42mg Of Hydromorphone & Contin 2xday For 5 Years, Dr Died, Now What?
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I have chronic & debilating pain EVERYWHERE & after giving me Demerol & 240 percocet every 14 days, a pain management centre (after I PASSES "no drug seeking behavior, dr shopping or issues w/ random blood evaluations proving I only took what was RX'ed, don't drink/use rec drugs) but he is 86 yrs old & ill: expected to die & left me 2 find another Dr- after 8 yrs w/ him (Ambulatory Internal Medicine Specialist) & birth to 30 when my Dr retired w/ this referral- b4 I got sick, I was 13 yrs into my social work career in jails, nothing slowed me down ever. I didn't believe in FIBROMYALGIA but an arthritis specialist did diagnostics & said it's so severe, I scored all but one symptom (based on his exams/evaluations) I cannot do 85% of what I did, & when I throw up my meds for a few days- I think withdrawal starts- pain is UNBEARABLE- why won't a Dr commit to either continuing the best plan the makes pain bearable or take me, safely wean me & find out himself what happens (Im only 38, not obese, etc but pain has made my BP so high I've had a stroke/faint, etc- its needed!) We tried ALL other protocals, herbal medicine, even antidepressants (after many psych evaluations show I only have PTSD- which was known by age 14, I take 1mg Ativan PRN & 45mg of Temazapam to sleep ( sleep studies have been done- I AM a clinical insomniac but got my Honours diploma & worked 12 hr shifts & was routinely promoted- I know when/why/how 2 use them & REGARDLESS of being on Dilaudid & Gravol via IV, amaze staff nothing makes me "dopey/drugged"- I don't get a "high" feeling & turned down increases to a 24 hr steady flow of morphine so WHEN "this pain" becomes worse, there's still a hope a dose increase could help. WHY- when it is SO clear I am using these meds as RX'ed, reluctantly & as the last resort, are Dr's refusing me as a patient or automatically say "I won't prescribe narcotics" without examining me, reading my files, interviewing me or my pharmacist (have only EVER used one) I can die from this drastic of forced withdrawal (pams have been daily since age 21) cold turkey, & as my MOM is a mentally ill alcoholic & drug abuser (the reason I became an SW) & its clear I am NOT "sketchy"- why am I dealing with this?! I have primary custody of my FOUR children despite my ex husband showing up with a lawyer & unlimited $ (I own our home, he lives w/ his parents & hoarded $ to try that stunt- the OCL & CAS interrogated me, my husband of 7 yrs- my Dr, his Dr, kids teachers & Dr & after 2.5 years & submitting my entire medical file STILL deemed me better AS I AM NOW than their teacher bio father- I think that should make things pretty clear, esp as I am the one who asked the OCL (Ontario Children's Lawyers) to check my past & present, & the kids-& they very thoroughly did, recommending the Judge keep ME as sole decision maker 4 all the kids physical AND emotional needs & continue living w/ me in our home. HOW CAN DOCTORS INSIST I TAKE THESE MEDS FOR YEARS- & overnight, no one will take me? HELP!!! I don't want to die from the next stroke or withdrawals like I'm facing in aSIX DAYS??? "Do no harm" is their Hippocratic oath, WHAT SHOULD I DO? Thanks & sorry 4 the length :(
6 Replies
Re: Steph (# 1)
Remember, in some states the ER must report this to the DEA & or your state. My cousin’s a hospital doctor.
I am taking 6mg hydromorph contin 3 times a day for Ankylosing Spondalytis for 5 years. My pain increases as I age. What is this in one equivalents. My doctor wants to reduce dosage but I can barely manage with my pain. Is this considered a high dose?
Jade, I'm so glad you found a caring doctor who will help. It is scarey being without a doctor knowing withdrawal will kick in. I pray this new doc works out well for you.
I am so glad to hear that you found a Doctor who could help you. I could not imagine they withdraw and pain you felt from being off of your medication. Every doctor I see I take all my pill bottles with me so they can read the label and see what I'm on, who prescribed it and the pharmacy phone and pharmacist who filled the scripts' information. And the pharmacy can print out a copy of all the drugs I was ever on. I give them a month and year and any Doctor can see when and what different drugs I was on, for how long, when I switched meds, and any new scripts out. Having all that information handy made it certain that I wasn't drug seeking and that I already had a prescribed mini pharmacy of my own! This really helped when I would go to the ER for migraines when nothing would help and il feel like my head was about to explode, but I think a lot of that was stress. Since I was declared disabled I get headaches but not really bad ones.
I was given a Dr he would see me IMMEDIATELY & was so scared & SO sick/in massive withdrawal. Dr G. Sinton in Thorold agreed 2 see me- his staff were so kind- he is no fool, but 4 me that worked out well. He QUICKLY gave me all needed meds to alleviate the withdrawals, & was tactful but explained I was so ill as I was enduring what a opiate addict that went cold turkey would (but also have chronic pain due to FMS. I appreciated the candor, & at the same time, his "bedside manner" was kind. Upon reading reviews online, I noted extremes when rating him, either patients loved him or opening disliked him. Further reading showed that patients who were sick or had a painful injury rated all him highly, while those with many complaints that are used by drug seeking patients were divided; some accused him of being condescending or intolerant (many of these patients named powerful & addictive narcotics as "all that I can take, but he refused & makes me suffer!" while the rest said he was thorough, explored narcotic alternatives or tried low doses, but adjusted as necessary"- that would likely represent drug seeking Dr "shoppers" angry he was no push over nor did he create narcotic dependance if other less problematic meds solved the issue) but my assessment is he acts like a responsible Dr & "does no harm" RX'ing addictive meds when other options are available, & he is not a push over easily manipulated- but IS aware & will treat patients with "controversial" diagnosis'- like FMS- I'm GLAD he doesn't let his patients dictate their treatment, & find him very aware of difficult illnesses. I think becoming his patient is the best thing to happen since my life was dumped upside down & think the advice to go to the ER was great advice (I was too scared of being labelled a junkie but made myself scary sick- I found great advice here; I was just very lucky I got a new permanent GP!
Take all your medicine bottles to the ER and have them refer you to another pain mgmt clinic in another town or something. They don't want you in withdrawal or seizing on their watch, no Dr.'s prescribe strong pain pills, it has to be a pain mgmt dr. They will see what you are on from the blood work they take, good luck!!!
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