Accutane Long Term Side Effects (Page 24)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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I believe that it might have been deleted by the moderators. Here it is again hopefully: Readb86 @ gmail.com

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Hi Read B & everyone else. For privacy reasons we generally discourage anybody from posting their email address on our public forums. We also forbid individuals who are trying to sell products from posting their contact details on our site.

We have since approved your latest post in which you have shared that information (since it appears that you want to), but if you change your mind please contact us and we will promptly take it down.

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amazing i found this, after going to my gp for 7 years (im 29 now) complaing that i had 0 libido or sex drive, slight depression and also telling him i think the long course of accutane i had when aroung 18 for acne was to do with it, in all those years he never listened or referred me, now loads of money later, many visits to specialist, blood tests etc im still in search but hope to be on the right track now. even on courses of hcg to see if my testes are producing enough testosterone, i feel accutane has shut down or burnt out something, either a gland, a signal channel from my brain to testes i dont know its all self search but we will see, how many others have libido, sex drive issues?

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hi everyone,,, i did decide to carry on taking my medicine and ive had it for about 9 days now, and its working but the stiffness in my neck is really bad,, i've decided to stop taking it,,,
i think there must be something else to take,, ive had erythramycin and it worked a treat ,, but you get used to it,, there must be something else,,,
my fella loves me and my skin as they are now so sod it if people don't like my skin tough,,, but i aint taking this anymore ! :)

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Glad to hear your not taking it anymore... My son took it for 8 weeks. He is in pain in muscles & joints and bones.. Not everyone is body can handle the effects of this drug. Drink plenty of water or Green tea to help get rid of the toxins you now have in your body.

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Hi there, i am just wondering which country you are in? I have seen in USA there are plenty of lawyers in this field and knowledge of this drug and its effects.

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I wish i had typed the right thing when my son started this horrible medication Isotretinoin. I only typed side effects of and only found what was in the leaflet, which does not give any long term effects. It seems they haven't done any long term studies on the effects. Why the Hell aren't they listening to people instead of saying its just a coincidence... It Stinks !!

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Mitch,
My name is Scott and I started this post/thread on 5/28/2009. I can't believe two years have passed. By the way, I live in the U.S.
Here is a short 2 year update on my son. His joint pain has progressed with no help or explanations from doctors or specialist. We are off this week AGAIN to search for answers and hope some sort of relief of his ankle/joint/tendon pain. He has been complaining for over 3 years and more over the last 6 months about an unexplained health issue in his ankle. Just by kicking a soccer ball a few times, he can’t lift his foot off the ground. He claims there is no pain, but he can’t lift his leg straight up, off the ground. He has just shared with me this year while in college, at times he has to drag this leg to get started in the morning and seems to improve through the day. He has had many x-rays and a MRI and doctor claimed 3 years ago his ligaments where weak or stretched. Hopefully this week, another MRI or x-ray to compare to ones done in 2008 may give us a better explanation. The continued joint pain and back pain are daily factors his has to deal with. He continues to have off and on problems with his G I track and take’s ThreeLac which seems to help him.
For those looking for legal advice, to my knowledge the only lawyers that will take your case are if you have Irritable Bowel Disease, Crohns Disease or Colitis. Also Proctitis.
I have also heard recently that most lawyers are after the maker of Accutane, Roche Pharmaceuticals. I know someone that has a proven case in court, BUT it was with isotretinoin , Sotret, Claravis, or Amnesteem. If anyone knows of a law firm taking cases with Amnesteem, please contact me ASAP.
Thanks,
Scott

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Hi Scott.Wow i'm horrified to hear that 3 yrs after and nothing has come to light. It seems this drug has a lot to answer for. It seems it switches off parts of the brain.It is very complex. My son was offered strong pain relief which he refused due to the side effects. Also he decided it will not cure the effects but may cause more problems.. Maybe you could try Aloe plant to gently smear any painful area as it is a natural pain relief. Maybe you could check out : run from the cure on the net.There are a couple of short videos showing what goes on in the brain and body. It is not something i have ever done but it certainly makes you think.
I still cannot believe they give people Chemotherapy drugs for Acne especially children, Shame on them.
All the people that have been affected by Generic drugs should have their voices heard..
Good Luck and thankyou for sharing your unfortunate dilema .
Best Wishes for your son and God Bless

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Thanks Scott for starting this site. If I hear of anything I will pass it on and so sorry to hear your sons story. I have what you described here and much more. I have a lawyer on my case, but I will NOT get my hopes up for anything because I have heard of people winning and NOT getting their money. We are fighting the evils that put this medicine out there, they have more power then those lawyers.

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Hi Scott, i was just wondering what is your sons ethnic origin. Or do you know if he has or is a carrier of Thalasaemia. As i am trying to discover if this genetic blood trait could have been a link to the side effects...
Just a thought..

Thanks

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Hey Mitch,
My son has a family ancestry from Ireland/German/English/American Indian background. have never studied ThalasaemiaI. I will have to look into it. Thank You for your kind thoughts.
Scott

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I took accutane 10 yrs ago for about 18mo 40mg four days a week. I hurt my back while I was taking accutane and quit taking the medication because I could not travel to the appts. The doctor that prescribed the medication followed me closely. I was having periods where I was unable to control my bowels. I begain taking extra clothes if I had to go anywhere. I still have to carry extra clothes.I was twenty nine years old when I started taking this medication and was very active. I ran over twenty miles every week. My body fat was 17%. My life came to stop! I have always had very long hair I was scooping it out in hand fulls after I would bathe. I lost down to 88lbs. I had a MRI done when I hurt my back, only thing abnormal was bulging disc at t-11 and t-12. I had torn a muscle from my si joint. I also started having uncontrolable muscle spasms. It was about three yrs later all of a sudden I was so tired. Just to do normal activity was a thing of the past. Went to family doctor and explained how tired I felt, so he ordered blood test my B-12 level was barely over a hundred. I begain taking B-12 injections at this time. I had never heard of someone as young as I was taking B-12 injections. My age was about 33yrs old, I was always complaining of shoulder pain and joint pain. One night the pain was unbearable went to urgent care clinic where I had X-rays done and they also ordered MRI. When I rc'd the results of the MRI I was shocked. I had herniation at t-11 and t-12 with loose body extending almost 10mm below the disc. Lateral disc herniation to the right of the midline at t-12-L-1 with impingement upon the nerve root.I also have considerable impingement upon the thecal sac. involving the nerve root. I have degenerative disc disease with spondylosis. bulging disc in cervical spine. In my lumbar spine disc desiccation at L5-S-1 with small central disc protrusion. These test were done in 2009. I have seen several doctors about my back and usually the injury I have at t-11 and t-12 is from some sort of injury. When my back first was hurt while taking accutane all I had was bulging disc. The doctor I see now for my back says MRI s of my back look like a seventy to eighty yr old women. I have been DX with thyriod disease and DM as well. After so many years of suffering from being incont. of stool on myself finally had a EGD done and Colon examed my GI doctor. The ulcers I have are so bad the GI doctor thought I had barrets esophagus which when test came back in just severe ulcers. I have to take a medication twice a day for this now. The results of the colonoscopy IBS and diverticulious thru out my intire colon and from what I understand only 10% of people over age 40 have this condition. I suffer everyday from pain either my colon, joints, or stomach and even my back as well as horrible nausea at times. I even have to take a heart medication! It was 10yrs ago not all the side effects of this medication was not known! I have a 18 yr old suffers from acne just few weeks ago a doctor wanted to put him on accutane and he told them no way. I was horrified at the thought he could of been placed on this medication. Vanity vs health? My health is ruined I truely believe accutane caused all the problems I have. I understand that getting older causes problems BUT NOT THIS MANY. I truely believe I will not live to be a old women because I took this medication. I can not imagine how I will feel in 10 even 20 more yrs. Considering just last week was told by medical professional need to change what I do at work. I really think more research should of been done by the FDA and accutane should not be on the market! Oh yeah it cleared up my ance ,but ruined my health!

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Some of you people worry me, blaming all your problems on Accutane. Can you honestly tell me you believe you wouldn't have a single problem if you hadn't taken Accutane? I know a woman who took Accutane well over ten years ago, and she has absolutely nothing wrong with her. Yet, I know numerous other people who have tons of problems, such as arthritis, which causes them so much pain daily, IBS and they've had to have numerous surgery. Remember, they haven't taken a single dose of Accutane. All you people are foolish to think your problems are all because of Accutane, sure, some probably are, but they can't all be.

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kl.. well if i could let you swap places with my teenager whom was perfectly well before taking this poison i would .. how does a teenager get pain all over their body whilst taking a drug only 5-6 weeks in. They should have to prove it is not the drug when all blood tests come back normal.
Accutane/ Isotretinoin is POISON !!!

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@KL Go and get some good old Chemo medicine for yourself and take it for a long period of time and then tell me how you are doing over the years keeping me updated on all the details. But seriously, YOU are too ignorant to talk so do us all a favor go away!

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hi all,,, still got really really stiff neck,, find it hard to drive,, i only took it for 9 days ! ,NO WAY am i taking this drug again, i rang the hospital and my docs at the hospital said over the phone i have one of two options, stop taking it and wait for my appointment at hospital or reduce the dose to 2o mg,hmmmmm,, think i'll forget that and not take anything,

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Blaze.. I really feel for you. seeing my boy like he is has made me think twice about generic medication... If you are in USA you may have more of a chance of suing these people.. Its an outrage what is happening to people just so these companies can get rich from others misery.... Try eat well & drink plenty of water... and maybe look at natural foods and herbs to help.
Best wishes for your recovery.....

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Blaze,
Thank you for sharing your own personal story. You have already helped someone that has read this post and educated them on the possibilities of what ACCUTANE, AMNESTEEM,CLARAVIS, SOTRET and ISOTRETINOIN have done.

The FDA must be responsible for turning their heads on what these rugs are doing to the future leaders of our next generation etc. As we know, most people working for the FDA take turns working for back and forth from the FDA to a Pharmaceutical company. This procedure needs to stop! More independent research needs to be done over longer periods of time. Only we can change things. We must stay pro-active and knowledgeable and let others know what is going on here by sharing our personal stories and taking time to call the FDA and ask them why one of the top 5 most dangerous drugs noted by the FDA is still on the market since 1982-1984 to present with no changes even with their warning labels to its too late.

Sincerely,
Scott

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I think maybe we are looking for answers in the wrong place.. After all this is a Chemotherapy drug, so maybe that is where some of the answers lie and not looking @ side effects of Accutane/ Isotretinoin etc. For example maybe try "joint pain post chemo therapy". I guess the term is i'm like a dog with a bone. I cannot let this go. I seem to have discovered that Cardiomyopathy can be caused by chemo but the effects can be worse dependant on your Genes. Wish i had studied this when i was younger. :)

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