Accutane And Seizures (Page 2)

I took roaccutane in 1996 and again in 1997. Each time was for around 6 months. I had a 6 minute tonic clonic seizure in August 2011 and another one in January 2012. I'm wondering whether this is related, although it is a big gap. Has anyone else developed seizures 15 years or so after finishing roaccutane?

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Truth is that 1 in 26 will be diagnosed with epilepsy at some point in their lifetime while another 1 in 10 will have only one seizure during their lifetime. But again, all of these cases are similar: seizures after taking accutane.

I took accutane twice as a teen (1996-1998), and was then diagnosed with epilepsy in 2004. The fact that there was such a long gap in between taking accutane and having my first noticeable seizure, I never thought there was a connection. But now I see so many people have also experienced seizures after taking accutane, either shortly after the drug regimen was completed or several years later.

I once brought this up to a dermatologist. She, too, simply waived it off. But if there are so many cases of seizures and accutane, why isn't there a warning. Even Keppra has the warning of anger issues; maybe accutane should have a warning label too.

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Same here - I took Accutane in the year 2000. I was in high school. No way I could've been aware enough to think about long term consequences. I had depression, cracked lips, burnt skin and all the other common side effects. Last year, in 2016 I had a grand mal seizure out of nowhere. 12 minutes long and 3 days in the ER. Every diagnostic came back normal. 1 month later I had my second grand mal seizure. Turns out, what I thought was a speech problem from 2013-2016 were small seizures that caused a few seconds of slurred speech. I have no family history and no diagnostic that has come back abnormal. Does anyone know if there are evaluations being done to find out if there is a link between this drug and epilepsy?

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My husband also suffers seizures and took Accutane in his teens
He also tied the two together
I didn't till I found this thread

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my granddaughter was on accutane for 2 1/2 months and is now suffering muscle twitches and fell (he legs just gave out) she got up and sat in a chair but the twitches remain. They are testing her for Juvenal myoclinic epilespy, is there anyway that this could just go away? How long dies this drug take to get out of your system. She is a very active 17 year old, I pray that this don't effect her life much. she is so smart got 2 years free college, this breaks my heart!! She didn't understand all the consequences of this terrible drug. It needs to be taken off the market!!!

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Re: lauren (# 18)

Have you had anymore seizures? This just happened to my son on Christmas after being on 30 mg for 23 days.

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I went through 2 courses of Acutane when I was in my late 20s and early 30s. I had cystic acne from my teens and had gone through all the treatments without any improvement. I was prescribed Acutane very soon after FDA approval for acne. I had my first seizure at 60 years old. I am now 65 and claiming my MEDICARE benefits. As I was considering my medical history, it occurred to me that there might be a connection between my Acutane treatment and my later seizures.

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Re: lauren (# 18)

Hello. Your story is the same like my son. How are you now? I have a question. Can you write back?

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Re: nanna shell (# 24)

How is your granddaughter now? I would love to know.

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Re: nanna shell (# 24)

Hello. Can you tell me how your grandaughter is now. Does she still have to take anti-seizure meds? I woild love to know. Thank you.

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Re: Robert (# 1)

My son had a seizure around 9 years after finishing a course of accutane. He is now an epileptic and has to take drugs to prevent further seizures. He was 17 when he took the drug. He was perfectly healthy before taking it.
The drug has ruined his life. This drug should be banned.

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Re: Sue (# 6)

Almost 10 years later my son is still having focal seizures and the occasional grand mal despite being fully medicated with anti convulsants. Recently he found that going for a run brings on a tonic clonic.
I had hoped that over time his brain would heal itself but the damage seems permanent. I struggle with the fact that we suggested that this horrible drug could be used to treat his Acne. I had reservations at the time but I didn't listen to my gut. Now I feel guilty that I've caused this dreadful outcome that he has to live with for the rest of his life. It's so unfair.

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