2016 Cdc Guidelines For Prescribing Opioids For Chronic Pain (Page 2)

Updated

Hey all fellow patients out there, did you know the CDC has published a list of their proposed 2016 guidelines for doctors who prescribe opioids for chronic pain? That includes oxycodone, lortab, percocet, hydrocodone, opana, suboxone, morphine, and any other drug that has an opiate ingredient in it that so many of us count on to lead normal lives! This affects all of us and the comment period ends on January 13 2016! That's about a week from now! You know the doctors are going to have to follow whatever federal rules pass so if you are worried that you might not get the care you need please go to the gov web site for the office of the Federal Register and submit your comments to them before it's too late! "The Centers for Disease Control and Prevention (CDC) in the Department of Health and Human Services (HHS) announces the opening of a docket to obtain public comment on the draft CDC Guideline for Prescribing Opioids for Chronic Pain (Guideline). The Guideline provides recommendations regarding initiation or continuation of opioids for chronic pain; opioid selection, dosage, duration, follow-up, and discontinuation; and assessment of risk and addressing harms of opioid use. The Guideline is intended to be used by primary care providers (e.g., family physicians or internists) who are treating patients with chronic pain (i.e., pain lasting longer than 3 months or past the time of normal tissue healing) in outpatient settings." https://federalregister.gov/a/2015-31375 Editor's note: Please note that the above statement "You know the doctors are going to have to follow whatever federal rules pass" is technically correct but may be misleading in this case because the CDC draft says that it is "not a federal regulation" and that "adherence to the Guideline will be voluntary." Editor's note # 2: The title for this discussion thread has been updated to reflect the topic most effectively.

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21

Lovely! I get through in a "listen only" format. I wanted to talk about how most of the overdoeses I am familiar with are suicides due to insufficient pain relief and the there shouldnt be UA's or pill counts unless a patient has lied to the pharmacy or tried to get early refills.

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22

I suffer fibromyalga, oseto and rheumatoid arthritis, plantar flashitis, migraines, sciatica. I'm in pain 24/7 and the pain meds help me move around and do things, like make myself something to eat, to actually survive, otherwise I would be bed ridden. I was bed ridden when I was not taking any kind of pain meds when I started getting this illness back in 2005, I've tried other resources first, like antidepressants, which did not help at all and made me a zombie. I don't over use my pain medications, cause I don't need too. I know how to take them, cause it depends on my condition. I don't understand why we and the doctors should be punished for helping us with our pain and trying to live a quality life instead of crying in bed with pain, it's horrible. I wish these counselors could feel what I go thru without these pain meds to help me move around! I don't think it's a right decision to punish us or the doctors that are trying to help us live a more quality life. The people that do abuse the pain medication should not be able to take them. Doctors monitor what, when and how we take our medication. Please don't take our pain meds away from us or punish us for what other people do when they abuse the medication. My life we'll be spent in bed, suffering a lot of physical pain.

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23

CDC should be lined up in front of ISIS n put to death for all their murders. At least they wont be left in long suffuring like they have done to pts. with incurable painful end of live conditions

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24

Spyz, this conference call was Not for comments on that.
"The conference call will focus on the background for development of the CDC Guideline for Prescribing Opioids for Chronic Pain (Guideline) and the formation of the Prescribing Opioids for Chronic Pain Workgroup (Opioid Guideline Workgroup).

Public comments will be accepted, but only related to the formation of the Opioid Guideline Workgroup."

If we want our comments to be taken seriously, we need to make them in the right place and the right time. We also need to be educated about what we say. For example, there are No Laws requiring a dr to do drug screens, pills counts and/or pain contracts. They are recommended, but not required, it is up to each dr if he wants to do any, all or some. Making comments about suicides due to people not having their pain meds will only be viewed as chronic pain patients being unstable or/and addicted to the point that they chose suicide. No studies have been done regarding chronic pain patients committing suicide because they don't have their pain meds. All anyone knows is what they have been told, heard or read. We want them to take the comments seriously.

MedsChat, Thank you for moving my reply. I though the threads should be merged.

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25

Helene

I hear ya. I had polio as an infant but it wasn't diagnosed until I was drafted in 1970. I was accepted and thought I was off to Vietnam so I went out on a mini bucket list trip. When I got back they called me back down to see another doctor. He examined me and said the Army would never take me and said "you have polio" From the look on my face he jumped in and said "not now but when you were a child." My parents confirmed all this when I got home. They let it go because I would have been sorta black listed they said. I asked how I got around and the said by scooting around on my rear end using my right leg to pull myself around. I still do that to this day if I'm on the floor and need to reach a tool if I'm working on something. I led a normal life but was weak and limped along as best I could. Doctors would tell me to "use it or lose it" so I did just that working in an auto factory for the big3. About 35yrs after having had polio muscle atrophy set in big time and I ended up in braces. Had to retire 6mo. before my 30yrs were in and a 45k dollar buy out. It's been downhill little by little every year pain wise. Now doctors tell me to "preserve what I have left" and not to do anything to hurt myself. All these doctors, pharmacists, CDC people want me to suffer to the max because of this generation of drug abusers need to be saved. As a taxpayer I've been helping these folks along for 38yrs. If they can take control of the pain they want me to have they should at least offer me the choice of being put down painlessly like an injured family pet.

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26

Hello beagle, sorry to hear about your what happened at the end of your work days , and right before your retirement age , you know , the problem with this pain medication problem that the government wants to control is all about control and money and don't forget the pharmaceutical companies, I don't think the government cares about our pain or whatever condition we have and never did , they we'll do what ever they can to pay off their lobbyists, pharmaceutical and top notch people government monies and use this pain medication as a loop hole , they did this before , this is not new , we keep hearing about opioid abuse for years , and now somebody feels they have to do something, family doctors really cannot give a good amount of pain meds to help people like us, the best thing to do is go to a pain specialist, they deal with people suffering pain for life , I found that out the first time the government did this a few years ago , if you read , it says primary doctors not pain specialist, I think we still have hope if we see that specialist, I do , and I hope that life gets better for you Beagle !

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27

I'm sorry, yeah I realized that after the fact--but when will they go over the current media cover up on suicides that they keep referring to as 'overdoses due to doctors over-prescribing opiates'?

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28

WOW! I'm trying to read the quod lines and comments already posted and it's all very confusing. I don't understand many of the acronyms and the percentages and ratios make my head spin. Since an accident in 2000, numbers throw me for a loop. I can't even play cards anymore. Anyway, the comments are in two groups: pain patients who admit these guidelines will make things worse and parents whose kids became addicts and blame the doctors. Perhaps post surgery doctors should reconsider handing opiates out to young people or maybe THEIR PARENTS should give them their pills duh! I noticed many of the patients in any cohort were > 70 years old! Why was I included in a trial? Where do they get these folks from who prove the exact opposite to what we know to be true? Sign me up! Let the cdc pay for my time and meds for a couple years and I will prove them wrong on every level!

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29

Thanks for the info on the conference, however, I waited on hold twice for over 30 minutes each time?! What's up with that?

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30

Spyz, if you're referring to Clinical Drug Trials, I have put a link below. I don't know what drug trials may be going on now, if any, for pain medications. When the Trial is for something that is an Opiate, your dr usually, if not always, has to recommend you. When you volunteer for a Clinical Drug Trial you have to go by their rules. For example, with many of the trials they use a placebo and the actual medication. You don't know if you receive the placebo or the actual medication for sure. You agree to not take any other medications without getting their approval Before taking it. For obvious reasons if you're in a trial for a pain med and you don't get any relief from what you're given, you can't take something else for your pain. Studies have age criteria, diagnosis criteria, etc.

Clinical Trials.gov-
https:/­/­clinicaltrials.gov/­

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31

"i ended up going to a pain management dr. over 70 miles from where i live. he gave me percocet to last until an appt to get an inj. in my back, which thank the goddess was immediate pain relief,"

Nancy did he give you cortisone? I was offered this by one of my doctors. He didn't say cortisone but I assume that's what he meant. Do they shoot this right into your spine? That has to be painful and I wonder how long did the pain stop? My back is so sore in the morning an it's hard to get out of bed.

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32

I belong to a Cronic pain group and I know that this is being done all across our country. My DR told me in September 8 2016 that I no longer had a doctor she said she would not lose her Lisence for me or anyother patient I never asked that of my DR I suffer failed back syndrome 4 back 2 neck and more shots in my back that never helped me at all. The pain my old Dr knew I live in does not matter to our wonderful DEA I didn't know they were DRs

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33

Yes, Thank you Roy for starting this current Thread Re:CDCs 2016 Opioid guidelines for Drs. I Pray they listen and change these insane rules so people who are in severe pain can get the meds we need.

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34

Robert Raper, do you mind sharing which pain meds you were on and the milligram ?

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35

To whom this may concern I'm trying to understand of which were trying to say that no longer that they're going to be serving us people with chronic pain narcotics for our pain? How can this happen?. Also I'm curious to know on 13 January is this how it's going to stop what exactly is going to be going on after the 13th please any details it be helpful thank you

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36

I also posted this info on another thread. Here is a big concern on comments on the page, this is suppose to be comments for treatment for chronic pain guidelines only.. Not the addicts page. those need to be ruled out.. I watched a documentary they had out and really hit me.. most over us most likely over 30 for sure. the kids and the parents addiction groups are being treated way off. No wonder. First of all the kids all had been in massive accidents.. now think back when you were 16 or maybe 18 most kids that age think they know it all and at that age too good for our own good, and later if only I listened to my elders... could you imagine a kids mindset when they are treated like a druggie just to get the medicine for the pain they suffer? now think about being that young... "screw the system I will go elsewhere why not???" It's the society and family not understanding it around them that think 2 pills are a lot?? no wonder the kids are running. I am glad I had good family support and wasn't treated like that at that age. Where are the documentaries on real patients the is hidden. then really thinking there were calls to dismantle the DEA a few years ago they were not relevant.. now there is a heroin epidemic?

The CDC is critical, congress passed to follow what ever CDC recommendations were without reading that 11000 page document so these rules have backing of our lazy politicians.

While researching I did find another site... they are not my signed political affiliations however they are chronic patients.. this is not a political issue its a human issue they have 1692 signed as of writing this and need 2000. http:/­/­petitions.moveon.org/­sign/­let-doctors-prescribe/­

I did send email to the woman that started this petition since they are only sending to DEA. I let her know it needs to be sent to multiple different places to make any waves. We may want to sign it as well.. I did I just erase any spam that may come or set a new email to just take spam.. we need to band together

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37

SandyM, Jan 13, is the last day that the Federal Registery will take public comments. No one is saying that they won't prescribe opiates for chronic pain any more. They are just saying that those that have chronic pain and need opiates also need to try non medication and non opaites drug first. They are also saying that a dr shouldn't go above 90 mg Morphine/90 mg Morphine Equivalent Daily. There are also other things in the proposed guidelines, you can read all of this info at the link Roy provided in his initial post to this thread.

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38

I'm Robert Raper I was on oxacotin 40 mg the insurance made the DR switch me to OPONA40 mg 2 a day for both when I got them FIORICENT WITH CODINE 30mg 6 a day as needed VALIUM 10 mg 3 times a day for muscle spams.

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39

Yes I already have that site saved and am aware of the requirements and how it goes-I was venting about where the heck they find people who seem contrary to most of the intractable pain sufferers I know or who regularly post and so forth.

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40

Robert Raper, I'm sorry I don't understand why your insurance company only paying for certain medications cost you your dr. If your dr thought you needed the medication she had prescribed she could have done an appeal. Some insurance companies won't pay for medications like Valium if the patient is also taking opiates, without the patient being prescribed other mucsle relaxers to see how well they work. Some insurance companies also require Prior Authorization for some medications and that is extra paper work on the dr and some drs won't do it.

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