It is my understanding in the United States that a girl has to be on the pill for a few months before this drug can be prescribed. I was told my son had to be 14 years old to take Accutane or any of its generic's. he was 14 when he was prescribed it. I am curious to hear back from you over this. Best Wishes
From the Heart,
Scott
From he Heart,
scott

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jan2,
A follow up fom my last email. said "The Pledge". I should have wrote" I Pledge ", which is a booklet of papers the dermatoligist has youfill out before you can be prescribed Accutane or its generics.

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I am so so sorry to hear about your daughter.

It IS ACCUTANE. I was a healthy person before this and was going to be in the OLYMPICS, when it stole my life from me.

The pain in my stomach is less since going gluten free. I follow Dr. Osborne on his website http:/­/­www.glutenfreesociety.org He's ahead of others in his knowledge of how to eat this way. I think that this medicine does damage to the gut, just my guess and brings on food allergies.

Tell the doctors to check her for Celiac Disease or gluten problems. And if it comes up negative, don't rule it out. Try her on gluten free foods, no process gluten free foods those are a joke. And if she improves :) then your most likely on the right track.

Accutane still causes damage in the body years and years after using it. I know it's happen to me and many others. My cousin died from this drug. :(

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Sorry to hear this, before you say a word to him, get all your medical records first from him once you have them in your hands then say something and make sure he notes that and get that too from him. Good luck! My medical records were destroyed! My doctor covered his bleep.. He had my folder and NOTHING inside it. UGH. The only thing proving I took this drug was the company doing survey's on what people thought of the drugs before the lawsuits. I GOT PLAYED. I had NO IDEA my health problems were from this drug.

OH and keep all medicine evidence that you took it. Get your prints out from the pharmacy. Keep it for life you may need it down the road, and I hope not.

Start doing what you can to get it out of your body. I mentioned the clay in a blog here. I need to order it and try it. I have heard some good results from it, lets all hope for a miracle. My cousin died from this drug. It took her hearing and other parts of her organs :( She died young and left behind two young kids and a husband that really loved her.

Good luck!

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I am not seeing my reply to you, just in case it doesn't go through. Have them check her for Celiac Disease or gluten problems. "Allergies to foods". The drug seems to stay in the body and continue to do damage. I think it attacks the gut. I have had the same problems. I would suggest only one site glutenfreesociety.org. Dr. Osborne is ahead of many doctors putting awareness out there about the glutens causing stomach problems and other health problems serious ones. So if they say she has IBS or Colitis etc...a gluten free (no process foods) diet would be best.

Keep us posted please and best of luck. I am so glad for sites like this.

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Look at the grains in your diet, eating alot of wheat products causes alot of problems

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Good question! I have been laughed at with many or ignored by others or the worst they get upset over me thinking this. Cover-up? When I went to get my records from my doctor that prescribe Accutane he destroyed them. Of course this is common practice for many doctors I think they are suppose to keep them for 7 years by law. All that they had was my folder. This was the time all the lawsuits were coming out about it. I do believe they were told to destroy records or they did so they wouldn't be sued. People will sue everyone involved. Good luck though getting a doctor to ever admit this. My paperwork for the lawyer on a possible Accutane lawsuit ask what doctor said your symptoms were related to Accutane. I said NO DOCTOR. OR you kidding me! That is a joke and if someone's doctor ever says that get it in writing that is all you have in the end when it comes to maybe proving any of this.

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for Jan2, please google "leaky gut syndrome" also do a search on Amazon for the same item, you will find alot of answers I have finally found mine after 7 yrs. of searching. If it was my child I would not have all those tests done, the doc will not know what to do no matter what is found.

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For some reason my reply to Jan posted her name v/s mine. Anyway, Happy New Year to everyone! Hoping 2011 is better.

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Thank You And Happy New Year To You And Everyone Else Here.

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are you working for the drug companies? why would you blantantly discount others opinions. yes you are correct your not a doctor so keep your oppinion to yourself. people dont just randomly loose hair in thier early twenties and people dont start having digestive problems out of the blue. its obviously directly connected to accutane. for god sakes its a brain cancer drug that also happens to kill off acne well if it "happens" to do that what else do you think it "happens" to do. Well how about deformed or miscarraged babies, your insensative go back to your cush job at big pharma and promote some other poison. just remmember people god gave us everything we need in the form of natural plants to fix whatever ailments you may have. Humans have done nothing but created methods of profit and they dont care about your well being or best intrests just thier bottom line. sry bout bad spelin it be late

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your the hate monger this stuff ruins lives. im guessing you also support drinking and driving, as well as crack/meth use for pregnant women

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Hi everyone, I just wanted to update you all on my experience just incase anyone else has experienced the same. So i stopped taking accutane after 3 months when i first discovered this board.... and started to read about the side effects long term. I had to go back to my dermatologist and i explained everything i had read online and all he long term side effects. he denied it all, he said there are no long term side effects, he said he hadnt heard of all the successful law suits about IBS against roche in the USA (IBS is not even written as a side effect on the info i was given!). Whilst telling him all the current side effects i had (eye twitching, back pain, dry skin, loss of hair, headaches, etc) he continued to write my next prescription and told me just to get an eye test done. I asked him what exactly accutane does to the body to get rid of acne, he said 'we dont know exactly it just removes a lot of the oil'. As I told him the symptoms i'd read about i was practically crying= he just kept denying it and then asked me if i was having any 'mental' issues. I was surprised he couldnt understand why i'd be upset by the possibility of what my future may now hold. He also suggested 3 times in this 10minute 'chat' that i should see a psychiatrist. It was the most scary thing ever.... he just wanted to palm me off onto someone else. I dont think he was even listening to me. Furthermore he contacted my GP to suggest again seeing a psychiatrist. Its scary when you hear a doctor suggest such a thing. I actually walked out doubting myself. I took print-outs of what i'd read to my GP, who was more understanding. But why dont these doctors know anything about a drug they prescribe to people day in-day out?? even if they dont believe it- they should know about every angle and offer complete advice, not just the one side. I left my dermatologists feeling very vulnerable and scared about what was going to happen next. Which I was right about- but luckily my GP agreed with me I didnt need to see a psychiatrist. Has anyone else found their derms unwilling to listen, etc?? Melissa xx

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@MLS

YES, It's happen to me! Many doctors including dermatologists have acted this way with me. But don't forget you know yourself best. They all say see a psychiatrist, and it's not a psychiatrist you need it's a good doctor that listens and believes in YOU and will speak the truth. I have had a couple since say OH YES and know about Accutane, they are out there keep searching. There are some doctors out there that know the truth, but will not admit to it, for many reasons. Like I say get copies of all your records so it proves you were on Accutane that will help you in the long run. Get copies from the pharmacies. Always keep your records, I learn this the HARD WAY!

I am going to try the clay that I mentioned in an earlier blog on here. In fact, off to order it now before I forget again. Another problem memory loss. Oh and coconut oil has been known to be good for a 101 things, check it out on the internet there is good and bad I have read, but all my friends are on it and looking good (younger). Some people are allergic to it. We can heal our skin naturally we don't need drugs like Accutane. Best wishes, and keep us posted on here. :)

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