Accutane Long Term Side Effects (Page 95)
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I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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53

I took accutane for 6 months in 2009. It really cleared my acne, but I started experiencing problems and symptoms I never had before. I became irritable, started having crying spells, trouble concentrating, fast heart rate, and I began having severe chest pains. I didn't think anything of it until now and it has gotten worse. I don't know what to do. I'm tired of feeling like this and putting my husband through so much when he doesn't even deserve it. I need a cure!!!

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52

I've created a comprehensive research report on Accutane's history and pharmacology. I would encourage everyone here to visit the link below and download it.

http:/­/­www.yousendit.com/­download/­cmczeW53YTJHa05MWEE9PQ

My research provides insight into why the side effects can persist for a really long time after people stop taking it. Hoffmann-La Roche explicitly states in the Physician's Desk Reference that they don't know how Accutane works or how it causes an incredibly long list of side effects, but I believe that they do know. I also believe that through my research I have discovered Accutane's true mechanism of action that Roche has been keeping secret from the public.

My goal is to expose the truth about Accutane, present the scientific evidence, and enlighten the world about its history/pharmacology and the latent long-term effects it has on the body, which will lead to more independent research being conducted to elucidate the cause of the side effects.

More evidence validating my theory on Accutane's mechanism of action

http://ragforum.freeforums.org/more-evidence-validating-my-theory-on-accutane-s-mechanism-t58.html

http://ragforum.freeforums.org/accutane-report-may-2009-t45.html

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51

We are now 3 months off ISOTRETINOIN and my son is doing well on Abilify to control psychiatric problems. He will be on Abilify for at least a year while his brain heals and develops new pathways. I wouldnt say back to my normal son but pretty close. I am glad that there is some positve cases out there but it doesnt change the fact that this stuff is changing young peoples lives and even death. The facts are Accutane was taken off the market June 2009 due to law suits. It is a fact that kids have commited suicide and there are documented cases linking accutane to these deaths. It is a fact that kids and adults are on long term antidepressents and drugs for long term bowel disease. It is a fact in 2004 FDA named Accutane or ISOTRETINOIN one of the most dangerous drugs. It is a fact that the doctors in our country are dispensing this drug to kids with mild to moderate acne not to Severe nodular cases. I realize every drug has its side effect and unless it is happening to you it seems be not so important. The fact that I have to deal with is my son may always be on medications for this. It bothers me because it is my fault that he has missed 3 months of being 16 yrs old, he has missed social events and driving is out of the question right now. I trusted the medical comumnity to guide me and they failed. If I would have known these facts, I would NOT have put my son on Clarvaris/ISOTRETINOIN for his acne. My son was on his way to The Air Force Academy and had 4.0 GPA. Now his future is on hold. I survived acne so can you. A beautiful mind is not worth a pretty face.

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50

I suffered with acne most of my young adult life. My doctor finally put me on Accutane after many attempts at other acne treatments. At that point I would have paid a million dollers to have clear skin, as I'm sure others would agree it is horrible to deal with acne. Accutane completely cured me of acne. Yes the temporary side effects of dryness etc are not fun but, in the end I would do it again in a heartbeat. I havn't had more than the occational pimple since. That was 12 years ago.

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49

Nick-LOL
I have to laugh obviously you haven't read all three pages and the story of the father who created this thread, nor the mother thread on her son.
I have diffrent stories??? my story has never changed. Tell me what blood tests dr check for when it comes to severe osteopenia...What tests do they do for chronic dryness, which I didn't have while on accutane .Maybe you need to research the effects of high doses of Vit A. and Chemo....
Oh, and many on this board have posted on acne.org also....I will always warn against the use besides chemo and acne congblata. severe diseases it was made for....
I wonder why you woud even lurk on suffers sites and then post such nonsense.

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48

I took accutane when I was 16 and am 25 now. Haven't had any problems at all. Haven't even had to use facewash since I got off it it cleared within days and I had really bad acne, I would highly reccomend it to anyone with bad acne. If my future children have acne I'll put them on it as well.

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47

oil girl/jen c.,

I see you on alot of sites bashing accutane all the time. How many do you go on? The funny thing is you have a different story all the time. From what I understand if you experienced a problem that serious you should stop taking it. So why do you say drastic stuff to people implying that accutane can kill you.

Im just saying you made your own bed by going on with accutane when you felt these side effects so dont scare off people with all your scare monger stories. Now if you read this I know you'll get defensive i have seen how much people you disrespect people on acne.org who disagree with you. So I wont acknowledge it. Good day.

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46

I'm sorry to hear about your son, it's not like everyone has permanent side effects like these. Furthermore, your doctor should have warned you and your son of the possible side effects of accutane. Not to mention there are numerous warnings that come with the medication itself. When you agreed to put your son on accutane you also acknowledged the possible long-lasting side effects. I'm sorry it ended up poorly but there are even more dangerous drugs out there that are approved by the FDA - drugs that can potentially kill. And in the long run accutane appears to do more good than it does damage for patients taking it. Perhaps the doctor prescribed a larger dose than they should have, in which case at least some of the blame should be cast onto them. But regardless, you should have known the side effects before you made the choice to have your son put on accutane.

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45

I regret taking Accutane, I wish I never took that drug. Be careful if you are taking that Medication. If you are on Accutane make sure you are on the lowest dose. If you are experiencing side effect make sure you let your doctor know about it so the doctor can stop it or decrease the medication.

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44

I Took accutane 4 years ago and I am suffering from vertigo

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43

Charlie is 3 mo out off the generic Acutane and is still symtomatic. Will this nightmare ever end. I read other posts and I can see that things could be much worse for him. Everytime I read the new posts, I get depressed my self that there is nothing I can do to get this stuff off the market. 3 mo ago I had a 15 year old kid that was college or military bound and now his mind is so screwed up that I cant see that for him anymore. I am now worried that this is not temporary and that this is something that he will have to deal with for the rest of his life! OH but his face looks great!

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42

I took accutane when I was about 22 and stayed on it for about 4 1/2 months. Got tried of all the symptoms. It was a miracle drug for me. My acne cleared up and hasn't come back. I am now 24 and I have had problems with my sinus and I now have psoriasis in my scalp. I am thinking this is a result of accutane.

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41

I started taking Acutane in 1995 when I was 18 for severe acne. I'm now 32. I knew that there was a long list of side effects short and long term but I'd tried everything else and decided to take it. I had the normal problems while taking it like dried out face, chapped lips and sensitivity to sunlight. I could deal with those problems without a problem. What I couldn't deal with was the depression and loss of weight about a year later. The depression was pretty severe to where it controlled every aspect of my life. I thought I had some kind of terminal disease. My fatigue was so severe that I didn't get of bed some days and seem to sleep all the time. My friends and family didn't know what was wrong. I didn't link it to the acutane till recently. I had minor stomach ailments right after taking the acutane but didn't think it was the medicine. Now I have chronic Gastritis which is controlling my life today. I read that a few others have had stomach problems as well. I try not to take any kind of medication if I don't have to anymore. My trust in pharmacutical companies and the FDA is forever shot. I also started getting what is called geographic tongue right after finishing accutane and still have it today.. Was wondering if anyone who took acutane has had the same problem. I'm trying to piece together my ailments to see if its linked to my use of acutane. Thanks you for all the posts. They seem to have giving me some piece of mind knowing that I'm not alone. I've also had what feels like a swollen liver but the doctors tell me liver is fine. Has anyone had that problem?

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40

I took accutane for close to 8 months. It cleared up my acne but left me with the most terrible side effects. I've been off accutane for about two months now. My biggest side effect is loss of emotion for family and friends. It almost feels like I don't love them anymore. I also seem to be feeling very depressed and lonely. One of my favorite things to do is snowboarding and since i've been off accutane I don't feel like even doing that. Accutane did a very good job clearing my face, but I truly regret taking it now. If you want to risk having all these side effects then do it, but I advise you not to. I just about broke up with someone who is very close to me because I felt a lack of emotion for them

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39

I cannot believe what I am reading.I am a 37 yr old who took this medicine so long ago I cannot remember.It did clear up my acne, except for the cystic acne that I still have.I am not sure if I have had any side effects but I can tell you I do have a history of kidney stones, constipation,insomnia,mild depression,fibroids,dry and very itchy skin.I am now also starting to wonder if I too was a victim of this drug.Unfortunately for me, I was not aware of all of these side effects.Next time I come down with some ailment I will make sure to mention my accutane use to my doctor.My prayers go out to all of you who have been sickened by this drug.I have been where you are and I felt relieved to have found this miracle drug until now.

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38

i went to the doctor a few days ago and they wanted to prescribe accutane. i was going to take it but i started reading over the warnings. they warrnings literally brought me to tears. i was extremely frightened by the risks associated with this drug. they are outlandish. i am so sorry for anyone who has taken this drug and experienced permanent side effects. this is a gross injustice. doctors are supposed to be the keepers of our health and they should not be prescribing this drug to anyone.

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37

at age 22, i started accutane at 80mg per day for six months while on overseas duty. Sure the acne cleared and yes i was subjected to the 2xweek blood check procedures. After leaving military duty at age 23, I felt something was wrong with my ability to produce semen. Now at age 34, and the experience of a down fallen marriage which led to divorce due to not being able to produce, I strongly feel this medication Accutane had something to do with my side affect. Please, if there is anyone out there that has had same experience from this medication or links to more info. please respond. The greatest gift on earth is to be able to bare a child. Ernest H. Saenz

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36

PLEASE DON'T TAKE THIS DRUG!YES, IT IS VERY BAD FOR YOU!
It does get rid of acne but you might be without teeth because you bone are decaying, And you could have a bag on your side, because your colon is ate up, I would rather have ACNE!

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35

yes, it is so about money. The drug Company's dont care. Accutane is off the market but the generics are still out there. I will be looking into law suit at some point

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34

To Worried Mom- To answer your question why is it still on the market???- Money....A Congressmans Son even commited sucide on this drug and even Congress couldn't get it taken off the market. There in phase III of a study for a more powerful version of Accutane...More will be damaged and Doctors and FDA will still be in denial....

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